I Have A Favor To Ask...Please

[DallasStar]

Hi Everyone, I had an appointment yesterday with My Gi, & I told him about all of You on this Site...He will be attending an HCV Conference soon, & was wondering if You would Not mind posting Information about Yourself, So I can print it out for Him...
He ask for the following info...
Geno Type~Age~Male/Female~Height~Weight~VL~What Tx are You on?
All Medications You are taking....And the Status of Your TX..
Even those that have completed Tx...

I don't mean to be Intrusive, but he is Trying to get an Idea of how the current Tx is working...

I am 42/F, 1a, 5'7, Weight 107, on Pegintron/Rebetol, 34/48 this Friday, I was undectable @ week 12, & Negative @ week 29..
I am fortunate enough not to have to Take any Ad's, or other meds, except Xanax when needed (Husband will not come home if I don't take it) LOL

I would Truly Appreciate Your help..And I Thank You in Advance!!
Dallas

[FreedomSoon]

M /47 yrs. Geno 3a  I know I have had this H-C for at least 25 yrs. Diagnosed 5 years ago. Tried the natural treatments out there and reduced my counts and generally started feeling better. The frozen Nat Cell thymus helped the most but soon the virus mutated and I was back to the cruddy feeling again. The GP back five years ago said that this H-C was A symptomatic. They were just uninformed.  ( Most of the time I had symptoms of never feeling just right and never feeling rested. No thorough sleep so I had lousy days) I went to a support group meeting four months ago and found out that the success rates have increased to 80-85% for my type. Told the Gastro to start ASAP. Didn

[tina b]

Hubby is
geno 3a
6'0 tall
255lbs.
47 years
v/l 454,000
ferritin at begenning 12
probably got in army in 79-80 ie air guns
tx = .5 mc/gr peg-inter weekly + 1,400mg reba daily lexapro
milk thistle, flax seed oil, green tea, bill berry, vit e and vit b
blood work all find going into this round he is 4/48
this is second round tx for him right now wbc is 3.5 and plat is 109 after 3 weeks. Found out in 2002 after gallbladder infection and removal(I can't spell that.) Also has hemochromotosis. Has 10 units removed in 10 weeks after 1st round of tx, alt/ast returned to normal after phlebotomy tx.

1st round was 2002-2003
46 years old
v/l 2,500.000
biop- 3/4 + fatty liver ( 2 different docs read is two different was)
312 lbs
did 24 weeks .5 mcgr peg-inter + 1,400 reba daily + xanax as needed plus milk thistle
wbc got down to 1.8
blood work a mess going into and finishing first round of tx.
alt/ast way up about 238/197 never got to normal during tx
ferritin 1006.0 at begenning on tx and 2092.4 at end of tx
cleared at 12 weeks of tx undetectable, relapse after 6 mo post tx, (probably due to high ferritin is the speculation of dr.)

[LvdByGod]

It sounds like your husband is a little on the heavy side too. or is it pure muscle? anyway, they are saying wieght and fatty liver can be a huge viral responce indicator as well. this is just one more reason i want to stay on past my 24 weeks. i too am 3a and i too am heavy. (245 lbs.) the only diff. between your hubby and me is that i have normal iron levels. but my doctor said because of the fatty liver i have to loose my wieght too or liver will keep dieing even after i clear the virus. has your dr. told him this?

[LvdByGod]

yah, i was also going to tell you to print out OldH.Chicks site. i am female, 43yrs old
3a
245 LBS
650,000 viral load before tx.
going on 5th month of tx
pegasys/copeg. sides bareable so far
grade 3 inflamation and stage 3 fibrosis
alot of fat in liver/ no iron overload
tx schedual for 24 weeks may however go to 48 or somewhere in between the two due to being overwieght
bmi 50%

[Steve']

Hi there DallasStar... I am 45 male & was diagnosed a few years ago with Hep-c theyt say I've had it 25yrs maybe. I am 3a & just finished 27 weeks (Did 3 extra weeks) Pegasys + Ribavirin 800mg per day I had my end of Tx PCR blood woork & I'm undetectable (yippee) I did whole 27 weeks without any AD's or sleeping pills etc i guess I was just lucky ... Siders were all the normall aches etc but quite good .. I highly reccomend Tx to any newbies ...  <b>...Steve...</b>

[n2cats15]

I am 49
female
genotype 1a
viral load 850,000
week 8 of 48 of pegysus and ribiviron.  
I am taking ambien for sleep, zofran and/or phenergan for nausea, zyrtec for the itching, tylenol for discomfort and vicodin for extreme pain occasionaly.

[berlynn]

Hi Dallas, hope you are doing well. Actually this is the first thread I have read in a while...so I hope everyone is Hang'n in there.

age 46
geno  1a
Female
5'5"
120
probably had Hep C for 35 to 25 yrs
just found out last November

I am now 39/48

viral load.6mil, 500thou (pre tx)
minimal dammage according to biopsy, last DEC.
medications -  Pegasys, Rebetol, Neupogen, Effexor, trazadone sometimes, vicadin sometimes for headaches and joint and muscle aches and cramping..mostly in my wrist and hands
treatment status - undetectable at week 11 & throught treatment
tylenol and tonight bennadryl cause I can't stop itching.
Hope this helps, berlynn

[ral]

Dallas

I forgot to put in there that I was stage 3-4 with scaring, fiborsis, and early stages of cirosis,

Bob L

[reposyco]

geno 1a viral load 199,584 biopsy 3-4 42 years old 5"6 238 pounds peg/reba 150/800mg 7/48 no drugs mild sx

[Fubarcat]

Sorry - forgot to tell you VL was 685,000 before treatment.  I'm 7/48 on injections.

[Sioux]

I am Female
Age 44
5'6"
165 lbs was 200 lbs at start of tx
geno 1a
v/l before tx 10 million
Stage 3 grade 2 liver damage
undetectable at 12 weeks
just finished 48 weeks of peg-intron  and rebetol
also am on Effexor XR, Ambien, Ativan, Vioxx and Procrit
I will have labs done next week to see what the v/l is (or isn't)
mu sx were so bad I had to stop working.

[jg2001]

Ok, here I go again...hopefully the Post Button is demagnitized!

I am...F/41, 5'10", 145lbs, dx 11/03, 1b, informed yesterday by my doctor that I am one of the 10%-15% of people whose body clears the virus on its own!  Can't complain about that!  Cleared HBV and HCV.  Retesting in 6 months.  

I appreciate all that you are going through. I feel a sense of guilt that I am a fortunate one.  

My brother and I were probaby infected around the same time, 15-20 years ago.  My brother passed away (8/02) as a direct result of this disease and my body cleared it.  I wish I knew why or what was different about us.  I do know that today, I feel that it is all unfair and it makes me sad.  I pray that each and everyone of you FIGHT WITH ALL YOU'VE GOT to kick this dragon's ass!  Do not let this damn disease take one more life...EVER!

Sorry, I have to go now, I'm getting a little emotional.  I will check back periodically to keep up on everybody's progress.  Thank you all so much for being who you are.

Sincerely,

Jamie

[DownThisRoad]

46/Female
genotype 1a
weight 135 lbs.
height 5' 10"
Have had hepatitis C for approx. 12 years
Biopsy 3 months before starting treatment showed stage 2, grade 2; Hepatitis C
PCR showed viral load at 880,000 8 months before I started my treatment
PCR showed viral load at 440,000 (baseline 2 weeks before I started my treatment)
Started treatment meds on 4/20/03

Note: was notified by RED Cross that I had hepatitis C. My virus was not found during a rountine annual exam/checkup.

Initial prescribed length of treatment: 48 weeks
Pegasys: 1 ml injection weekly
Copagus: 1,200 mg daily (600 mg morning & 600 mg evening)
Procrit: 1 ml injection weekly (since week 7 due to low rbc)
Amitriptyline: 50 mg daily (taken in the evening; started taking this medication 1 month before treatment meds started)

I didn't clear the virus to an undetectable status at 12 weeks, but did achieve undetectable status (below 50) at my 16 week point

Goal:
to reach my 48 week duration of tretment meds and then continue on for another 8-10 week extension past my 48 weeks with both Pegasys injection and Copagus pills

[ellissg]

64 year old male.......2b VL 5 mil.....Peg-Intron&Rebetol, 24 weeks, on week 5 and ALT, AST, GGT are all dropping nicely. I won't know about VL until week 12. Very few sides other than fatigue, shortness of breath, loss of appetite.

[OkieJim]

51/M, 5'10", 185lbs, VL 1,080,000, geno 2B, cirossis, did 24 weeks Pegasys/Copegus/Neupogen completed TX last week.

[Ambush]

I am Female, age 50, 5'2", 120 pounds, 1a, minimal fibrosis  
576,000 vl to start ~ 12 wk vl was 6,100, 24 wk undetectable
Pegasys 180, 800 Riba, 1,000mg VitC, 800iu Vit E, Multi/no iron
Week 40/48

[louisep]

F/geno 3a, age 38, Due to do shot 14/24 Mon, weight since starting tx-91 pounds, viral load at dianosis-greater than 500,000, clear at 12 weeks.  On 4.5 Pegintron (weekly) & 400mg Riba (daily)& will stay on these doses until the end of tx.
Hope this helps.

[BusterBrown]

Male 42 160lb 1a beginning VL 10 million. Pegasys+ 1000 riba. 12 week neg and did 48 weeks and am neg 3 weeks post treatment.

[Ranger123]

MALE 45-VL 9ML.-GENO 3A-THE FIRST TIME ON PEGINTERON WITH RIBAVIRIN 1000,STOPED AT 32 WEEKS DO TO THE BAD SIDE EFFECTS WAS GOINNG FOR 48WKS.I WAS CLEAR 5< AT 32WKS.IT WAS BACK UP TO 2ML.AFTER 8 WEEKS.NOW IM ON PAGASAYS AND COPEGASAYS UNDER 600 AT WEEK3 AT WEEK10, 5< IM AT WEEK 20 AND DOING BETTER THE 2X. ITAKE AMBIEN TO SLEEP, ANDLACTULOSE SOLUTION FOR THE BRAIN FOG,WATER WATER, WATER    THANKS RANGER

[Ranger123]

MALE 45-VL 9ML.-GENO 3A-THE FIRST TIME ON PEGINTERON WITH RIBAVIRIN 1000,STOPED AT 32 WEEKS DO TO THE BAD SIDE EFFECTS WAS GOINNG FOR 48WKS.I WAS CLEAR 5< AT 32WKS.IT WAS BACK UP TO 2ML.AFTER 8 WEEKS.NOW IM ON PAGASAYS AND COPEGASAYS UNDER 600 AT WEEK3 AT WEEK10, 5< IM AT WEEK 20 AND DOING BETTER THE 2X. ITAKE AMBIEN TO SLEEP, ANDLACTULOSE SOLUTION FOR THE BRAIN FOG,WATER WATER, WATER.

[reposyco]

geno 1a viral load 199,584 biopsy 3-4 42 years old 5"6 238 pounds peg/reba 150/800mg 7/48 no drugs mild sx

[Fubarcat]

I'm female, 47 years old (how the hell did that happen - I swear I was just 30 yesterday?); 1B, Grade 3 inflammation, 1-2 fibrosis.  PegIntron .4/Riba 800 mg.  Occasionally take Klonopin for "restless leg syndrome", but not often.  5 feet, started at 112 before meds, now 107.  Take multivitimins, milk thistle, lecithin, vit. E, magnesium/calcium, acidopholus on a daily basis.  Hope this helps.

[Martee]

lb/female/49/vl-about 2mil.
  5'2- l28 before treatment, down to ll6, then back up to 120 at week 39/48.
Pegasys 180, and copegasys 600 mg.
On procrit for about 8weeks, now off. Undetected <50 at 7weeks.
Zoloft/various vitamins, and occasional tylenol.

[Martee]

sorry...forgot to add. Biopsy was stage 3 grade 3.