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80575 tn?1207132364

"I'll give you something for energy while on treatment"

I'm considering tx again and will be screened for the new VX950 trial.

I'm worried about working with all the symptoms again.  As I wrote earlier I own a small business that requires much travel and customer interaction.  People depend on me to keep them employed.

My doc made the comment that he would give me "something" for energy and to curb the symptoms during tx.  

Are any of you on "something" that works for you?

Thanks,

Mike

22 Responses
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1707536 tn?1334974077
Vyvanse is an amphetamine and I always thought amphetamine was really bad for the liver. It can raise your ALT's and it can be really tough coming off of.

That being said, it works wonders for fatigue.
Helpful - 0
253566 tn?1219679699
I have been on Vyvanse 70mg for a number of years SVR but PIS with very good effects.

Suffering from chronic low level anemia/chronic fatigue/insomnia Vyvanse helps once I am able to get out of bed... getting to sleep is another matter.
Helpful - 0
223152 tn?1346978371
This is areally old thread.  Not only did Miked become SVR, he became a Vertex advocate.  If you want some feedback on your information i suggest you go to the top and "Post a Question"
Helpful - 0
Avatar universal
I don't know if Vyvanse would be allowed.  It has the d type amphetamine rather than the i type . . . supposed to be more effective and fewer sides.  Some people find it helpful.
Helpful - 0
Avatar universal
Actually I think I know what it is - starbucks double roast morning blend.
Helpful - 0
179856 tn?1333547362
work in the beauty industry - in corporate. yawn. lovely seeing models all around that are barely 16 but look 25 and the guys that make me blush....... ;)

Sometimes...I get bored out of my bonkers...working in the hair and beauty industry while going through treatment was NOT a good thing, let me tell you.  One reason I went out and got my lovely lady wigs ;)
Helpful - 0
80575 tn?1207132364
Thanks for the information.  I'll research the options that you gave.

I'm in the software business.
Helpful - 0
12773 tn?1328913186
Thats funny.. I totally understand then..    Make you blush huh ?   We are not allowed to use the computers at our desks for personal use, you are lucky,, but I never have enough time to think about surfing the web anyway..  Constantly on the phone, which I am beginning to hate.. LOL   I am really dreading going back to work next week.    ughhhhhh
Helpful - 0
Avatar universal
take vitamin b complex daily...it will give you a noticable boost.

also remember to eat 5 fresh fruits/vegs a day, and if possible, pomegranates.
Helpful - 0
96938 tn?1189799858
When is your first pcr?
Helpful - 0
96938 tn?1189799858
And,. are you feeling better these days?
Helpful - 0
12773 tn?1328913186
What line of work are you in ?  
Helpful - 0
Avatar universal
Check out Energy Kampo, I took it throughout my treatment. I felt that it helped.
Energy Kampo is a classical high quality herbal formula designed to maintain energy and well-being.

http://www.honso.com/product/Default.htm

EnergyKampoTM is a classical high quality herbal formula designed to maintain energy and wellbeing*. The product is carefully formulated based upon ancient Oriental medicine and revolutionarily tested and manufactured in Japan. The centuries-tested combination of each formula creates an integrated remedy that is much more effective than the total of each herb separately. Established in 1931, Honso Pharmaceutical is a leading manufacturer exclusively focused on Kampo (Japanese herbal medicine) innovation. Its pharmaceutical GMP facility ensures the potency of every ingredient at their unparalleled high quality.

Suggested Use: As a dietary supplement, take six tablets three times daily with a meal, or as recommended by your health care professional. For best results, use this product for at least two months.

Actual size of the tablet: 9mm, 320mg

Supplement Facts
Serving Size 6 Tablets (Six Tablets Three Times Daily)
Serving Per Container 45


Search the Internet to find the lowest price and buy in quantity.  Consider shipping in the price of the product.

http://vitanetonline.com/searchs/Kampo/Kampo/

Hope this helps!  I have cleared the virus after 48 weeks of treatment.
Helpful - 0
179856 tn?1333547362
I haven't heard of anything that might work except something like Adderoll (extended Ritalin) like my son takes above.

Ritalin was actually developed by the Nazi's during the world war to help keep the guys eyes focused on the radar screens - something I learned when my son was first found to have ADD.

I'd like to take some right now at work - I could use it! ;)
Helpful - 0
Avatar universal
Lol , I hear ya on that one.Except I save myself 5 bucks a pop.....Folger's Gourmet Dark Roasted....Few cup's of mud and I'm ready...I try to cut back on the Sausage grease milkshakes........lol
Helpful - 0
146021 tn?1237204887
Some have posted that their dr's prescribed stimulants for fatigue. I already take adderall and it has the opposite effect on me since it was prescribed for hyperactivty, attention deficit. Post when you find out what he means.
Helpful - 0
Avatar universal
My doc also gave me some samples of Provigil. Never took it for some reason that I can't remember.
Helpful - 0
Avatar universal
I started on provigil yesterday for fatigue it does help but it does not help with shortness of breath.
  It got me out of the bed where I had been for 2 months. Tried
B12 shots - didn't help.
Provigil is prescribed for MS patients to increase energy.  Also, given to patients with narcolepsy and sleep apnea.
I wish I would have started it sooner.  I had never known real fatigue.
Thanks!
Helpful - 0
Avatar universal
The treatment drugs can cause depression and fatigue. Both conditions are not always treated with the same drug. You doctor may be referring to a psycho-stimulant like Ritalin to combat the fatigue portion tx side effects.  
Helpful - 0
Avatar universal
Sure he wasn't referring to procrit and an A/D that doesn't make you tired?
Helpful - 0
Avatar universal
not sure you saw my reply to your post the other day regarding wellbutrin. it was not prohibited for me on the vx trial. i had been taking it before tx & increased from 150 to 300 mg per day (the sustained release) about 2 monthdinto tx. it seems to help with the fatigue. your doc may have something else like provigil in mind.  
Helpful - 0
Avatar universal
Yeah, sleep!
Helpful - 0
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