Aa
I'll show you mine if you show me yours..... open thread
Well , I feel liek hell , it must be Sunday. Do you guys mind if we take a minute to catch up on some sides to maybe figure out how to handle some of them?
Over all , and I really shouldn't be saying this , My sides have leveled out and are nowhere near as agrivating as they were for a while . My ribarash finally went away , mostly. I used the Gold Bond lotion until I went through a whole bottle and the rash was still there. I did a lot of fact finding on the net of how to deal with rash and one of the site recommended Aloe Vera.
I started using vaseline intensive care with Aloe Vera and I swer within a week the rash had nearly faded all the out. Just in the last couple of days it has started to re-appear at the same location but I think its because I let up on the AV. I havent gotten any additional rash and consider myself lucky.
My big problem these days is that both my upper and lower lips are split , right in the middle. I cant tell how big the split is , obviously to my mouth it feels like my entire lip is split in half , but in the mirror it looks like maybe just shy of a quarter inch. I cant seem to keep the dryness away long enough for them to heal properly. I've been using vaseline and campho phenique but I really dont know if its helping or not.
Lastly , this really doesn't hurt or anything but its wierd and I cant figure it out. My legs , I have always had darker , like tan , coloring to my legs and it seems like the tan coloring is going away and just remaining in blotches. Not like my tan is fading , like my skin is changing. Its really ugly.
Over all , and I really shouldn't be saying this , My sides have leveled out and are nowhere near as agrivating as they were for a while . My ribarash finally went away , mostly. I used the Gold Bond lotion until I went through a whole bottle and the rash was still there. I did a lot of fact finding on the net of how to deal with rash and one of the site recommended Aloe Vera.
I started using vaseline intensive care with Aloe Vera and I swer within a week the rash had nearly faded all the out. Just in the last couple of days it has started to re-appear at the same location but I think its because I let up on the AV. I havent gotten any additional rash and consider myself lucky.
My big problem these days is that both my upper and lower lips are split , right in the middle. I cant tell how big the split is , obviously to my mouth it feels like my entire lip is split in half , but in the mirror it looks like maybe just shy of a quarter inch. I cant seem to keep the dryness away long enough for them to heal properly. I've been using vaseline and campho phenique but I really dont know if its helping or not.
Lastly , this really doesn't hurt or anything but its wierd and I cant figure it out. My legs , I have always had darker , like tan , coloring to my legs and it seems like the tan coloring is going away and just remaining in blotches. Not like my tan is fading , like my skin is changing. Its really ugly.
I HAVE to wear clothes or my husband will attack me. No energy for that! I have burned my bras, designer clothes and shoes. I wear moo moo's and no underwear and I don't care WHO visits. They get me as I am!
Yep, the fire scares me on this mountain. I have a pool and a fire hose, but 113 Oaks just on our property. Probably close to a 1000 open acres of woods. I doubt my rosemary bushes are going to stop any kind of fire.
Yep, the fire scares me on this mountain. I have a pool and a fire hose, but 113 Oaks just on our property. Probably close to a 1000 open acres of woods. I doubt my rosemary bushes are going to stop any kind of fire.
You mean you put on clothes?? Days off, I do my chores in my nightgown, and thats as far as it goes!! Kind a gotta be sneaky, neighbors can be so pesky...ever notice how you NEVER have company unless your not dressed or your house is a mess? Hope your mountain is a wet one, I shudder to think of the fires we're gonna see out here..........
Sorry you are feeling lousy beamer! What's going on? My Neulasta gave me the worst pain last week and no amount of pain pills seemed to help. Finally when the shot wore off, so did the pain.
Thanks for the compliment on how we all look, but you haven't seen us! I mean I could scare my own cats with how I look. Those red buggy eyes, hair standing up on my head, mouth slightly open from gasping for breaths. Of course there are the lovely matching clothes I wear. I am surprised anyone allows me to walk around town.
Yeah, the 4th is scary for me too. My sons have always had some stock of 'bomb's to blow off every year that scare the **** outta me. The kids wanted to come over to BBQ, I said no way you are doing fireworks on my mountain! So we are going to his house. Still don't like it much.
Thanks for the compliment on how we all look, but you haven't seen us! I mean I could scare my own cats with how I look. Those red buggy eyes, hair standing up on my head, mouth slightly open from gasping for breaths. Of course there are the lovely matching clothes I wear. I am surprised anyone allows me to walk around town.
Yeah, the 4th is scary for me too. My sons have always had some stock of 'bomb's to blow off every year that scare the **** outta me. The kids wanted to come over to BBQ, I said no way you are doing fireworks on my mountain! So we are going to his house. Still don't like it much.
give me foggy mountain feel good anyday!!! So far, I am maintaining with just advil, benadryl, and more advil. Some nights I need more, but most of the time its OK. I take 8 riba a day, 1 accupril (bloodpressure), 2 benadryl, and usually 6 advil. I feel like a druggie again!! Looking at the clock for the next fix....hows yous holiday going? I am not fond of the 4th of july, actually my least favorite holiday. Having always had horses, dogs, and assorted critters, the fireworks are a constant worry- put horses through fences, scare the dogs off, so I have ALWAYS stayed home on the 4th. Hope yours is stress free...
appearances be d@mned-You Ladys are beautiful& ya Rock!!! hope sx's diminish for everyone ...pain meds-i hav been uppin dosage,then decided that i was findin reduced effectiveness...anyone else? what type & what dosage? i don't wanna lie around,feels bettr to be workin on any little project& gotta help my deteriatin body...soo bit of a trade off-foggy mountain feel good or achey breaky body-Happy 4th
Springsteen is going to be on Tv, Great Performances on Wednesday night doing the Seger songs. It is supposed to be really good.
funny you said "eyes on the prize" I just bought springsteens new cd the seger sessions, and love it. That is a spiritual gospel song on it!!
I think that is the problem. After 51 weeks THIS is normalcy. What is life like outside tx? Hey, I have been to some of the Roswell Alien events - For years we had family reunions in Roswell every two years at 4th of July. So running downtown to see what everyone was dressed like was a hoot.
Those almonds sound great! If they were organic, I guess you took out a loan for the purchase. (what are they - like $7 a # for regular, and $14 for organic?). I have been on an icecream and M&M kick lately -- so much for losing weight on tx.
Those almonds sound great! If they were organic, I guess you took out a loan for the purchase. (what are they - like $7 a # for regular, and $14 for organic?). I have been on an icecream and M&M kick lately -- so much for losing weight on tx.
Hey there, sorry about your friend brainfog- hubby really didn't maim me, he just happened to be on the other end of the board, saw, etc when I did it to myself, but I like guilt better than sympathy!! Roswell's alien festival parade is on CNN today,must be a slow news day.
Isn't it amazing how desperately after months of tx we crave normalcy, just want to do what we would do if we felt better. The good news is, we will feel better, its not forever! And if we fail at tx, we're not going to die 6 months after..we just have do-overs!!
speaking of cravings, I ate 2 lbs of almonds last week........I have no idea why!! at least I pooped good for a day!!
Isn't it amazing how desperately after months of tx we crave normalcy, just want to do what we would do if we felt better. The good news is, we will feel better, its not forever! And if we fail at tx, we're not going to die 6 months after..we just have do-overs!!
speaking of cravings, I ate 2 lbs of almonds last week........I have no idea why!! at least I pooped good for a day!!
Hello, I have had cracked and crusty lips, especially on the corners of my mouth, since December. There have always been at least one, sometimes two, splits on each side, similar to what you described. I found that keeping a little tube of Neosporin + Pain handy helps with some of the the symptoms if nothing else. Dabbing some Aquaphor or similar product on at night seems to help too. I finished 48 weeks of Tx last Friday and I think my scly itchy eye crud is showing some improvement, though it did wax and wane throughout Tx. Yesterday I know that for the first Sunday since last summer I didn't have that achy, flu-like, coming down with something feeling. Hang in there, do what you can for symptom relief, and keep your eyes on the prize! - Lee
lips, i would rub neosporin on your boo boo's, just don't lick your lips while you have it on, also i moisturize alot at least my face and I make sure to unclude my lips, plus i use aloe and vitamin e lip balm, got to have those kissable lips, right? There are lotions that say moisturizes for 24 hours and slather it on through out the day
About your lips...
Try taking a zinc supplement. It has helped me. My doc said there is a prescription he could give me but to try the Zinc first.
Try taking a zinc supplement. It has helped me. My doc said there is a prescription he could give me but to try the Zinc first.
I think the brain fog is taking its toll. Simple things are getting hard to figure out. Tried to machine quilt today and now I am going to spend about 5 hours on the couch ripping out every stitch. Normally I can do it but not this weekend. Shouldn't have tried.
Fishdoc - I stubbed my toes today. Can't believe your hubby maimed you so bad. Evey week it is a new wound that won't heal. I still have bruises from January and last August that haven't healed yet.
Does it seem like whatever you have gets worse? I have what I guess is varicose veins around my ankles and they were particularly wild and bugged out looking today. They have so many switchbacks I bet the veins in an inch long stretch of skin would pull out to be about 6" long. Not that it is tx related but tx seems to be making it worse.
Fishdoc - I stubbed my toes today. Can't believe your hubby maimed you so bad. Evey week it is a new wound that won't heal. I still have bruises from January and last August that haven't healed yet.
Does it seem like whatever you have gets worse? I have what I guess is varicose veins around my ankles and they were particularly wild and bugged out looking today. They have so many switchbacks I bet the veins in an inch long stretch of skin would pull out to be about 6" long. Not that it is tx related but tx seems to be making it worse.
Here, here! IF they don't like how we look, there are different directions to turn their head.
Well said, my friend.
miss
Well said, my friend.
miss
I look terrible. I used to look alright. I look terrible. I don't care either. They say "Look Good - Feel Better"? Scr*w that. I don't have the energy for makeup or dressing up. I just want to look as bad as I feel and I do. So there.
I havent had too much of a problem with the upper respiratoy. I do get the fevers constantly. I have lots of weird little issues going on right now. I feel like I have a new pinched nerve in a different spot all the time, charlie horses. Exhausted, but cant sleep.
One day I want to eat everything in sight and then the next, the smell of food makes me want to throw up.
I hate the metallic taste in my mouth,...its like Im sucking on a roll of quarters! LOL
One day I want to eat everything in sight and then the next, the smell of food makes me want to throw up.
I hate the metallic taste in my mouth,...its like Im sucking on a roll of quarters! LOL
Ya gotta love the new tx look! The walking zombie with a limp? What's makeup? Clothes? I'm lucky if I change them every couple days...sleep, eat in whatever is the most comfy thing I can find. Bra's have become obsolete in my new wardrobe as well. I know I scare even the grubby work guys that come over. Who cares?
lilmomma; I have been having the same thing going on with food. One day I can eat like a truck driver and the next I just want to heave. What's interesting is I get cravings like a pregnant lady. Lately I am hooked on turkey and avocado sandwiches. I couldn't STAND standwiches my whole life! Now I eat them breakfast noon and nite.
I know what you mean about the moving pinched nerve. I can't even move when I wake up with out pain meds most days.
Miss: That 24/7 pain is getting me too. A few good days in between to regroup sure would be nice! I am jealous how little time you have left!
lilmomma; I have been having the same thing going on with food. One day I can eat like a truck driver and the next I just want to heave. What's interesting is I get cravings like a pregnant lady. Lately I am hooked on turkey and avocado sandwiches. I couldn't STAND standwiches my whole life! Now I eat them breakfast noon and nite.
I know what you mean about the moving pinched nerve. I can't even move when I wake up with out pain meds most days.
Miss: That 24/7 pain is getting me too. A few good days in between to regroup sure would be nice! I am jealous how little time you have left!
Its like , I really dont know how to discribe it , its like there is more blood in the tissue of my legs than there used to be. My legs have taken on a more red-pinkish hue. It wierd. When I rub my hand accross my leg , it kind of goes away and then comes back. Any ideas of anything specifically cause that.
Thanks
Thanks
Don't really have the strength to post but oh well, what's new?
Amer, I'm with you on the muscles. Feel like a bag of jello that slip down the toilet if I don't hang on! Plenty of fat, but muscle tone is gone, gone, gone.
52- You almost sound dehydrated but I find that hard to believe. Maybe it is cause we don't get the sun so much with tx. My hands are that kind of blotchy.
My biggest thing now is the pain. My right leg is really hurting 24 hrs a day. There is the usual flu like stuff but this pain can be incredible. I hate taking extra pills but been succumbing to pain pills lately. Absolutely do not have any good days in any week now. Friday was 42/48.
Boogers? What is the longest two finger pull ever done? lol
Miss
Amer, I'm with you on the muscles. Feel like a bag of jello that slip down the toilet if I don't hang on! Plenty of fat, but muscle tone is gone, gone, gone.
52- You almost sound dehydrated but I find that hard to believe. Maybe it is cause we don't get the sun so much with tx. My hands are that kind of blotchy.
My biggest thing now is the pain. My right leg is really hurting 24 hrs a day. There is the usual flu like stuff but this pain can be incredible. I hate taking extra pills but been succumbing to pain pills lately. Absolutely do not have any good days in any week now. Friday was 42/48.
Boogers? What is the longest two finger pull ever done? lol
Miss
phlegmy , shoot with an I . If I allow myself to become dehydrated , the phlem gets thicker and It's horrid.
Yeah those boogers. I hate when your nose is so dry they stick tight to the inside of your nose and won't come out. Really irritating!
I also love that red-rimmed eye look on blochy white skin. With hair loss and a few electric plugs we could all look like Herman Munster.
I also love that red-rimmed eye look on blochy white skin. With hair loss and a few electric plugs we could all look like Herman Munster.
Oh, and don't forget blotchedy (yes we all are!!) eyes are perpetually redrimmed and feverish looking, lets see, bright green boogers and or nosebleeds, phlegmy, although I have to say the ribarash is gone now, lubriderm with oatmeal whipped that, but it was replaced with the dermagraphia, reflexes slow as the seven year itch... I tried to "help" hubby build my pigeon coop, lets see he smashed my finger, twisted my ankle, and ran over the same ankle with the trailor, gave me a blood blister on my palm,.... why, because I am so slow-physically and mentally- man dyce and strator, I don't know how yall have all your fingers and toes..You are studs!! I would be dead in a week...
yeah, it all sucks. period. i've got all kinds of **** happening to me that's never happened before. my biggest complaint right now, and by that i mean this very minute, is muscle loss and the aches that accompany that. why is it your muscles melt but not your fat? dr. said 'cuz muscles need more oxygen than fat cells and with riba doing a number on the hemoglobin/oxygen levels...well you get it. just my dumb luck. the one time i could have an illness that might make me lose weight and i lose muscle instead. so i'm going to be a bald mass of fat on the flood when this is over. great.
I use this stuff called Kiehl'a lip Balm for dry and chapped lips. It stays on for a long time. You can't get it everywhere. I know they sell it at Nordstrom's.
Yes, my favorite topic, sides. Gotta hate 'um. It seems like just when I think I am getting a handle on them, a new one pops up. Right now all I want for Christmas is NO achy bones.
Yes, my favorite topic, sides. Gotta hate 'um. It seems like just when I think I am getting a handle on them, a new one pops up. Right now all I want for Christmas is NO achy bones.
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