Last 2-3 weeks on incivik seem to be the worst

[printze]

I am noticing s the weeks go by those of you taking shot 10-12 seem to be getting very sick . This is why I am afraid of treatment , I live all alone and have no one to help me when it gets really bad. I hope youget better soon all of you.

[stormy456]

Your experience sounds much like my husband's.  He ends the INC portion of his treatment in 2 days.  There have been hours that he really doesn't feel well, but it really has been hours, not even entire days.  He hasn't missed any work, and continues to do mild exercise (elliptical for 20/min or a 30 min walk on the beach.)  On the days he doesn't move his body he feels far more anxious.  He did get the rash off and on, and it came on more in week 10, so he needed a prescription cream for that, along with Benadryl.  Looking forward to being post-INC though!

[pooh55811]

Congratulations on starting treatment.

Hopefully you will be one of the people who has few or minimal side effects. However, if you do develop side effect, please post, sooner rather than later, and those of us who have had those side effects will respond and give you our remedies and suggestions for controlling them.

It is beneficial your husband went through treatment. At least he knows what treatment can be like, although it is different for every individual.

Best of luck treating.

[romans828]

Thanks for the information.  I will be starting tx in about a week with a protease inhibitor (they haven't named it, so I'm hesitant about saying it's incivek).  I'm a little skittish about the whole thing, but am grateful my husband went through the tx about 3 years ago.  He did the regular pegintron without the inhibitor, so I will be a little different, but he is aware of the sides and will be a good support.  I have heard "it's all about the attitude", so trusting the Lord, staying positive, knowing there IS an end, and keeping in touch here on this forum will be helpful (especially reading real life testimonies like yours).  Thanks for posting.

[eecb]

Hello, to everyone!  I want to write a word of encouragement for anyone about to start triple therapy, with Incivik,  for Hep C.

I am seeing over and over, as I read, how very difficult this therapy can be for people, and I hope everyone has the strength and health to get through it and get healed.

I do want to offer some hope to those who are about to start but are overwhelmed with how scary-sounding it sounds, and deservedly so.

I have had very little problem with the side effects of any of the drugs of the therapy, and this morning I took my last dose of Incivik, after three months of taking it.  Other than the very first night--when I got tiredness and severe chills from the interferon--I had mouth sores a little bit, and a little bit of fatigue in the middle of the course, and that's about it.  I had 6 or 7 days where I felt about 60--70%, but most of the time I was between 80%--90% and had quite a few days where I basically felt 100%!

I am 59 years old, and healthy otherwise.  I think hydrating 2--3 hours before big meals, and eating meals and snacks at intervals, so that there was time for digestion in-between, helped a lot. I imagine everyone learns how to space their food out in a way that works for them...

Try not to eat much fat except when it's needed for a dose, so you don't build up too much fat in your system.

Also, along with junk food, fat needed for a dose can be absorbed  with a VERY small salad with cheese. avocado, olives, and a creamy dressing. Or with 8--12 oz. of your neighborhood grocery store's deli soup, Cream of Broccoli, Thai Chicken, etc.  (Our store, Thriftway, provides nutritional vales with the soup.

Or have a small cheese sandwich.  If you like butter and mayo, liberal use of them make getting you fat easy

I also suspect that my dog's need for a 15--20 minute walk, 3 times a day (because of a leg injury he has that we are rehabilitating) was very important!  I almost always felt better after a short walk, and moderate exercise is so important to keep food, water, and the drugs moving through you. and to help your system flush out side-effect causing toxins.

I took a little Benadryl as a pre-medicating precaution once in a while if I felt even the tiniest bit itchy.  (Benedryl should be taken liberally and early.  It's works best that way.)

I has almost no problems with nausea if I ate right...  

[ceecee444]

You'll do just fine :-)

[printze]

Thanks for the support , I pray to the sx Gods they go essy on me, I don't  do suffering very well......

[pcds]

I am 59 and in week 16 to 3x therapy.  I live alone, no family.  It's easier in a way to be alone, so no one annoys me.  I also work.  I do have a housekeeper, which is a must since doing this treatment makes it too hard to clean a house.  But I shop, laundry, etc.  Being alone is not the hardest part.  Feeling sick everyday is hard, but you get through the day, and the next, until it's over.

[ceecee444]

Hang in there I'm on week 10 tx (Incevik)  @ 55 yrs, single and live alone no one to help me either, I guess for me it because I want no sympathy. The treatment has been very rough but so far so good. Just have faith in your self and keep a positive attitude, stay strong please.if you decide to do this treatment, just remember  you who has to make this decision.
For me I want a future.
People on here are wonderful I have read so many up lifting statements and a lot of moral support.
Don't be afraid to ask friends for help either.

[printze]

I spoke to my hepc doctors nurse today and we are starting with vitrelis in new yr incivik is not pproved here in Montreal yet.Who is doing the vic tx

[Louie723]

You could look at this link. It is door to door transportation for disabled and maybe they could help temporarily. Worth a look anyway.

http://montreal.about.com/gi/o.htm?zi=1/XJ&zTi=1&sdn=montreal&cdn=citiestowns&tm=31&gps=490_293_782_402&f=00&su=p284.12.336.ip_p554.19.336.ip_&tt=29&bt=0&bts=0&st=10&zu=http%3A//www.stm.info/English/t-adapte/a-index.htm

[Advocate1955]

This is a very important decision.  Right now, with the triple therapy, you have a much higher chance of clearing Hep C than you would ever have previously had.  If you don't try now, it could be several years, possibly even 3-5 years, before new drugs come out.  Originally Incivek was expected to be available much sooner than this year, but approvals take time.  Make this decision carefully with your doctor.  In my husband's case, the damage to his liver between 2007 and 2010 was surprising fast.  He went from between F1-2 to beginning Cirrhosis with nodules in that short amount of time.  Don't be afraid to try the triple therapy if your doctor recommends it.  It's tough, but you can do it.
Advocate 1955

[printze]

In Janaury when I see my hepc doc I am gong to ask him if I can wait till the newer drugs come our way .

[printze]

Thank you, my fear is being all alone , how can I  I get a sipport system IF i DON'T HAVE ANY,that is my deepest fear and I have no compassion witht the people I work with I am sorry I even told thmI was scared and was crying when i came from th edoctors office back in March , that is what eats away at me . I take public transportation to work , lots of walking and stairs, I won't be able to handle that , no way. It will kill me.

[Livinontheedge]

Not to be sarcastic,  but for me, I thought I would be going into this with a whole lot more help than I have been getting which is NILL !    However, if I dont feel like cooking my husband will run to the sonic, or whatever for me, but thats about it.    I'm in week 10 right now, and week 7-9 were kickers for me.   I am hoping this week smooths out a little.   Like I said the key is water if you are not drinking it sx will be worse.    And honestly, I am not getting the water intake I need to have.   I get up to about 80 ounces a day and then I have to resort to cranberry juice or sprite for the rest.    
Like screaming said,   get all your ducks in a row  and be prepared for anything, have alot of can foods in the pantry, like fruit and veggies, potatoes.    I always used frozen fruits and veggies until now and I just pop them in the microwave with a bake potato and voila !   Good eatin and lots of fat if your using butter or ranch dressing :)  
Just be prepared , you may not have any symtoms :)   This can happen !

[screaming48]

my husband is gone alot with his job and I am on my own. The sides have been a bugger and I have dealt with them by myself. I do have to have help with the farmwork as I am very anemic and can't do anything but we are all going to make it through this and so will you. I was told by several people on the forum when I first joined to have a plan in case I couldn't do my work. I suggest that to you as well as it was good advice get your ducks all in a row and have a back up plan. All of us on here will give you as much support as we possibly can, and yes it is the great unknown and scary but we are here to help. anne