Life after olysio and sovaldi treatment

[rubysky]

I am very perplexed.  I finished 12 wks of the combo sovàldi and olysio with undetectable still at 12 wks.  However, since stopping I am weak as a newborn, ache all over and cant do anything.  Thinking is even difficult. From what others say I should feel good.  Any ideas? Anyone?  

[TexasLisa]

I am G3a and on 6 month tx of Sovaldi and Riba. This I've been on Hep mag forum throughout my tx. I'm on 800 mg daily of the Ribavirin and have 7 days left. I decided it was time to research the "after tx" life. Now I'm depressed because there's only 1 positive post! So, my question is, is the Olysium (sp?) different, older than the Sovaldi that I'm on? I'm looking for hope my fellow dragon slayers, hope that Sovaldi is newer and that I will recover and feel better after tx, not worse as most of these posts are saying.
My heart goes out to all of you suffering though and I appreciate any response.
LisaBlue

[Dolfin77]

Rubysky,
I feel exactly the same. In fact, I have been searching the web for 4 months to find out if anyone else felt like their doctors were treating them like herding cattle rather than patients. Perhaps Sovaldi is a miracle drug, but the way it is being administered has reduced the level of medical care to rock bottom.

[cakes8267]

Just wondering how the itching is feeling and did you stay on the Harvoni.  Sounds like the side effects are doing a big number on you.   Have to wonder if you are allergic to something in the drug.

[flyinlynn]

Hi cakes

Quick rundown
GT 1a diagnosed 1990
Probably got hep c 1979
3 time null responder to interferon based treatments
Cirrhosis diagnosed Jan 2008
Treated Sovaldi / Olysio March 2014 to June 2014
Relapsed determined at 12 week post treatment viral load test Sept 2014
Started Harvoni Nov 18th 2014 for 24 weeks
Asked doctor about adding Ribavirin doctor said ok waiting for express scripts to approve.
Will be done with Harvoni May 4th and tested for SVR late July 2015.

No noticeable sides from Harvoni maybe an occasional mild headache. Same for Sovaldi Olysio no noticeable side effects.

Best to all

[McGirl555]

I'm not happy that so many are having such a hard time, but I am glad that you all are posting. I got Harvoni and started on the 26th of this month. I had to stop after two days. The itching was unbearable. I've been off for two days and this morning I woke up with a headache so painful that I couldn't open my eyes. It hurt that much. I went back to bed and slept until after it got dark.

I truly think the sides are under reported. I don't think they really know enough yet. I'm worried I won't be able to work. I have only myself. I can't miss a single paycheck and if I turn down a freelance gig, the offers will stop. I have students who started two weeks ago. Two of them have 50 hours each and usually take classes together. They have 4 hours per week. and the other has 22 hours, she has 2 hours per week. If I had such incredible sides after two days, I wonder... I also think it causes flare ups of autoimmune diseases.

I'm wondering if I should wait until they finish, and not take students for 3 months. If you pull out on a student, they take it personally and the school is almost unforgivable.

I really don't know what to do. I can try to talk to my doctor and explain and hopefully I can still get month 2 and 3 of Harvoni.

[cakes8267]

thanks, that clears up my questions.  Were you on this drug and now taking Harvoni?  Or anyone else for that matter.