Life after olysio and sovaldi treatment

[rubysky]

I am very perplexed.  I finished 12 wks of the combo sovàldi and olysio with undetectable still at 12 wks.  However, since stopping I am weak as a newborn, ache all over and cant do anything.  Thinking is even difficult. From what others say I should feel good.  Any ideas? Anyone?  

[dmzabo]

First off good luck to each and every one of you! My question is this. Has anyone had these butt-kicking headaches after their treatment is finished? I finished my Olysio/Sovaldi combo on Oct 18th 2014. And on night in mid-November this migraine hit me and has been off and on since. I've heard of the headaches during treatment but that wasn't when I experienced them bad-boys. Funny or not so funny that is the doctor said to me after 8 weeks so tell me about "the Headaches" ? I said I have had zero. Man I sure wish that was still the case. I'm going to ask my PCP for a MRI just to rule out the scary stuff and you all know what letter I'm talking about it rhymes with "P". I don't want to even say it. Childish maybe but that word has scared many a man/women. So hopefully that test turns out zero but these headaches are driving me nuts! What say any of you on this subject. Please anything will help me not worry so damn much. And thank you and Merry Christmas and have a Happy New Year!!!

[skewedToTheLeft]

I had to stop S/O at 6 weeks due to frequent heart flutters. At day 18, my VL was < 15 but detected and UND at 4 weeks (It was probably UND at 3 weeks but I did not test then. EOT + 3 weeks and 1 day I was still UND. The frequency of my heart flutters have dissipated but not stopped and I have this near constant slight pain around the heart area that I never had before.

The chemical half-life of these drugs is relatively short, but the actual clearance and any associated damage caused by them may take as long as a year or more. Of course, the latter is just my opinion but the fact is NOBODY really knows--certainly not the gastroenterologist or hepatologist or even the research scientist that developed these drugs. These drugs simply block biological processes that trillions of cells, bacteria, viruses, etc use including the heart, brain, kidneys, etc.

[Dee1956]

I am sorry you are going through this, unfortunately the doctors all act as if we are cured, there are no symptoms after finishing tx.  In fact many do not want to even see most patients afterwards.
Everyone is different, some will have no problems others it takes time.
Doing some form of exercise helps.  I believe that our body gets depleted of vital nutrients while on tx so we should supplemen.  Checking with doctors first of course.
Continuing to drink water also helps.

I pray that everyone will recover, take care, Dee

[linuxangel66]

I am new here and I am glad I saw this. I am 5 days off treatment today. I was scared and thought it was just me. I have been UD since week 4 and my blood work has been perfect. But the day after I took the last pills I felt like if I ate I would throw up. I am so weak and so tired. I am irritable at everyone and everything. I can barely stay up to do anything even watching TV is a tiring task. I have called the pharmacy and my docs and they all said there must be something else going on because ending treatment does not do this to anyone. Yet here you all are saying otherwise. What in the world is going on with us? You are not alone. They acted like I am crazy. I know I should feel great like I did when taking the meds.

[major_101]

Hi all post tx, I'm posting this since approval of patent July 2014 http://www.pat2pdf.org/patents/pat20090042822.pdf   reply: for more info, It will only get better!

[jerialice]

hello y'all I have not been on in a while, i spent the entire year gearing up for insurance and treatment with S&O. My doc was the lead guy on the trials and so i was able to get started in may. i am 2x relapser from the old days and was ready to do it again.

i found out i was 1B and stage 1/ 6/18 inflammation. So i started may 21.
i must say compared to the I/R this was a walk in the park, and i went UND at week 2.5. I was UND at EOT and FU4. My next test in on NOV 6th which is FU12 and will be considered cured as long as i am still UND.

This was some good stuff. i did have some major insomnia and ate like a horse the entire time. i could feel the virus leaving! yay. In general i had good health aside from some left over weirdness from the I/R tx (which i did twice for 72 weeks). But none of that flared up any worse.

It is weird tho, I too felt better on tx. I wonder what's in those pills that causes that? Also like some of you i feel off in the brain dept. not sure what the deal is with that? it's kinda of like it's moving slow and i am having some trouble typing. it's been less that 2 months tho so i am giving my self some time. one great thing is i am feeling like sleeping again!! i missed that all summer. i did not have the light problem, but the heat was killer.

so just thought i'd chime in and say hi, since i've been off the board. i found some groups on facebook and that was more immediate so i've been there a lot.

hi to all my old friends here! <3