Low platelet count - how low would make you worry

[hepcandme]

I recently had 2 surgeries - my platelet count the first time was 70 (early December) . This last time, a week ago, it was 59

During both procedures, my surgeon gave me platelets intravenously during the surgery so clearly she was concerned with the low number. I always think of normal as around 140 but is 59 Too low? Below 50?

Have people monitored platelet levels exclusively while on treatment? How do you tell if they are dropping? Do you feel or have symptoms of anemia?

I'm done with the surgeries, btw
Thank you to everyone for their support and thoughts

[michniak]

as soon as you can provide a reputable verifiable health professional that said it didn't ;)  they can delete the post, doesn't matter, wouldn't' be the first time... my story is everywhere.. it's been reported to the FDA.  don't understand why everyone wants to defend the medicine... at the time my Mom was sick I was looking for answers everywhere and anywhere, I would have loved to come across a post from someone's experience... just trying to help.... perhaps some out out there is having the same experience... it would be a crime to not put all stories out there.

[flyinlynn]

Just got my 11 week test results oh Garvoni and week 2 on Riba.

I have the expected decrease in hemoglobin from  the Riba and am now slightly anemic but woo whooooo! My platelets have increased to almost normal levels 143!!!!! That is the first time I had seen anything over 90 in at least 5 years this Harvoni aka Sovaldi ledipasvir is a miracle !

[JimmyMose]

Sorry your mom passed away.  FYI posting of email addresses is not allowed in the forum and is auto bloocked.  In my opinion this reply comment it not appropriate for this question.  You should post a new question but refrain from drawing an absolute factual conclusion that her death was caused by Sovaldi/Olysio unless you can provide a reputable varifiable heath professional link stating that.  It will be up to MH moderator if your post will be allowed here.

[michniak]

or forgot to mention, she was bleeding everywhere... through her nose and mouth, still doctors could find nothing.  she was bleeding in her eyes.  If I didn't want to die from the pain of her loss and from the pain of remembering how she suffered after taking that damn drug, I would sue but I can't, cause I'd surely die if I'd had to relive this for the next few years in courts.  Hopefully he will get his when he meets his maker.  God bless.

[michniak]

hate to go here, but I will.  My Mom passed in October, from a blood condition that we believed was caused by Solvadi / Olysio.  She was fine in January.  Doctor approved her treatment to go on Solvadi, not sure why, yada yada.  She started treatment in April, in June she was very ill.  We had gone to the doctor over and over and noone could find anything.  By July she collapsed and was admitted to the hospital with what turned out to be blood viscosity, very low platlet count.  Test after test, scan, X-ray nothing could present as to what was causing this and what caused this demise. All factors pointed to Solvadi / Olysio but her hep doctor refuses to accept our findings.  She started to need bi weekly platelet transfusions.... as well as plasmaphereiss... nightmare.  In October she was hospitalized again for very low platlets... still no diagnosis as to what was causing this blood disorder, again all pointed to the beginning of when she started taking Solvadi Olysio.  On October 6th, she had a massive stroke to her brainstem.  She was awake for a little while, but fell into a coma and died one week later.

Yes a nightmare.  Yes extremely painful.  I've been kicked off hep forums over and over telling my story.  Lucinda Laporte the head nurse over on HepMag has yet to allow me back in on the forum because she refuses to hear my story and announce that Solvadi and Olysio killed our Mom.

My warning to you... please be very careful with the low platelets.  We did all we good, but we couldn't save our Mom.  Hopefully we can save others by our stories.  Hugs.  If you want to chat more, my email is ***@****.  Hugs and prayers.

[AWorriedMom]

I would ask your team whether they are concerned about your low platelets. I think ribavirin usually needs interferon to suppress the bone marrow. My personal experience was that on Peg and riba, my platelets would drop to 60,000. But in the abbVie trial, they never went below 120,000. You may be worrying unnecessarily. I hope so.