Aa
New Fibroscan
I just got back from LA where I had my second fibroscan. Both were done by HR. The first scan, done six months ago, showed an average of 11.5 kpascal for a high F3 fibrosis staging. A week later I started doing HepTech products. Six months later, today's fibroscan showed an average of 8.7 kpascal for a F2-F3 staging. Pretty decent drop in six months.
I am geno 1a, infected 35 years ago. Six years ago a biopsy also showed high F3, followed by a failed course of SOC. After failed tx I had a VL of 7 million, high enzymes, chronic fatigue and a destroyed immune system. Now I have great energy, low VL and normal enzymes and decreasing fibrosis. I am very happy that my way is clear: keep doing the same things and look for more reduction of fibrosis.
My protocol is 4.5 mg low dose naltrexone, Zhang herbs and HepTech products. Based on my readings, I will not change my protocol and will re-scan in another six months. At that time I hope to see another drop in fibrosis
Next week I will also do labs to check enzymes and viral load. My last labs showed a VL of 58 thousand and normal enzymes. I am hoping for close to the same results this time. I will post the lab results when I get them.
Not a cure, but I believe I am turning back the clock on my liver's lifeline. Severe side effects derailed my first tx attempts after 12 weeks. Accordingly I believe that another course of tx would have the same results. So I, like many hep c patients, needed an alternative strategy to forestall what looked like the inevitable. I'm happy to be making progress and, at the same time, to have great quality of life.
I am geno 1a, infected 35 years ago. Six years ago a biopsy also showed high F3, followed by a failed course of SOC. After failed tx I had a VL of 7 million, high enzymes, chronic fatigue and a destroyed immune system. Now I have great energy, low VL and normal enzymes and decreasing fibrosis. I am very happy that my way is clear: keep doing the same things and look for more reduction of fibrosis.
My protocol is 4.5 mg low dose naltrexone, Zhang herbs and HepTech products. Based on my readings, I will not change my protocol and will re-scan in another six months. At that time I hope to see another drop in fibrosis
Next week I will also do labs to check enzymes and viral load. My last labs showed a VL of 58 thousand and normal enzymes. I am hoping for close to the same results this time. I will post the lab results when I get them.
Not a cure, but I believe I am turning back the clock on my liver's lifeline. Severe side effects derailed my first tx attempts after 12 weeks. Accordingly I believe that another course of tx would have the same results. So I, like many hep c patients, needed an alternative strategy to forestall what looked like the inevitable. I'm happy to be making progress and, at the same time, to have great quality of life.
Likewise my dear, over and over. And I posted in response to Mhudnall. Not too hard to figure that one out.
Mhudnall:
"Trinity - you are F3-F4. So fibroscan unquestionably would be predictive for you. But you would rather rely on your protocol of bad diet/bad attitude with a biopsy every five years. You prioritize your money over your health, and that's your call. But it is far from prudent or smart, IMHO. You are waiting for the new tx - but the further you go into cirrhosis, the less your chances of success.
Why should anyone take your advice?"
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What if those read your advice, take the supplements you recommend and still end up cirrhotic anyway? What do they do then? Continue to take your advice? Can you claim with absolute certainty they wont? Nope, you can't and never will be able to. "
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I never mentioned my diet, my protocol, my lifestyle or gave any advice but mhudnall has me pissing away my money, eating badly and moving right into to cirrhosis. My answers followed his accusations so you may want to a little more thoroughly.
Why don't you just let it go Trish. Everyone else has.
Trinity
"Trinity - you are F3-F4. So fibroscan unquestionably would be predictive for you. But you would rather rely on your protocol of bad diet/bad attitude with a biopsy every five years. You prioritize your money over your health, and that's your call. But it is far from prudent or smart, IMHO. You are waiting for the new tx - but the further you go into cirrhosis, the less your chances of success.
Why should anyone take your advice?"
________________________________________________________________________
What if those read your advice, take the supplements you recommend and still end up cirrhotic anyway? What do they do then? Continue to take your advice? Can you claim with absolute certainty they wont? Nope, you can't and never will be able to. "
_______________________________________________________________________
I never mentioned my diet, my protocol, my lifestyle or gave any advice but mhudnall has me pissing away my money, eating badly and moving right into to cirrhosis. My answers followed his accusations so you may want to a little more thoroughly.
Why don't you just let it go Trish. Everyone else has.
Trinity
People post here all the time about what they're taking for treatment drugs as well. We all post our protocol and the results in the hopes that it will help someone else or that perhaps there is something to be learned by sharing and taking in feedback from the collective wisdom and experience here. Should we all stop posting whether we took Alinia and whether we double-dosed interferon on a 2nd go round on treatment or whether we're doing a lead-in with ribavirin? Are we responsible for the outcome for someone else if we post our own treatment protocol? How is that any different than someone who CANNOT treat posting what their supplement regimen is?
I don't see Mhudnall telling people they should do as he does. He's simply posting his protocol. For folks who can't treat, they should be able to share what they're doing to inhibit fibrosis and keep things under control. For folks who are WAITING to treat until the new PI's come out, they might benefit if people share what is working for them so that they can decide for themselves if they want to try it and see if it works for them.
If someone posts they used Alinia and they made it to SVR, does it fall on their head if someone else uses Alinia and treatment does not work for them?
We all share information here and should be able to in our respective situations and it helps who it helps. Not every thread or post helps or helped me but a number do and did. I sure would have hated it if someone else got to decide what I should be reading. Once more, I'll say it again .... it's coming through loud and clear that we're all adults here and we want to be able to read all the information and decide for ourselves rather than have other folks on the forum censor it for us. Nobody here appointed anyone else to do our thinking for us so you can safely step back and simply post information, post feedback when asked if you want to and we'll do our own thinking.
I don't see Mhudnall telling people they should do as he does. He's simply posting his protocol. For folks who can't treat, they should be able to share what they're doing to inhibit fibrosis and keep things under control. For folks who are WAITING to treat until the new PI's come out, they might benefit if people share what is working for them so that they can decide for themselves if they want to try it and see if it works for them.
If someone posts they used Alinia and they made it to SVR, does it fall on their head if someone else uses Alinia and treatment does not work for them?
We all share information here and should be able to in our respective situations and it helps who it helps. Not every thread or post helps or helped me but a number do and did. I sure would have hated it if someone else got to decide what I should be reading. Once more, I'll say it again .... it's coming through loud and clear that we're all adults here and we want to be able to read all the information and decide for ourselves rather than have other folks on the forum censor it for us. Nobody here appointed anyone else to do our thinking for us so you can safely step back and simply post information, post feedback when asked if you want to and we'll do our own thinking.
I'll likely comment no more further in an effort to save the thread as well.
.....but first...... a story, a pretty much true story, but I'll change the names a little and I may have the story a little bit incorrect, but the jist is correct.
Quite a few years back there was a local football coach...... I'll call him Hayden Fox and not use his real name. He was a character, an excellent coach and IMHO, a great and wise human being as well.
One Saturday during the football game he kept the first string QB on the bench, Something had gone on in the last game or the past week and Hayden was going to let the boy sit and think about it.
First quarter.... bench.
Second quarter..... bench.
third quarter....and everyone is starting to ask themselves; what is going on? It's late in the season, the team needs the star quarterback and almost everybody wants the kid in the game.
Everybody it seems...... but Hayden.
Third quarter...... bench.
Finally....in the 4th quarter....Hayden signals the kid to go in. : )
But now....the QB says no. He folds his arms and watches the game end from the bench.
There was a hell of an uproar about that. I don't even remember who won or lost the game. The issue became about the QB disrespecting the Coach and refusing to go into the game.
I think that it may have been the Monday morning press conference when the issue was finally addressed. One of the first, if not the first questions was to Hayden about whether he would discipline the kids, sideline him, kick him from the team.
Hayden laughed.
He said something to the effect that quarterbacks are kind of like race horses; spirited, headstrong and they live for their sport.
He said of the quarterbacks actions; The kid wanted to play so bad that in the first 3 quarters that he just got it in his head that he'd show me.
(Hayden laughing )"If he (the quarterback) didn't care, I wouldn't *want* him."
To the best of my recollection, the season continued relatively smoothly.
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I bring this up as a means of explaining the strength of peoples conviction. I believe that people believe in what they are doing, that a lot of it is based on them caring. I only ask...... understand that the people on the other side of the equation also care and believe.
Anyway..... enough said. Maybe it doesn't apply to this situation, but if nothing else, it's a good story that happens to be true.
best,
Willy
.....but first...... a story, a pretty much true story, but I'll change the names a little and I may have the story a little bit incorrect, but the jist is correct.
Quite a few years back there was a local football coach...... I'll call him Hayden Fox and not use his real name. He was a character, an excellent coach and IMHO, a great and wise human being as well.
One Saturday during the football game he kept the first string QB on the bench, Something had gone on in the last game or the past week and Hayden was going to let the boy sit and think about it.
First quarter.... bench.
Second quarter..... bench.
third quarter....and everyone is starting to ask themselves; what is going on? It's late in the season, the team needs the star quarterback and almost everybody wants the kid in the game.
Everybody it seems...... but Hayden.
Third quarter...... bench.
Finally....in the 4th quarter....Hayden signals the kid to go in. : )
But now....the QB says no. He folds his arms and watches the game end from the bench.
There was a hell of an uproar about that. I don't even remember who won or lost the game. The issue became about the QB disrespecting the Coach and refusing to go into the game.
I think that it may have been the Monday morning press conference when the issue was finally addressed. One of the first, if not the first questions was to Hayden about whether he would discipline the kids, sideline him, kick him from the team.
Hayden laughed.
He said something to the effect that quarterbacks are kind of like race horses; spirited, headstrong and they live for their sport.
He said of the quarterbacks actions; The kid wanted to play so bad that in the first 3 quarters that he just got it in his head that he'd show me.
(Hayden laughing )"If he (the quarterback) didn't care, I wouldn't *want* him."
To the best of my recollection, the season continued relatively smoothly.
----------------------------------------------------------
I bring this up as a means of explaining the strength of peoples conviction. I believe that people believe in what they are doing, that a lot of it is based on them caring. I only ask...... understand that the people on the other side of the equation also care and believe.
Anyway..... enough said. Maybe it doesn't apply to this situation, but if nothing else, it's a good story that happens to be true.
best,
Willy
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