Hi there,
Yeah, the manufacturers of both HCV meds do provide patient assistance for uninsured; they used to cover underinsured as well; be sure to call them if you have trouble with costs. They don’t always state up front the scope of their coverage:
Pegassist (Genentech Pegasys system): 888-941-3331
Commitment to Care (Merck PEG-Intron system): 866-363-6379, opt 1
The meds alone are roughly $USD 2200/month for interferon/ribavirin; other drugs such as Procrit, Neupogen, etc can be considerably more expensive, if needed.
I didn’t work during treatment, but I’m guessing about two thirds do; it depends largely on your type of work, etc. Physical outdoor labor type occupations might be tough, especially during the summer months if it gets hot. Some do though; it really varies from patient to patient.
I’d be cautious about disclosing anything yet, to family, friends or work. As you get a little closer to dealing with all this, and a bit better informed, you might change your mind. There’s still considerable stigma attached to the disease, depending on your lifestyle and the folks that are around you. Like toothpaste, once out of the tube, it’s nest to impossible to put back.
Some folks tell their HR department they’re dealing with a blood disease or chemo, intentionally keeping things vague. I’ve heard some pretty sad stories over the years about people getting harassed at work, etc. Personally, I never felt stigmatized by anyone; and I told kids, ex wife, pretty much anyone that listened, hehehe :o).
Talk to the folks in here if you like; most of them understand what you’re going through; folks at work will likely be clueless, and sometimes less than empathetic.
I’m unaware of any comprehensive books on HCV; there are bits and pieces scattered around though. Here’s a link to a site that might be useful:
http://hepatitiscnewdrugs.blogspot.com/
Scroll down a bit, and you’ll see a long list of line items in the right hand margin that discusses topics like biopsy, viral load, genotypes, etc.
Another good resource page can be found on this forum page in the lower right margin in a box titled ‘most viewed health pages’:
http://www.medhelp.org/health_pages/Hepatitis/Common-Hepatitis-C-Acronyms/show/3?cid=64
You might want to print this for future reference; it’ll help with the abbreviations and acronyms used so freely in here.
Take care, and good luck,
--Bill