Aa
On OFF LABEL Sovaldi and Olysio!
In my 3rd week now and feeling really strong. Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful! My 2 week labs came in today and ALL of them are in normal range... including AST and ALT. Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment. I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!
I will keep you all posted.
Hugs and God Bless!
Thanks so, so much for this thread! I have learned sooo much! I need to come back tomorrow and read all of it!
I got Sovaldi Olysio on appeal and I have Medicare Part D. Medi/Medi...What I want to know is if anyone has had a platelet loss or other blood count loss on these miracle pills! I am 58 female. This is my story (a bit of it) I got such great results today, but I'm wondering if any of you got lowered platelet counts mine went from normal to *128...Normal is (150 to 450)
I'm wondering if any of you got lowered platelet counts and/ or blood counts, doctor said that some people on this Sovaldi/Olysio therapy can get some of these counts a little lowered. I want to thank everybody here for all their knowledge and expertise. And I hope you all SVR and quit feeling tired. Tiredness is about the only real side I have experienced, and I'm only nearing my second week. Hi,Medicare and Medical, and when I first applied, I was denied.
But I found out who the appeal board was (there is always an appeal board) and I asked them if I could write my own letter to go along with their appeal, they said yes. I write a good letter. In the meantime, I went to Sovaldi themselves and they said that I qualified for their patient care program so they would be giving it to me for a very small co-pay. Then my appeal came through! So, of course, Sovaldi backed out and said let your drug insurance program pay for it. (Duh) I knew they'd do that. So now I'm not even on my second week (that will be this Wednesday) and for the past 12 years my Liver Function tests have always been hovering around the high 30, 40, 50s. Today I got a test (I won't be getting my viral load test for another few weeks) and my Liver Function Tests are 17 and 18!!!!! I'm over the moon!!!!! I hope this helps. These new drugs are miracle workers!
I got Sovaldi Olysio on appeal and I have Medicare Part D. Medi/Medi...What I want to know is if anyone has had a platelet loss or other blood count loss on these miracle pills! I am 58 female. This is my story (a bit of it) I got such great results today, but I'm wondering if any of you got lowered platelet counts mine went from normal to *128...Normal is (150 to 450)
I'm wondering if any of you got lowered platelet counts and/ or blood counts, doctor said that some people on this Sovaldi/Olysio therapy can get some of these counts a little lowered. I want to thank everybody here for all their knowledge and expertise. And I hope you all SVR and quit feeling tired. Tiredness is about the only real side I have experienced, and I'm only nearing my second week. Hi,Medicare and Medical, and when I first applied, I was denied.
But I found out who the appeal board was (there is always an appeal board) and I asked them if I could write my own letter to go along with their appeal, they said yes. I write a good letter. In the meantime, I went to Sovaldi themselves and they said that I qualified for their patient care program so they would be giving it to me for a very small co-pay. Then my appeal came through! So, of course, Sovaldi backed out and said let your drug insurance program pay for it. (Duh) I knew they'd do that. So now I'm not even on my second week (that will be this Wednesday) and for the past 12 years my Liver Function tests have always been hovering around the high 30, 40, 50s. Today I got a test (I won't be getting my viral load test for another few weeks) and my Liver Function Tests are 17 and 18!!!!! I'm over the moon!!!!! I hope this helps. These new drugs are miracle workers!
I believe Sovaldi + Olysio + Ribavirin is the consensus Tx for people with geno 1a, which is supposedly harder to treat than 1b.
You have to understand that it's hard for hep-MDs to give up prescribing INF/RBV because for a long time they've been getting big money in consultation fees, and for running trials, from the companies that manufacture them .
M.
You have to understand that it's hard for hep-MDs to give up prescribing INF/RBV because for a long time they've been getting big money in consultation fees, and for running trials, from the companies that manufacture them .
M.
We don't have that kind of pharmacy here in rural Alaska. My drugs have to be ordered from a pharmacy in Juneau who in turn, gets them from Seattle. Then they are flown from Seattle to Juneau then by small plane to me! But I am applying for PAN today! Thank you!
Think positive - these are wonder drugs from what I've read. I'm sure you will reach undetectable!
I've also had the virus for 44 years - from blood transfusions in 1969.
I am in the beginning stages of cirrhosis according to a Fibroscan radio wave test I took a few months ago (which eliminated another liver biopsy).
It's amazing how you and some of the other people under treatment can actually feel that the virus is gone or almost gone. That's wonderful.
Keep us posted on your next VL!!!
I've also had the virus for 44 years - from blood transfusions in 1969.
I am in the beginning stages of cirrhosis according to a Fibroscan radio wave test I took a few months ago (which eliminated another liver biopsy).
It's amazing how you and some of the other people under treatment can actually feel that the virus is gone or almost gone. That's wonderful.
Keep us posted on your next VL!!!
Hi,
I'm on week four of Sovaldi and Olysioand feeling over-all OK. I wake up sometimes with a kind of hangover feeling which mostly passes during the day. I can tell I am taking some powerful drugs but the sides are minimal. I've upped my melatonin to 21 mg and I sleep OK. I also take a nap every day for twenty-forty minutes. Otherwise life is business as usual.
My two week liver AST and ALT were in the normal range (43 and 37) for the first time since the 70s. I'm hoping to be undetected when I go for the four week VL test this Friday.
I can tell the virus is gone or mostly gone. The cellular-level fatigue I have had for years is gone.
I've had cirrhosis for 7-10 years, the virus for around 43 years, and a starting viral load of 7.8 million. I'm GT 1B.
I'm nervous about the upcoming VL. I want it to be undetectable!
I'm on week four of Sovaldi and Olysioand feeling over-all OK. I wake up sometimes with a kind of hangover feeling which mostly passes during the day. I can tell I am taking some powerful drugs but the sides are minimal. I've upped my melatonin to 21 mg and I sleep OK. I also take a nap every day for twenty-forty minutes. Otherwise life is business as usual.
My two week liver AST and ALT were in the normal range (43 and 37) for the first time since the 70s. I'm hoping to be undetected when I go for the four week VL test this Friday.
I can tell the virus is gone or mostly gone. The cellular-level fatigue I have had for years is gone.
I've had cirrhosis for 7-10 years, the virus for around 43 years, and a starting viral load of 7.8 million. I'm GT 1B.
I'm nervous about the upcoming VL. I want it to be undetectable!
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