Am Swedish American, my kids are half Indonesian. I love it there, especially the food and the massages. Miss all my friends. One of my sons will be going next months for 8 months. Lucky him. Don't think I'll make it there this year, as I hope to start tx.
"I found the Redipen a bit of a pain, it failed to mix correctly on 4 occasions."
I agree Moahunter totally it happened to me too and a few times it jammed on me too!
I had no problem using the tablet version where you drop the tablet into the vial and then use the syringe to pull it all up. It didn't have to be refrigerated at all (and I liked it better because I felt as if I was getting every single drop unlike the redipens).
I simply can't understand why someone who needs to travel so far isn't given the consideration of offering them this type system. It was easier, better and I never worried about storage at all. They came in a box with no ice or anything...........it gave me great peace of mind - even if the power went out at home I just didn't have to worry.
"I found the Redipen a bit of a pain, it failed to mix correctly on 4 occasions."
I agree Moahunter totally it happened to me too and a few times it jammed on me too!
I had no problem using the tablet version where you drop the tablet into the vial and then use the syringe to pull it all up. It didn't have to be refrigerated at all (and I liked it better because I felt as if I was getting every single drop unlike the redipens).
I simply can't understand why someone who needs to travel so far isn't given the consideration of offering them this type system. It was easier, better and I never worried about storage at all. They came in a box with no ice or anything...........it gave me great peace of mind - even if the power went out at home I just didn't have to worry.
I am on PegIntron and was told that the refrigeration requirement was due to the FDA not being comfortable with the rubber stopper in the mixing device. The pen was designed so that refrigeration would not be necessary. Since the FDA is a govt agency, I suspect politics had a role in the decision. After 67 doses I have never had a problem with the device mixing improperly.
Well if youre feeling homesick you could always come to Jakarta hehe ... r u Indonesian?
You make me jealous and home sick. I lived in JKT for 20 years and still have my houses there. (in Witana Harja Country Estate in Pamulang)
I really hope your meds didn't spoil. All the best, Marcia
I know that there is literature published that indicates that Pagasys (not quite the same thing as Peg Intron) is OK for more than 24 hours at room temperature. For what it's worth. :)
Thnx for the details for the jakarta branch....they are having lunch hehe ....so ill call back later
anyways i called the singapore branch and told them bout my problem....and they said it should be OK for the device to be stored at room temperature for like 24 hours...they said its no problem ;) .......anyways ill confirm this with Schering-Plough indonesia later
and about the side effects they said i should ask my doctor
Are you in Jakarta? Maybe you can drive over to the Indonesia headquarters and ask them personally :o)
From: http://www.schering-plough.com/schering_plough/about/sp_worldwide.jsp
Indonesia
P.T. Schering-Plough Indonesia
Mayapada Tower, 10th Floor
Jl. Jend. Sudirman Kav. 28
Jakarta 12920
Indonesia
Telephone: (62) (21) 522 5452
Although it might be more reasonable to simply ask a local doctor.
In any event, take good care, and best wishes with your treatment outcome—
Bill
Peg-Intron Redipen is expensive and i think its pretty sad that the storage instruction is only limited to "should be stored at 2° to 8°C and do not freeze" ... they never state what will happen if the storage requirements are not met ( ive tried search engines to no avail )and how do we know that the device is still functioning? maybe like the discoloration of the powder?
well...can anybody give me the Schering-Plough email? ... i really would like to email them .... i tried to find their email but i cant seem to find it .... only got phone numbers from their web site
i live in indonesia btw ;)
thansk, my peg got warm for 4 hrs when the fridge got open..maybe I better call.
I always wondered why it needs to be refrigerated, given that it is in power, and water form, before mixing. I guess the powerder could go off, but I don't know.
I found the Redipen a bit of a pain, it failed to mix correctly on 4 occasions. I finally, just resorted to the alternative, of mixing myself, which seemed to work ok.
Using side effects for measuring the potency of interferon is a poor idea. I have no idea what conditions the meds were exposed to; and to my knowledge, there is no way to “field test” the proteins to see if they have annealed to heat. It’s possible in extreme environments, apparently.
I would think they would remain viable for 10 hours at 15˚ C, but I’m not a doctor or pharmacist.
You didn’t mention what country you currently call home; however, you can try to call Schering-Plough pharmaceuticals at their toll-free number:
Commitment to Care (Schering- Plough PEG-Intron system): 1-800-521-7157
However, they might not allow overseas calls to this number. You might also e-mail Schering-Plough and ask for their medical liaison office; they might be able to anwer your questions with authority.
Sorry to hear of your relapse; I’m in my second treatment as well.
Take care, and let us know what they say—
Bill