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1211850 tn?1266938568

Post Hep C Treatment Issues

I am on week 20 of treatment.  I have not felt as bad as almost ALL I've seen on this site.  I work out every morning for an hour and a half and then go to work, at least three times a week I come home and walk on the treadmill while I watch the news.  I don't feel like I can leap tall buildings in a single bound, but I am not completely unable to function and my life has pretty much been uninterupted.  I am miserable though, I want my life back.  Question is this, my biggesst concern is what I've been reading about POST Hep C treatment.  My thoughts were that I was going to do this horrible stuff for a year and beat HEP C and pick up my life where I left off.  From what I am reading, that is not the case.  I have no faith in my doctors, I believe they are all liars and I have no faith whatsoever in the drug manufactuers, I KNOW they are all liars.  I need feedback from people like us who have taken this horrible stuff, I need to know what I am going to be looking at after I am done with this stuff so I can make an informed decision on whether I want to continue.  From what I understand, even after a year of this stuff, I have no guarantee that I'll be cured.
25 Responses
Avatar universal
Glad to hear the side effects have been minimal so far but there is still 28 weeks left to do if you are going 48 weeks. Some do not get hit hard when starting and it seems that your one of the lucky ones. If you should go through the rest of treatment with minimal sides who is to say you will have any post side effects when you finish. Luck of the draw I guess.

jep
1211850 tn?1266938568
I honestly believe that it isn't so bad for me because I exercise an hour and a half a day or more.  I am miserable, though.  Some days I don't know what end is up, but I refuse to let it beat me, I think that you've got two choices, it beats you or you beat it.  I am choosing the latter.  I am afraid though that they don't know enough or aren't telling you what will happen AFTER a year of these meds.  I want to know.  I don't want to trade Hep C for heart problems, cancer or god forbid feeling worse than I did before I started Treatments.  I am afraid, very afraid.  Need some positive feed back from those who have gone the distance and are HEP C free, I need to know it will be worth it to continue.
Avatar universal
I did the tx for 23 wks.I started feeling better in a few wks. I stopped mid Dec 09. Now I feel normal again. I feel like I never had tx. Maybe you will be as lucky. There is hope.
Good Luck
1211850 tn?1266938568
Why only 23 weeks?  
87972 tn?1322664839
Hi Ms Butterfly,

Welcome to the discussion group. I’m glad to hear you’re not getting slammed with side effects so far; hopefully, this trend will continue throughout your treatment, and you’ll be able to put this behind you soon.

A quick history; I was diagnosed in 2004 with genotype 1 with stage 3-4 fibrosis. The doc felt I was probably transitional to cirrhosis; I had hepatosplenomegaly on ultrasound.

I treated with Pegasys the first time, but relapsed shortly after treatment; I hadn’t cleared until week twenty, so this was somewhat expected.

I treated again in 2006 with Pegintron; this time, I used 2000mg/day riba, and squeezed the vial to get >200µg/week interferon. I also treated for 96 consecutive weeks; this time I was successful, thank goodness. I’ve been off treatment now since August ’08, and am now SVR.

I didn’t get overly ill during Tx; my blood values were reasonably good, and never required Procrit or Neupogen.

Like you, I was tolerant of exercise; I managed to walk vigorously here every day for the first 12-14 months during my second treatment; after that, some moderate depression set in, concentration became difficult, and I slowed down. I was taking classes at the local community college too; I stopped classes towards the end as well.

Unlike many reported experiences here, I felt physically good within two or three weeks post treatment; although I did experience some significant depression. I had used Lexapro throughout treatment, and stopped at the same time as treatment was completed; this might have been premature, and contributed to my post treatment depression.

Now, nearly 1.5 years afterwards, everything is back to normal, as far as I can tell. I have type 2 diabetes; this actually is better in terms of management; I no longer require insulin, although I still take oral anti-diabetic pills.  My eyesight has improved; I was 20/40 throughout Tx; last week, the ophthalmologist said my eyesight is 20/30. Possibly due to better blood sugar management?

All in all, I have absolutely no regrets looking back; if for some reason I had to repeat the experience, I’d to it again; grudgingly, but yes, I’d do it again :o).

I sincerely hope you sail through this, and move on with your life. I applaud you for a positive attitude, and your ability to continue your fitness regime.

Take good care; and good luck

Bill
1211850 tn?1266938568
Bill, thanks, that is encouraging, especially since I have NO LIVER DAMAGE.  Dr. gave me a pretty positive feeling that my liver is in fantastic shape, which makes me believe i'll beat this thing after the 48 weeks.  Gonna keep hanging in and stay on this site.  It helps to talk with people who understand what I am going through.  My husband has been great, but he has no idea how it really feels.
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