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1711722 tn?1356491154

Post Tx Depression - Thread within a Thread

Hey there,

There is a good discussion going on but also an overlapping thread within that thread (http://www.medhelp.org/posts/Hepatitis-C/Post-tx-side-effects/show/1774184 ) So how about we address points in a new thread so more of the forum can help?  (Hope I'm not stepping on toes here)

1.  Is post treatment DEPRESSION something you are experiencing??
2.  Is post treatment HAIR LOSS something you have experienced??
3.  Has your MEMORY been affect post treatment??

Here are my answers:
1.  YES, depression and sadness are hitting me differently, post tx.  I'm glad I found the original thread because I was beginning to think I should just "snap out of it" but haven't been able to.  I'm sure we all have things other than tx to be concerned with, and are familiar with our normal responses.  This seems different for me.  I don't quite feel like me.  I know these drugs do stay in our systems at least 6 months post, so I am praying I will feel totally back to being myself soon.  It has been a struggle.

2.  YES, I noticed a significant amount of hair loss post tx or just before EOT.  My hairline clearly showed skull, which freaked me out!  But, after a couple of months I guess, it slowly started to fill in again.

3.  YES, my memory throughout tx was a hot mess.  Now, 4 months post, the brainfog has long lifted, I am superfocused, and my memory though still challenged, is getting better.  But I still have to leave myself notes and ask people I work with to put requests in email, or I might forget.

Hope this helps stir up more answers to the original thread,
Bee
23 Responses
1116669 tn?1269146866
As stated in the referred thread it's been a scary lonely weight to carry around. A paradox too: Depressed because of fear of the virus debilitating me while (and I apologize for the darkness here) wishing it was all over because i'm tired. In my case I know causes are multidimensional: neurologic, pharmacologic, hepatic, circumstantial, etc. But this C and these therapies with their reprieves and betrayals can be real "prahna" suckers. Where's all the fresh air and seratonin gone? d
163305 tn?1333672171
1.  Is post treatment DEPRESSION something you are experiencing??
Not now. I was still pretty grumpy for almost 3 months post EOT.

2.  Is post treatment HAIR LOSS something you have experienced??
Yes, I had hairloss from about the second month during tx until  about 8 weeks after. It slowly kept falling out less and less.
There was already some fine hair growing in before EOT. The hair loss slowed and now my hair is growing back.
I remember from the last time I did tx, that first baby fine hair grew in, then it was followed by my normal hair. It takes time.

3.  Has your MEMORY been affect post treatment??
Who can remember ??
Personally, having been so sick with encephalopathy and cirrhosis, going through a transplant and being on those meds, getting my energy back while hep C was still raging, and now finally off of tx a second time, how can I possibly compare where I was to where I am now?
Before cirrhosis ? That was many years ago.
Actually I think my memory is doing rather well, all things considered.
Avatar universal
My husband is 59 years old, has Cirrhosis, and has failed 3 treatments, most recently triple tx with Incivek.

1.  My husband struggled with some depression/anxiety/irritability while he was on treatment. He continues taking the same (fairly low) dose of antidepressant/antianxiety medication that he was taking while on treatment, but doesn't seem depressed or irritable now.

2.  My husband did not really have much hair loss during/after his first two treatments, but after ending triple tx treatment, he has some random spots of hair loss.

3.  On all 3 treatments, his memory was somewhat poor while on medications, but has been fine after treatments.

Advocate1955
Avatar universal
  Well, I have 3 weeks left before my 28 wk EOT with Triple Tx w/Victrelis, and I did eel some depression set in, last friday. Feeling depressed is very unusual for me, I havent had it since I was a child, so it brought back some unpleasant eelings/memories.
   My hair is falling out everywhere, but it doesn't show, because my hair was so thick prior to Tx. I think because o the healthy and organic diet I had been on prior to Tx, and I always took vitamin E, and D, and a ew others, such as folic acid, etc.
   My memory was never affected, probably due to the fact that I was only at Stage 2.  
1711722 tn?1356491154
Hi Yodennis -- I feel for you.  That is a big load to carry on your own (inside).  Be sure to let your docs know how you are feeling, so they can help.  Sounds like you might need to talk to someone, face to face, so you can exhale.  Plus, some meds can lead to the "dark side", so know that it is NOT necessarily you and see what your docs recommend.

**********
OH & Advocate -- Thanks very much for sharing your (and your husband's)experiences.  I'm sure it will help others.

Be blessed, be well,
Bee :)
1711722 tn?1356491154
Hi, our posts must have crossed paths, as I am just seeing this.  Thanks so much for posting!!  Your "f" key may be sticking.
Avatar universal
I have been on a clinical trial...Dec 22 to Mar 14.   At first it was meant to be for 6 months but I was UND at 2 weeks and they rerandomized me into stopping tx at 3 months.

HAIR LOSS started about 1 month post tx.   I had fine thin hair anyway but now I have very thin hair, especially in the front.   I am 5 months post tx.  Still UND.   Hair loss is finally slowing down.

DEPRESSION.   I am VERY depressed.   I caught a terrible case of chicken pox and I don't know if it is because I have been feeling down and fluey or if it is true depression.   Several days I could not get out of bed or got out of bed and went back around 1pm or 2pm.   I am also very anxious waiting for the 6th month test.   Every fever or ache and I think it has come back.

MEMORY:  A little better

Lynda
Avatar universal
depression:  yes.  I think it's getting a bit better now, episodes are farther apart, don't last as long and aren't as severe....I am 3 months post tx now and my depression started in week 19 (people here helped a lot)

hair loss:  that stopped one month post tx (yay)
memory:  i have some bad days and have to be gentle with myself...it's getting better though....
1491755 tn?1333204962
No to the first two, yes to the third.
Avatar universal
So what are we suppose to do for the DEPRESSION ? I couldn't imagine putting more drugs in my body. For me I'm having stomach problems. Not much foods that I can eat without feeling sick but the good news is I'm undetectable and my doctor says my liver looks good and my blood looks good.

Doctors don't seemed to be able to give us the after care we need. I guess their job is done if they cure us. Wish there was more of a support group of physician set up to help us through the after effects of treatment.
Avatar universal
Your stated so well the effects of this disease.
Avatar universal
Hi streamer,
My husband's hepatologist and her NP have been very, very good about continuing to care for my husband between treatments.  They continue to prescribe his antidepressant/antianxiety med, they continue to monitor his liver functions every 3 months, they continue to do ultrasounds on his liver every 6 months, and they see him twice a year.  Of course, his treatment didn't work, so that may be why they are monitoring him more closely.  But in addition to his liver, they monitor the depression/anxiety that having Hep C and having failed treatments cause.  In addition to the antidepressant/antianxiety med, they also continue to prescribe a sleep aid for him.  If you don't feel that you want to take medications for the depression, you may want to try, if you're not already, to eat healthy/fresh food, exercise, go for a walk daily, make sure you're getting enough rest, and make sure you have social/emotional support.  Take care!
Advocate1955
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