I too have RA symptoms, mostly at night. I like the explanation above, thank you. I'm 7 mos post tx and many people have told me recovery can take a year or more.... so Easy Does It certainly is a great slogan for this time. Drinking a lot of water seems to be still very important along with all the normal eat right, etc good health stuff. Walking is some exercise I can handle right now (I used to be an elliptical nut and will be again), so I'm happy to be SLOWLY getting better. Plus SVR makes a big big difference in my attitude....Thank you everyone and good luck Bo
Thanks, Billy. I am never going to sit on the cement stairs again, it is so true!
never ...never sit on cement....not a good idea....we learn this in construction early on....i will say i have had the post tx aches and they seem to be now getting better after a year post tx....good luck...billy
Hi Bo ,In the side effects of treatment it sounds very classic side effect,on reading the drug literature,I'm affraid after my treatment I don't wind up with arthritis but I'm still gonna do it,you will read about it in the literature if you check it.it's the interfuron,I'd bet my House on it,(if I had one).
Thanks for the reply, Mike. Today is a better day for me. I was quick to put the blame on the Interferon, the knee pain, but as Flycyclist pointed out, earlier in the thread; anyone (espesh my age, lol) could damage their knee cartalge, with a seat post too low, riding up hill on a bike!
I took a hot-tub, and then on to gentle exercise.
I have to remind myself, "easy does it". So many chores piled up during my Tx, but I need to give myself 6 months to completely recover. I can see I am over-working myself right now, and also, my hip hurts from drivingin my tiny old car too much.
I kind of had a feeling that the Tx would make my arthritis symptoms flare, but besides that, I feel great, and have a positive out-look on my life :)
So I'm a little scared right now... I hope my symptoms gradually go away. The following paragraph is something I saw in one of the threads that made sense to me and I hope it's true (for my sake):
"the inflammation that normally gets taken care off by our immune systems got a boost by having INF on board....when first put on it I had some sharp joint pains..but that subsided into utter joint happiness as my body adjusted...and the extra interferon can help with inflammation...so then when you come off it...suddenly you haven't as much INF..and your body has to get used to the old chemistry which includes making more of its own INF as well as other naturally produced antiinflammatories (steroids) to combat joint inflammation. All this takes time to dial back in, and the increase in energy makes us want to get up off the couch and take care of business again...and that adds more of a repairative load daily. So give yourself some time to adjust...most folks do readjust..it just takes a while. Some say give it 6 months...so that's what I've done. I didn't want to rush off to the rhematologist to get some dang drug that would be bad for my liver...most arthritis meds are...so give it a while before you panic...I'm no spring chicken so easing back into my former activity level seemed wisdom here."
That's all for now... hopefully we'll get better.
I can't submit my entire post, I'll break it into two parts:
I'm 11 weeks post tx and during the last few weeks I've developed RA symptoms in my shoulders, one knee, one hip, neck and lower back. What's weird about this is I've had problems with these same areas in the past, was diagnosed as having RA and managed to rid myself of these symptoms for much of the last 10 years by taking Glucosamine Chondroitin.
During tx I didn't have these symptoms and was very surprised a few weeks back when one of my shoulders started killing me during the middle of the day. Within a week I had pain in all the places I mentioned above.
I search this forum on "post tx arthritis" and many scary things popped out. Many people said they experienced the exact samething as me but the symptoms gradually went away. Other people said the symptoms didn't go away because the interferon hosed their immune systems up and they are still in pain up to 6 years after tx (and are SVR).
In addition to what Danny said, try fish oil in conjunction with C0Q10. Also the mild stretching and exercise def helps.
I don't know how many miles you're riding, the type of bike (comfort vs road) and how steep you hills are, but riding with your seat too low can certainly lead to knee pain. If possible, go to a bike shop and get some advice on setting your saddle at the proper height. Otherwise, this is likely to occur each time you hit the hills.
I'm 14 weeks post treatment,for a while I thought I had RA,my muscle and joint pains are 75% better since the last 2 weeks.Someone suggested I take tumeric supplements and vitamin D3 and its helping a lot.My vision was getting very bad also,but now it's back to where it was pre treatment.Sometimes it takes up to 6 months to a year to bounce back from treatment,give yourself time.