you really just got off tx.....i too have stuff going on but i think most folks do for a while...i'm more spaced out then on tx...have more aches although aches not too bad...if you stop drinking after you drank too much you can have sx for a while...months or years...i think maybe if we were weaned off the drugs things might be easier but we're shocked .....stoping at full dose...i wonder are you still drinking lots of water? i know i'm not..still drinking water but not that much....sometimes i think thats a problem...have you checked out your vitamin levels??? lots of stuff is most likely way off...i think ..get some blood work..also it may be too early to feel lots better anyway...at first i thought i might feel good in two weeks..no way...the itching is going away but still feel that bitting no see ums feeling for awhile every night..eyes hurt...head aches...and very tired..i think i'll be fine in 6 months...good luck....keep posting.....billy
That's terrible that you're dealing with so many issues. I believe most of your issues as far as aches and pains are fairly normal for a few weeks after tx. The mouth thing is not. You should see an ear, nose and throat specialists, I'm not saying it's serious or anything but you need a professional opinion. good luck!!
I just finished my treatment on the 22nd after 24 wks and UND at 4,8,12,18 weeks. Although it is nice to be off the drugs I still have most of the sx going on plus the aches and joint pain you are feeling with headaches, earaches and eyes too. I know it's only the first few days but I think my immune system was attacking everything under the sun including the virus so it's still in overdrive. Its wonderful to be UND but we have a ways to go. Before tx it was my right hip and now its hips, knees and back. I guess our bodies detox as well so the drugs have to exit somehow so it is a good idea to keep drinking water too.
The drugs 'exit' quickly enough..its the immune and nervous system that often does not return to its normal state...hence the 'after-effects'...not side effects. Some can last a long time, and for some, there can be permanent sx. And yes, the 'mouth and lip thing' is something that often does happen after tx. I know several people personally, and myself, that have had ongoing severe mouth lip, cheek and gum sores and erosion since ending tx. My doctor treated it with local anesthetic in liquid form, but it did no real good, and just numbed my mouth for minutes. Plus, you can't use that kind of drug for long. For those that have not read past threads on after-effects of tx....you might want to see how your experience compares to others on the forum.
Hi Doubledose: All those reasons why I won't treat. I think I will end up dying from HCV. I have read your post as so many other here. There are many very inspiring (but why o why are these drugs so damm toxic? I know that's another blog.
Gerbils - I pray you get better and yes - you are scaring the newbees (me) to death who haven't treated yet. lol.
While I am not done yet, I have had a problem with mouth lips since the 4th week, I believe that Hondapatches wrote to me that she had same. It felt like something was in my lip. I have fever blisters, cold sore on lips and in mouth/
I had thrush the last time I treated so thought this was same not sure. I am eating yogurt every day, using nystatin, drinking water, trying take a few walks every day.
I do understand that we think we will feel better however I have b een warned that I may get sick, with body's immune system on overdrive; once you stop there isn't much immune system
Hang in there you have been through the worst and are UND and will get to SVR. Last time I felt like you and thought I had exacerbated things. I went to rheumatologist who wanted me on daily meds. I decided to use motrin only on days it was really bad, within 6 months the pains were down to a dull roar, the mental took a bit longer
Thank you for writing