Post treatment side effects

[theresa13]

I completed the 48 wk riboviran/ Pegasys treatment 7months ago and I still have this brain fog, pain, and extreme fatigue! The doctor I had told me that it had nothing to do with the treatment so j stopped going to him months ago and I need to find a doctor that understands this disease and the treatment. I am so fustrated and I don't know who else to talk to I can't find any type of support groups I can go to so I figured I would try this. If anybody has had these type of symptoms post treatment and/or know a type of doc I should be seeing I would really appreciate it. Thanks oh and if this helps I am genotype 1a and I did respond to the treatment

[DoubleDose]

Yes there are indeed two or three, or maybe ten or twenty past threads on this subject.  It is good that you found this forum, because you can now actually 'educate' your doctors to what may really happen after tx, in a group of people.  Yes indeed, people can and do sometimes experience long term, and possibly permanent side effects after their treatment, and few doctors really either admit to, or understand this phenomenon.  Many post tx treaters sure do understand it though, as you will find in much detail by reading prior threads.  Next time your doctor says the after effects you are experiencing are NOT from your tx, just copy about twenty responses covering this subject from the many people who have detailed their own problems after ending tx.  The symptoms all fit a distinct pattern, and they are real, and they are indeed from the tx.  Do keep involved on the forum, and we all can try to undersatnd better what is going on with this group of patients.  Good luck to you.

DoubleDose

[fretboard]

Welcome to the forum.  As stated above there have been many threads on this subject lately.  Maybe the cold air adds to the problems associated with post tx issues, I don't know.  Sorry to hear another person is going through difficulties.  Read around to find more information.  Good luck

http://www.medhelp.org/posts/Hepatitis-C/Please-read-this-important-study-on-post-tx-experiences/show/1641082

[mikesimon]

I think there might have been a recent thread or two on this very subject.
Try searching the threads.

Mike

[1oftheclub222]

My partner said it took him about 2 years to feel normal again, he is type 1, and didn't respond to treatment, but everyone is different so I'm told.