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1225178 tn?1318980604

Post tx issues

I thought I posted this last night, but now I can't find it so please bear with me if you have already read this... brain damage, you know.

I finished 48 weeks of tx on 3/18/11 and the past couple of weeks I seem to have developed restless leg syndrome... or something that resembles the symptoms I have read about on the internet. I couldn't find anything about a connection with SOC, but it seems like too much of a coincidence to not think that caused it. Has anybody else experienced this? If so, how long did it last? What I read about RLS indicates that it gets worse if not treated, but MAN!!!! I'm sick of going to doctors and I sure don't want to go to one if this is just a temporary issue caused by stopping tx.

Anybody got any advice?

9 Responses
179856 tn?1333547362
Di didn't you have something like this when you first started treatment? Maybe it's a good sign that the meds are leaving now.....if it doesn't get better soon I would go it could be something neuro that you might manage with meds (dont ask me I ain't no doctor ;)
1225178 tn?1318980604
I had a kind of anxiety thing going on, but that was during the daytime. This thing doesn't even show up until I'm in bed and just to the point of dozing off. Then it starts and I'm wide awake for a couple of hours and I have to get out of bed so my movements won't wake up my husband.... back to the couch again. I thought I was free from that thing.

I guess I shouldn't be complaining... it's been around 6 weeks now and I'm still UND.

1201433 tn?1328997637
                                                                                                                                                                          Diane I am experiencing the same thing since stoping tx. I thought RLS syndrome was like your legs shaking duh. I thought this might be from my thyroid med Levothyroxine. my doctor said to try a week off from it and I feel worse. Sometimes I am up more than once, hoping not to disturb others! I am so tired and spaced out these days! Like you said you are three different people, before during and after. I would like to go back to before, only UND. Hope we both any anyone else get feeling better!  Good luck Mary Ann
Avatar universal
Are you taking benadryl or anything like that?  I have several acquaintances that have had RLS from taking benadryl...they stopped taking it and it went away.  
Avatar universal

My sister has this Diane and she was told by the doc years ago that ,iron deficiency can trigger it  As it turned out she was somewhat low on iron and when that was brought into balance it subsided considerably.

  Just a thought...

1225178 tn?1318980604
Thanks for the input.
I'm not taking Benadryl, and the last time my iron was checked it was OK.

It is just such a weird thing to have this overpowering urge to move my legs... kind of makes me feel bad for getting on to my kids when they were little and squirming around in church. If they were feeling like I am now... there's no way in the world that they could have resisted moving.

Last night I took 0.5mg of Xanax about an hour before going to sleep, and was actually able to sleep in my bed all night. I'm not crazy about having to go that route, but it beats being super tired and dragged out all day by a long shot.

179856 tn?1333547362
Take the xanax when you need it......or ask the doctor for a muscle relaxer like cyclobenzaprine or something that would help you sleep, relax your muscles and be less addictive? I was on xanax for years and had no trouble getting off of them but some do so you have to be careful. But you have to sleep!
956931 tn?1271636169
Hey Diane,

Glad to hear that you are still UND! Just thought I would let you know that I suffered from RLS symptoms for about the first six months post treatment. I guess I kind of forgot about it because my husband said I had it before when I complained about it. But I have either gotten used to it now, or it is better because I haven't noticed it in several weeks. (I too am brain damaged. haha)

Anyway, wanted to mention it because mine is better now.

Avatar universal
An old wives tale but it seemed to work for me - tonic water !!!  I generally don't look for natural solutions but this one sure worked.

Best of luck and hope you get over this hump soon
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