Aa
A
A
A
Close
Hepatitis C Community
13.4k Members
Avatar universal

Posting for non treaters and waiting for new drugs.

There are a lot of us who feel the treatment is worse than the virus and a lot that are waiting on newer drugs that would give them better odds on the drugs working without all the SX. The posts on this board for the most part is pro TX. I have noticed on this board as well as others that the pro TX crowd have a hard time with people that don't agree with their decisions. Maybe its human nature to feel better about their decision if a lot of people are in the same boat with them.  I want to get some feedback before I post any thing for people that are not on TX and their reasons and such. I assure everyone I will not post anything If I will be getting static from the people on this board. Their are some that think TX is the only way and anyone discussing anything else might be making newbies hold off treatment.  Please advise as I don't want to cause any waves.

                                                  Ron
48 Responses
Avatar universal
& Treatment Was Worse Than The Actual Virus As I Really Had No Pre-Tx Sx's to speak of... but was it worth it "Heck Yea"... would I do it again... You Betcha!!!! But Definately a break between Round Two & A Possible 3 would be a MUST!
;)
Avatar universal
I can't treat so I continue to wait...for now.

Please, upbeat, the 1999 report you speak of--were the Dutch nurses followed more than 20 years? And could you explain the theory of the body being able to "adapt" to the virus?

Just looking for a little hope.

Thanks.
Avatar universal
Do A google search for the 1999 report to congress.  This report was done by the military.  What they did was go back to 1954 and test all the blood they took from the recruits. With all the recruits blood that they found to have hep -c . They followed up on these people and after over 40 years there was no difference in mortality rate than with the rest of the recruits. The Dutch report is amazing because for the first time they knew when they were all infected. Great reading.

                                                             Ron
Avatar universal
my only concern is that everyone waiting keeps touting the newer, better, gentler drugs are coming.  There is no proof that they will be gentler as well as effective.
Wait away, anyone that can, but not under the cloud that the next generation of drugs will have none or little side effects.  It has not been proven.  
ANy new drug will come with their own set of sides.
The argument is that because there is less exposure due to possible shorter tx (not proven for SVR either) that it will mean less long term effects.  SOme studies out there present an insignificant statistical difference in AE(adverse events) with 72 wks v 48.
ANd a large majority of treating folks already feel severe sides by wk 12.  Can we tell if the person will have less long term effects because they only suffered 12-24 wks of tx and not 72? Nothing supports that.

it is telling people to wait because gentler things are around the corner that does not sit well.
Avatar universal
I havn't noticed this board being swayed towards PRO as much as many implicate... I have actually found quit the opposite... but there again I am not in here as much as most!

I guess I am pro TX being as treatment was optional for me BOTH Times... I am a combo 1a&1b... had little to no liver damage.... 2 was a charm (even though round two I still was not able to extend as long as intended)... but even though I am basically PRO... I do NOT discredit anyone for choosing to wait, I believe all we can do is Inform & Not Sway & let the person make their own intelligent decision...(& That's a BIG TIME PERSONAL DECISION) so hearing both sides of the story is a GOOD Thing,,,, & Remebering that we all respond & react differently to the meds is a BIGGY....

Individualization IS The KEY!!!
;)
Avatar universal
No I am not promoting fake cures. That stuff is garbage and only works on peoples fears.  Cutes the new drugs may or may not be any better than standard care, either way the odds say the vast Majority of people will adapt to the virus and live a normal life span. Sure there are going to be some that will have serious problems. There are several studies that show there is no difference between liver problem with or without the virus.  I refer to the 1999 report to congress and the Dutch nurses all infected and the same time and followed for 20 years to name a couple. The odds are much greater that you will develope problem with TX than the odds of problems caused by the virus. The quality of life vs the quanity plays a big part in my decision.

                                                           Ron
Have an Answer?
Top Hepatitis Answerers
317787 tn?1473362051
DC
683231 tn?1467326617
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.
Smoking substitute may not provide such a healthy swap, after all.