SVR after tripple treat of Incivek

[Dee1956]

Hello, one thing that I was desperate for during tx was for people to come back and tell us how they were doing.
I started out with HCV, Cryogloinema, Cirrhosis, Diabetes, low Thyroid.  My doctor said that in my case it would be very hard to treat.  He then said he was only having me do 24 weeks, since I was a previous relapser.  He said he would not subject my liver to the additional 24 weeks that "may help" me get to SVR.  He has been involved in trials and Studies at Translational Inst at INOVA Fairfax VA Hospital with Dr Younnissi
I did the tx, it was awful as people can probably see in my journals or in my posts here and there :)
I did get to UND within the first 4 weeks, then UND at 24 weeks, 3 months later, 6 months later same
Now I am almost 16 months post tx.  I recently had blood work, I am SVR and my doctor said they are now considering this a cure.  He also said they are finding that while the liver regenerates it is also regenerating the scarred tissue.  I feel better than I have in years. My mind is clear, my hair is growing back, my muscles are building back up.  I am very happy that I took the chance

JimJim530 came back and said he went from a 3-4 and now is normal, that is great news and I hope encouraging to others on tx.

I hope that others will comment on how they are doing post tx to encourage those behind us, just like we were encouraged by those who went before.
I try to pay is forward.  

MedHelp, thank you for this wonderful site where so many fantastic loveing, supportive people have all come together to help each other.  I could not have gotten through the tx without everyone here

Please say a prayer for HectorSF, he is my hero.

Thank you all so much for your encouragement, support, advice, tips, etc.  I wish I had bought some stock in Walmart before starting tx, we were there every day or two :)

[Dee1956]

Thank you, I am praying for you. I know how hard the tx is.  Frijole has a really neat chart on her home page you can see all the people who treated with what and how they are doing.
My best to you
Dee

[frijole]

great post, gang.  I have also reached SVR after two treatments, the first with Ribavirin and Interferon and the second with those two drugs plus Victrelis.  I treated 48 weeks because I had developed cirrhosis.  It has been about 11 months since I finished treatment and I do feel well.  My only problem is post-tx weight gain (happened the first time too) which I have not been able to get under control.

With a lot of help from friends on this forum, I have kept record of the success and failure of triple therapy.  If you go to my home (click on my name or picture) and go to my photos, I have about 6 sheets which document members treatment .  Please check it out, if you haven't already.  And if you want the actual excel spreadsheet just send me a pm

frijole (bean)

[Carlhcv]

Dee, thank you for mentioning Hector. What a wonderful person to still be here helping people when his own situation is not so good. Hector deserves better.

[Carlhcv]

Great news! Thanks for sharing. I'm on week 20 of triple w/Victrelis. I'm a man and I'm losing my hair and what's left is turning white. I was barely detectable at week 8 (VL 9) so am probably in this for 48 weeks. In fact I want to do 48 weeks to maximize my chances of SVR. Big test coming up for me at 24 weeks when I MUST be und. Then I will be over the hump! Yay! Congratulations. I'm very happy for you and maybe I can post good news like that in a year or so!! :)

[Dee1956]

Hello thank you so much.
I am so sorry to hear you had to have your teeth pulled.  I worry about same for me in the future and can imagine it was a hard decision.
When my platelets fell to 65K and I realized what it was...HCV.  I tried very hard not to ingest anything that could thin the blood ore reduce platelets further.
My doctor told me that ibuprofen paralyzed platelets for 3 days while aspirin does it for a week.  Not saying you are taking either, it is just there are things that can affect the platelet.
All my best to you

[jpv1]

Nice to see all these updates. Dee and Pooh your inserational to a lot of people  here and hope Hector is doing better. I just got my blood work done and looks like my Plates have fallen even further down to 60 now 18 months ago they were 255. I had all my teeth pulled which was advised by the doctors here in Australia. They werent that bad but I could not afford the dental cost (thousands of dollars for bridges and implants) so I had to make this decesion. Now Im ready to start treatments in next 5 weeks they are starting triple treatments. I look to the challange many of you have faced and beat. Your words of encouragement mean everything to me. Living in Australia is like a third world country ( Im American) health care may be free but its a long time comming. I was told I had Hep C 2.5 yrs ago and stage 2 cirrhosis which has moved to the stage 4 cat now. I have 3 beautiful children and 3 grand children that I want so much to see and be close to. I hope to move back after my treatments and spend the rest of my life with them in Ohio (columbus). I am happy to add anyone here and help any of you all I can. God bless and keep us all in his hands as we go through this part of our lives. Cheers John