Wanted to share- I was svr at my 6 month pcr. YEAH!!!
I had genotype 3a.
Biposy 3/09- stage 0/1 depending on the system used
infected perhaps as long ago as 34 years
no symptoms= dicovered elevated lft in routine blood work for new doctor
Decided to treat. Wanted it gone, did much research on my personal odds of clearing- female, age 55, type 3A ,stage 0/1, decided to take the plunge and treat to get my life back ,as there are no upcoming breakthough meds on the horizon for type 3a
I heard that some people do not have lots of side effects and I decided it might be me and if not I would continue if my response was good as I wanted to be able to move on if I could.
starting viral load 7 million
started treatment 5-30-09
24 weeks on Pegasys and 1000 ribiviran- weight based at my specific request
went to the cheif hepatologist at a major teaching hospital
undetected at 4 weeks into treatment and ever since
During treatment I had minimal side effects. Some, but none that were debilitating. It did however require a life adjustment. I just did what I had to, when I had to.
No depression, no anxiety and on no meds for either
No anger issues
No concentration problems
No sleep problems
No shot reactions ever besides site redness
4 weeks in- developed anemia which responded pretty well to procrit- when they would give it weekly. WHen it was reduced to biweekly I struggled with fatigue and breathlessness at times.
had about 8 to 10 "real bad" days total- with no specific symptoms- just felt really bad- in the whole 6 months
still it wasn't fun. Not at all !
Generally I did not feel like myself. Often I felt a bit hyper,
Had lots of fatigue and breathlessness
got the cough which worsened as time went on
the last 2 weeks very itchy, scratched like a dog- but had no rash
I worked the whole time. At a job that required lots of attention to detail but no physical labor.
It's over now. I have no post treatment issues.
I think I've won the battle. God was good to me!
I wanted to post so that others can be encouraged by my good news.
FOr the most part I have been a lurker here and on the Janus and Friends forum. The info from these sites, plus Clincal CAre Options in Hep C, helped guide my research and decison making process. I might not have done so well, if I had been less informed.
I felt impowered enough to tell my doctor from the start, that I did not want to take Pegintron ( his initial plan for my interferon) I definitely insisted on weight based Ribaviran. I did not think i knew more than he did. I just wanted to maximize my personal odds of clearing.
Hope that all of you do as well as I did and also achieve SVR