Wow, sorry to hear you’re having so many problems with treatment. If you tell us roughly where you live, someone might be able to suggest a support meeting close to you. You can also ask the local hospital or your treating physician bout meetings close by.
Hang in there, and good luck with the results—
Try calling CPMC liver clinic and asking them if they’re aware of local HCV support groups:
Sorry I couldn’t be more specific—
I sent a private message to an old member here that might be more familiar with the Southern Nevada support network; bookmark this post, and check back in th next day or two and see if she responds,
Thank you, again. I really appreciate all the info I can get.
If these aren't near you perhaps they can find one that is closer for you if you give one of them a call. The contacts and numbers are about a year old.
Carson City (775) 883-5415 Sandy Curl ***@****
Reno 530-577-3111 Ken
Reno 775-825-7434 or 775-450-3141 Darla & Carol
Meeting others personally in your area that face many of the same challenges or have endured them already can be helpful in countless ways. Its a good move and I hope you find one that you can attend. Good luck.
Regarding the mouth sores, have they given you any Magic Mouthwash yet? It’s a swish ‘n swallow Rx of lidocaine, Maalox, benadryl and sometimes nystatin; it numbs on contact, and really helps with thrush and other things.
Yes, it is pink stuff that you rinse with then swallow. The rinse wasn't so bad, but to swallow, no way. But then I would have to brush my teeth because the stuff stuck to everything. This stuff didn't numb. The only thing I was able to use to numb everything was Orajel. It doesn't last that long, an hour or so, but just long enough for me to be able to eat. Since it has started up again, my doctor just gave me antibodies, and steroids. I started them all today so don't know if they will do any good. I just have to keep my fingers crossed.
Thank you for your help
Thank you so much for all the numbers. I am sure that if they do have meetings down here, I will be attending many of them. I refuse to allow myself to become bitter. You know the "Why me" excuse for being a nasty person. Too much good is in my life and I want it to stay that way.
Thank you again
effects of Benadryl abuse can include increased heart rate, insomnia, kidney and liver damage
Dont take it either if you are on benzos or anti depressants.,just a heads ups.
LOL, I don’t know what kind of pink stuff they gave you, but Magic Mouthwash has lidocaine in it and it’s like turbocharged Oragel :o). It doesn’t last too long either, but it works *magically*. They prescribe it for cancer chemo patients frequently… maybe give it a whirl?
Thank you for the heads up. Thank goodness depression is not one of the side effects I have. The only time I have ever taken Benadryl was in the hospital prior to blood transfusions.
Thank you again
It is an over the counter item so I will definately give it a try. Alot better than sticking the stupid q-tip in my mouth.
Try a few drops of tea tree oil or a water based stevia extract in 1/4 water with a pinch of baking soda ,afterwards swiss some virgin organic coconut oil in your mouth...you will notice a big diff
No, magic mouthwash is prescription only, and in fact has to be compounded by the individual pharmacy. Insurance generally covers it, so it shouldn’t be too pricey—
Nystatin belongs to the group of medicines called antifungals. The dry powder, lozenge (pastille), and liquid forms of this medicine are used to treat fungus infections in the mouth.
Nystatin is available only with your doctor's prescription.
Once a medicine has been approved for marketing for a certain use, experience may show that it is also useful for other medical problems. Although this use is not included in product labeling, nystatin is used in certain patients with the following medical condition:
Candidiasis, oral (fungus infection of the mouth) (prevention)