Aa
Started my intergen shots friday
Well I started my shots and pills friday was not bad have chills for about 4 hours. Then I said to myself thats enought and hey they stopped lol.
Here it is tuesday and now my muschles are getting sore all over hurts to go up and down stairs.
Also getting tired easy so will start taking iron pills and extra vitiumns.
My biggest problem is the needles they have sent me. They are hard to get the needle in so going to see if I get a different type. The last time when I was on interfron the needles went in easy so who knows. But it is like trying to go through leather.
But all in all I am doing better than I thought. Because when I started the interferon I got real sick for a few weeks. But so far not to bad on the new drug.
Good luck to all happy Holidays and a Merry CHristmas
Gary
Here it is tuesday and now my muschles are getting sore all over hurts to go up and down stairs.
Also getting tired easy so will start taking iron pills and extra vitiumns.
My biggest problem is the needles they have sent me. They are hard to get the needle in so going to see if I get a different type. The last time when I was on interfron the needles went in easy so who knows. But it is like trying to go through leather.
But all in all I am doing better than I thought. Because when I started the interferon I got real sick for a few weeks. But so far not to bad on the new drug.
Good luck to all happy Holidays and a Merry CHristmas
Gary
Tonerman and Karay, You both are on daily infergen shots..hats off to you both and I wish you the best! You seem to both have great attitudes which in my belief is 1/2 the battle! I am on interferon on week 44 of 48...the end is near! It has been a struggle but I wouldn't trade this year for anything as I've responded very well but have suffered from a 7.3 hemoglobin for over 7 months now. Almost finishing up is wonderful!
Would you both for those of us who don't know your stories post what your Hep C history is and what led you to the daily Infergen shot treatment. Does this treatment also have the daily riba pills? What set of circumstances leeds one to the path of daily infergen shots? The reason I'm asking is that my dearest friend just got his PCR back at 15 weeks (doctor forgot to order his 12 week PCR!) and unfortunately he got the bad news that he did not have an additional viral reduction from his 4 week PCR test. He did go from 5 million to 170,000 at 4 weeks which initially seemed to be a dramatic drop but he hasn't gone any lower since week 4 PCR. He is in a panic and he wants to know what his next options are and I'm trying to learn fast. I was undetectable at week 12 so I am not completely aware of what paths people take if they are non-responders. I assume you both are on daily Infergen shots also due to being non-responders? If you would be so kind to let me know what Hep C journey you have been on. I need to try to help my friend come up with a plan of attack with his stubborn Hep C virus as I'm worried his doctor isn't pro-active enough. I apprecaite your time and sharing your knowledge.
Best to you both, Scott
Would you both for those of us who don't know your stories post what your Hep C history is and what led you to the daily Infergen shot treatment. Does this treatment also have the daily riba pills? What set of circumstances leeds one to the path of daily infergen shots? The reason I'm asking is that my dearest friend just got his PCR back at 15 weeks (doctor forgot to order his 12 week PCR!) and unfortunately he got the bad news that he did not have an additional viral reduction from his 4 week PCR test. He did go from 5 million to 170,000 at 4 weeks which initially seemed to be a dramatic drop but he hasn't gone any lower since week 4 PCR. He is in a panic and he wants to know what his next options are and I'm trying to learn fast. I was undetectable at week 12 so I am not completely aware of what paths people take if they are non-responders. I assume you both are on daily Infergen shots also due to being non-responders? If you would be so kind to let me know what Hep C journey you have been on. I need to try to help my friend come up with a plan of attack with his stubborn Hep C virus as I'm worried his doctor isn't pro-active enough. I apprecaite your time and sharing your knowledge.
Best to you both, Scott
Things its nice to know you are doing good so far and yes I drink lots of water. trying to eat as much as i can. I am self employed so I hope I dont get to tired. had a few tried days so far but not to bad.
Good luck in tx and have a happy Turkey day
Gary
Good luck in tx and have a happy Turkey day
Gary
yes I agree, you do have to fight tooth and nail for anything that is involved in this damned virus...
Good luck - I'm on a daily shot as well (week 14) My doc said no on the vitamins and a big no on any add'l iron pills. He said I get enough from the foods I eat. I only had the chills the first 2 days, I was actually pretty lucky cause the first 2 weeks were ok. Then it kinda went downhill for a month but I'm starting to get some energy back. Its not easy - make sure to drink tons of water & EAT!! I try and eat really healthy food which helps!
Hi Kalio:
If you do a search for Bill Clinton and tainted blood scandal you can see just how much involvement he had while governor of Arkansas...The most recent was in October in Scotland, he was asked to appear in court to testify about sending blood from an Arkansas prison that was tainted....
I was mortified when I first heard of Bill Clinton being implicated in any of this, especailly being a Democrat and voting for him, but it is true...Very sad....
Also, you mentioned that the allocation of monies was not balanced for HCV here in Canada...You're right on the money with that one (pardon the pun..lol) ...There was a meeting in Ottawa (equivelant to Washington DC staffing)just last week that touched on that very subject...I think they are about to open up a whole can of worms too...Which may be necessary in order to put some justification on all this...
Also, with it going public again here maybe then people will be more aware and start asking questions about HCV and how you can get it...Still holds the "drug addict" stigma here...
*dip*
If you do a search for Bill Clinton and tainted blood scandal you can see just how much involvement he had while governor of Arkansas...The most recent was in October in Scotland, he was asked to appear in court to testify about sending blood from an Arkansas prison that was tainted....
I was mortified when I first heard of Bill Clinton being implicated in any of this, especailly being a Democrat and voting for him, but it is true...Very sad....
Also, you mentioned that the allocation of monies was not balanced for HCV here in Canada...You're right on the money with that one (pardon the pun..lol) ...There was a meeting in Ottawa (equivelant to Washington DC staffing)just last week that touched on that very subject...I think they are about to open up a whole can of worms too...Which may be necessary in order to put some justification on all this...
Also, with it going public again here maybe then people will be more aware and start asking questions about HCV and how you can get it...Still holds the "drug addict" stigma here...
*dip*
"How about the case in Canada where several thousand people were infected in 2000"
The number of these people is higher, more like 3500...And it was from blood that the Canadian Red Cross got from the states...Bill Clinton signed off on sending blood from doners in prisons to Canada...They couldn't use it in the states so he sold it or sent it, not sure, to Canada...I don't know if he knew the blood was tainted, probably not, but the states have never tried to do any compensation with Canada on this matter...As a matter of fact the "Canadian" governement made finacial compensation to those infected...But it doesn't surprise me...I got infected by a tainted blood transfusion in the state of Massachusetss and they didn't compensate me, so if they don't compensate their own people why would they compensate those from another country...Very sad situation if you ask me...Shame of the American government!!!
*dip*
The number of these people is higher, more like 3500...And it was from blood that the Canadian Red Cross got from the states...Bill Clinton signed off on sending blood from doners in prisons to Canada...They couldn't use it in the states so he sold it or sent it, not sure, to Canada...I don't know if he knew the blood was tainted, probably not, but the states have never tried to do any compensation with Canada on this matter...As a matter of fact the "Canadian" governement made finacial compensation to those infected...But it doesn't surprise me...I got infected by a tainted blood transfusion in the state of Massachusetss and they didn't compensate me, so if they don't compensate their own people why would they compensate those from another country...Very sad situation if you ask me...Shame of the American government!!!
*dip*
I will check on the Iron with the TY.
They only sent one needle per shot sixe 27 1/2
so I go so micro fine from my mom who is diabetic and dont use her anymore she has the pump. The first shot with those was alot better. Yes I drink lots of water.
AS for the redipens I had one mess up and no trouble getting it replaced but it was a mail oder that the insurence company used but still had no problems. But I did used the mixed type at first so yes there are other was than a redipen.
Thanks for all the info though this is a neat and helpful site.
Gary
They only sent one needle per shot sixe 27 1/2
so I go so micro fine from my mom who is diabetic and dont use her anymore she has the pump. The first shot with those was alot better. Yes I drink lots of water.
AS for the redipens I had one mess up and no trouble getting it replaced but it was a mail oder that the insurence company used but still had no problems. But I did used the mixed type at first so yes there are other was than a redipen.
Thanks for all the info though this is a neat and helpful site.
Gary
Those redipens sound like a nightmare. I tell you, those Pegasys pre filled syringes are so easy. Will your insurance cover the Pegasys instead of the peg-intron? I never did have any luck getting the prefilled syringe replaced that I left in a hot car. I am just getting my prescription filled a week early and am hoping that my doctor will prescribe a dose after the original 48. I hope you have better luck getting your redipens replaced.
Kathy
Tonerman -- Those diabetic syringes are much better, I am sure. I am actually using some allergy syringes that the pharmacy gave me to try - those are the 28 or 29 gauge ones - and the needle is not detachable from the syringe. Thus I am not replacing the needle after I insert it thru the plastic and before I inject like the nurse told me. I suppose it is a little duller, but it seems to work okay.
Kathy
Tonerman -- Those diabetic syringes are much better, I am sure. I am actually using some allergy syringes that the pharmacy gave me to try - those are the 28 or 29 gauge ones - and the needle is not detachable from the syringe. Thus I am not replacing the needle after I insert it thru the plastic and before I inject like the nurse told me. I suppose it is a little duller, but it seems to work okay.
Tonerman! NO IRON! Iron stores up in your liver and replicates the virus! That is one thing that all of our doctors have been saying! Don't even take a multivitamin that has it in it!
Lord knows...don't need help GROWING these horrible things!
Also my doctor said no A and K.
Thanks for the redi-pen advice. Sounds like I might have to just keep on with them cause the other thing sounds too tricky for me yet. I was so proud I finally got the syringe thing down...oddly for a disease that I probably GOT from doing drugs it was odd to have to learn to use a needle since I never had. Talk about IRONIC?
(The doctor keeps saying I could NOT have gotten it from the transfusions it had to be when I was a cokehead in the 80s & 90s. 20 years of serious drug abuse I suppose I am lucky that this is the ONLY thing I got!)
It's good to be sober!
Lord knows...don't need help GROWING these horrible things!
Also my doctor said no A and K.
Thanks for the redi-pen advice. Sounds like I might have to just keep on with them cause the other thing sounds too tricky for me yet. I was so proud I finally got the syringe thing down...oddly for a disease that I probably GOT from doing drugs it was odd to have to learn to use a needle since I never had. Talk about IRONIC?
(The doctor keeps saying I could NOT have gotten it from the transfusions it had to be when I was a cokehead in the 80s & 90s. 20 years of serious drug abuse I suppose I am lucky that this is the ONLY thing I got!)
It's good to be sober!
From what others have posted - yes there is. But it's a little tricky. You tranfer water from one vial to a vial of powder. Shake, Mix, draw into a new syringe, and inject.
Stay on top of those brokekn ready pens - call the Peg-intron number. Maybe they will send replacements.
Stay on top of those brokekn ready pens - call the Peg-intron number. Maybe they will send replacements.
Sorry about the double post I wanted to also mention that did daily shots for 48 weeks. I used my belly. Sometimes the needle just didnt want to go in and I would switch to other spots. Other times I would just push a little harder and it would just go in.
Wow daily shots of Infergen,thats a tough one. I hope it works for you. This medicine makes you tired. Sometimes you can go with it and get some rest. I recommend "Centrum Silver" vitimans. They actually have no Iron since many liver damaged people already have excess Iron.Also remember to drink alot of water. Good luck!
Wow daily shots of Infergen,thats a tough one. I hope it works for you. This medicine makes you tired. Sometimes you can go with it and get some rest. I recommend "Centrum Silver" vitimans. They actually have no Iron since many liver damaged people already have excess Iron.Also remember to drink alot of water. Good luck!
I am glad that you are doing such a great job with your attitude! God knows that is a huge part of this disease and fighting it!
I only use my needles one time too.
I have a question that somebody might know....
I am on Peg-Intron and use the redi-pen. Now that I am on Epogen and have learned how to use a regular needle I am finding that much easier.
I have WASTED two of the redi-pens and am up the creek - try returning it saying it's damaged! I only tried once and finally gave up CVS is horrible. One time for some reason it poured out of the end while I was turning the dosage thingie and once I snapped it together and the "window" disappeared where you look to see that it's mixed - I mean it was GONE so I couldn't use it not knowing what was going on.
It might take me longer to use the syringe but I find that I don't mess that up at all. Maybe because I need to concentrate or something but I find it's more reliable than that big bulky thing.
Is there a version of my meds that is in a vial that you use a syringe?
I only use my needles one time too.
I have a question that somebody might know....
I am on Peg-Intron and use the redi-pen. Now that I am on Epogen and have learned how to use a regular needle I am finding that much easier.
I have WASTED two of the redi-pens and am up the creek - try returning it saying it's damaged! I only tried once and finally gave up CVS is horrible. One time for some reason it poured out of the end while I was turning the dosage thingie and once I snapped it together and the "window" disappeared where you look to see that it's mixed - I mean it was GONE so I couldn't use it not knowing what was going on.
It might take me longer to use the syringe but I find that I don't mess that up at all. Maybe because I need to concentrate or something but I find it's more reliable than that big bulky thing.
Is there a version of my meds that is in a vial that you use a syringe?
Hey, I like your style - willing those meds to stop. I should try that too.
If your dose is in a vial and you have to puncture the rubber top with the needle of the syringe, you should then replace that needle with a new one to do the shot. This is what my nurse told my for the Procrit and Neupogen that I have to load from the vials. She said these are one use needles, and puncturing the plastic dulls the needle.
If that is not the problem, perhaps you can go to a smaller needle. I am using gauge 28 or 29 (very small) for my shots not and it goes pretty smooth.
friole
If your dose is in a vial and you have to puncture the rubber top with the needle of the syringe, you should then replace that needle with a new one to do the shot. This is what my nurse told my for the Procrit and Neupogen that I have to load from the vials. She said these are one use needles, and puncturing the plastic dulls the needle.
If that is not the problem, perhaps you can go to a smaller needle. I am using gauge 28 or 29 (very small) for my shots not and it goes pretty smooth.
friole
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