Congradulations on dumping the sleep aids. I have been pondering the same.
I have not opted to treat as of yet. but do have RA .Mild. (was worse now better).
Pain is hard, we are not supposed to take either advil or Tylenol from what I have read here.
Well I may not have any answeres for you, but I do want to tell you that you are not alone.
other people will hope fully chime in for you,
Are you taking glucosimine (sp?) this helps my dad -
Are you still on the rituxan infusions? I have a rather selfish reason for asking as I got RA from the tx and was going to inquire about taking it with my rheumie. I was wondering if it helped you at all.
I did 6 Rituxin infusions and I noticed a difference, especially on my energy level. Like I said prior, my enzymes are better than ever and my cryo appeared to be gone! VL is still high, 22M.
The long term plan from Shands was to continue these treatments for 2 yrs., quarterly.
Unfortunately, I have a huge problem with my insurance company, presently-I have filed a second appeal. I was on Cobra, and it was to expire on 4/26/08. On 4/22/08, I received a letter from Cobra, saying, that since I had qualified for Medicare in July,07, that they were dis-qualifying
my Cobra benefits, efective July 1,2007 to April 26,2008, making me liable for all bills, which had been pd., during that period. All of the treatments and Doctor appointments that I had during that period, were pre-approved by my Cobra insurance, and they had cashed all of my premium payments.
This is going to be a battle, but I am ready to fight!
My Hepatitis Specialist is pursuing a Home Health Agency to administer the Rituxin in my home. I have contacted my present insurance," Medicare, and I have picked up an AARP United Policy, plus an RX policy." Now here's the kicker-the cost of the Rituxin is $2,500 for one (1) infusion,-Shands Hospital cost for one (1) infusion is $19,500.
Something needs to be done about this-but that will be after I conquer and win the appeal, and I continue treatment.
From all studies that I have read, Rituxin, is being used as an experimental treatment for alot of things, and from my experience, I would certainly attempt it, with your Doctors approval.
I hope this helps and I am sorry for all of the rambling, but I hope that through my experiences, other people will gain some personal knowledge, and gain something for their own usage.
Unfortunately, our bodies are all different and accept treatments differently, which makes these diseases so hard to treat, and conquer.
I hope you all have a great day!