Hello I am so sorry to hear it is hitting you so quickly. I am sure others will be along soon. I remember the intense itching, I tried the same things you have mentioned as well as ice cold wash cloths, towels placed on the rash to actually icing it. Others used oatmeal baths. I am guessing if you have tried atarax that you already tried benedryl.
I am really sorry this is happening. I am glad you are going to the doctor, you don't want this to become so serious you are hospitalized.
Let us know how you are doing
I am sorry that you are having these rash issues.
Your rash sounds quite serious. If your rash is this extensive at day 5, it is not a good sign. You need to get it under control immediately or it will continue to get worse. These rashes snow ball out of control rapidly.
I don't know how much Atarax you are on (I was taking 50 mg every 6 hours). Maybe you need a much higher dose than the dose you are on. I was also using Fluocinonide ointment on my body, Clobetesol for my scalp, and Hydrocortisone Valerate for my face.
Please call your Hepatologist back and tell him how bad your rash is getting and that it is spreading rapidly despite the medication. I would also see a Dermatologist if I was you. You need to get this under control now.
The rash will jeopardize your treatment if it is not brought under control immediately. People have been able to continue treatment even with rashes, but the rash must be treated aggressively and must be brought under control and managed properly.
In addition, if it is the Incivek rash, it can be extremely serious, and people can develop life threatening skin rashes. So please contact your Hepatologist now and get seen today.
HIGHLIGHTS OF PRESCRIBING INFORMATION
These highlights do not include all the information needed to use INCIVEK
safely and effectively. See full prescribing information for INCIVEK.
WARNING: SERIOUS SKIN REACTIONS
See full prescribing information for complete boxed warning.
Fatal and non-fatal serious skin reactions, including Stevens Johnson
Syndrome (SJS), Drug Reaction with Eosinophilia and Systemic Symptoms
(DRESS), and Toxic Epidermal Necrolysis (TEN), have been reported in
patients treated with INCIVEK combination treatment.Fatal cases have
been reported in patients with progressive rash and systemic symptoms
who continued to receive INCIVEK combination treatment after a
serious skin reaction was identified.(5.1)
For serious skin reactions, including rash with systemic symptoms or a
progressive severe rash, INCIVEK, peginterferon alfa, and ribavirin must
be discontinued immediately. Discontinuing other medications known to be
associated with serious skin reactions should be considered. Patients should
be promptly referred for urgent medical care.
Thank you guys,
The itching was too unbearable and I went back to the doc because everytime I see my legs covered in red hives, I freak out. The doctor basically told me I have nothing to worry about and I have to keep press on, and just keep taking Atarax and using hydrocortisone ointment. In the past 36 hours or so I noticed my arms and hands have been getting slightly better (probably because I try really hard not to scratch).
Overall, I am just hoping it will get better with time (seems like they just move around so far, but at least it's not exponentially getting worse)
So, despite being one of the early rash developers, the nurse has encouraged me to just keep at it at the rash. Both of us agree that I'll try my best at least for the next 4 weeks, and hopefully if I get that 4 weeks UND, I'll be much more motivated to keep at it for at least another 6 weeks (she gave me the option to negotiate for 10 weeks Incivek only if it really becomes that bad).
I'm hopeful though and the fact that my AST went from ~100 to ~40 and my ALT went from ~360 to 108 is really helping! The next challenge will be finding a rash-free spot for that 3rd injection next week but I'll deal my problems one at a time! Thanks again guys for the feedback!
Rash started on Day 3 for me also. Miserable. Hot showers, a backscratcher and topical steroids were my only respites. It moved around, and finally cleared a couple of weeks after finishing telaprevir. You are doing the right thing. Gather info and be your own best advocate. Best wishes.