The life with HCV (before treatment)

[JackABCD]

As some of the members in this forum might know, I am with HCV since 1980, after an injury, part of my liver right lobe had been resection due to liver rupture from the injury, I have received a lot of blood and with that also the virus. On 1995 I did a biopsy that found something like Stage 2, Some years ago my GB had been removed due to jaundice that caused because of gall-stones,  3 months ago I did FibroTest that said F4-A3, after that I did Fibrotest that said the same, 1 month ago I did biopsy that said Stage 2-3 and Grade 2-3 (not good at all but at least much better then F4), I will start tx very soon, my geno

[JackABCD]

I assume that  what I experience are the sides of the disease, I agree with Forseegood doc explanation for the reasons for this sides. I believe that it is our body immune system fighting the disease (the inflammation) and that consume a lot of energies from our body and we become weak and therefore suffer much more from allergies and other bad things that we are much more exposed to them then a normal healthy person.

It looks like that it is very different between Forseegood and my experience, especially in terms of  frequency and duration (how long and often we experience this sides), Forseegood experience those sides it in about once in a year while for me this is my life at least 50% of the time, this is a very significant different, that might be explained by that my liver situation is much worse (stage 2-3, grade 2-3) while  Forseegood is with stage 1 (I think).

It is really very difficult to cope with this sides on a daily routine, it is very  exhausting, and I know myself as a person with a very high stamina. Sometimes I think about what I lose along the years because of this sides (career opportunities, deals, etc ..) and it is so much

[Forseegood]

yeah, these flare ups seem to manifest differently in different people...with me, it's every year and half, ha ha! and then while I'm in a flare up, it'll be like you, some days for a half day, etc...then it all goes away for a year and half...really strange...guess it's way better then having all those symptoms continually! Anyway, supplementation regimens are a bit tricky at this forum, could ruin some members day if I talk about them here...

probably better not to talk about them much here cause people will take it wrong, that I am advocating something *instead* of treatment...etc etc...I've gone to many nutritionists and people like that, so I do think these things should be tailored to the individual...I actually take less then I used to...anyway, why don't you go to Janis and Friends?, and I'll leave a message on the Introduce Yourselves section, and you can click on my handle, and it'll give you an inside email address...you only get my real email if I answer you...that's the best way to play it cause they don't have private emails here, and I don't want to post my private email here publically, BIG MISTAKE FOR ME....anyway, see you there....be well...

[Forseegood]

yeah, a leetle too much Green Tea (which has a bit of caffiene too) this morning...hope youre doing well on your motorcycle (what kind is it? I picture you on a Italian one for some reason) and have a great weekend, to you and all..

[JackABCD]

I find what Forseegood say very familiar -  "flare-ups", unformed stools and  feel crappy (as dun4 describe), It comes and goes randomly.

3 hours ago I was crappy and now after taking some rest, eat something and walking outside for 1 hour in the fresh air I feel better.

It is frustrating, sometimes I lose credits in meetings and presentations because I feel crappy, I suppose that no one really notice that I feel bad but there is a bad impact on my performance  when this crappy feelings exist, sometime it is hours, sometimes it is days.

Looks like that doing some sort of sport activity help for a while, I noticed that sometime anti-allergic pills or drops help.

Forseegood - Could you please tell what are the supplementation you take ?

Thanks, Jack

[mikesimon]

I would love you to work for me if you can be busy and manage to post as much as you did. That's impressive. Mike

[cruelworld]

i still insist that "daily high heartrate extended cardio exercise" is a must for all of us. ill bet big money that the sedentary subgroup here would see drastic improvement in quality of life if this daily regimen was instituted and acheived.
you will find that many little problems would diappear. this has always proven true in my life.
i always think of lance armstrong, and his rehab. wow! maybe we will all find out one day that all those cardio rules just dont apply to hep c, i refuse to beleive this. besides, you/we dont really have many other ways to solve these problems anyway, go ahead and do it. there is universal consensus that hard cardio (within reason)is good for everything. one last thing just to make a point, i always see overweight people walking around the track at the gym, while this is better than nothing,
compared to the 170 beat per minute huffing and sweating sessions, there is no comparison. walking around the track will not acheive the reults of which i refer. on my bad days i will neglect house hold and other duties just to save up energy for my sweat burn, and many of my sessions these days are only ten minutes, but i will be soaked and tired afterwards. again house work dosnt acheive the high heartrates. go on a crusade, become an athlete, it will work!