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Treatment

I have been on treatment for six months, I have been highly overdosed once by a hematology,I am being overdosed again.I have seen the Doctor 3 times in 6 months,the office called yesterday and and told me they had to move my appt. to next week.I was due to see the Doc and for Lab.Over the last month my hemygloban have been down.I am down to a 100lbs.I went in remission in three months.I was told I had to do 12 months of treatment.I am just burnt out.I feel I need another Doctor.I dont know if I am even going to the right Doctor.
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30678 tn?1217989247
Maybe I'm just confused (it happens really). What genotype are you, what tx are you on, and you cleared at week 12? and I'm guessing you mean 48wks, and what kind of Doc are you seeing?
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Avatar universal
I am seeing a hematology.Blood Doc.I am told that I am type one and stage 1 slash 2 and that I would have to do a 12mo. treatment which 52wks started having good signs 12 went into complete remission week 15 its now 6mo.26wks
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30678 tn?1217989247
I would be seeing a Hep Doc or a Gastrointerologist, what I think your Doc is doing is adding 36wks from the time you cleared, thats not out of line, but what did he overprescibe?
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Avatar universal
I am on Peg-Intron and Ribavirin and Procrit,Marinol, backup Novolin
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Avatar universal
Is there anyone made a year and then no problems after
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30678 tn?1217989247
how many pills of the ribavirin did he put you on, (I'm assuming each pill is 200mg) that is normally the culprit for needing procrit, hey that rymes. With your weight at 100 lbs I'm trying to see if the dosage is way out of line.
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Avatar universal
I was started at 5 on redipen
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Avatar universal
I was doing a 5 redipen,5 pills a day
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30678 tn?1217989247
OK I am officially confused. I can't seem to answer this one, 5 in a redipen of riba? Oh well sorry, I tried.
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Avatar universal
PEG-INTRON
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Avatar universal
Be in charge is where to go if you want treatment
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Avatar universal
5 redipens a day and 5 riba a day? Could you list the medications, amt, and dosage instructions? You poor thing. That is crazy! I would get a different Dr. RIGHT AWAY!!!!!
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Avatar universal
That is not "over dose" that is the normal dosage.
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Avatar universal
5 REDI PENS A DAY????
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Avatar universal
Not 5 shots one shot a week 120ug 0.5ml
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Avatar universal
I think she means .5
No doctor would give out 5 whole pens a day nor would a pharmacy fill such a prescripton
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Avatar universal
I am down to 3.5 on the pen and feel like i need to come down more
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Avatar universal
also having to take 40,000 unit of procrit
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Avatar universal
Then you are on a lower dose than normal not an over dose.
The drugs make you feel awful and with some people you need Procrit or other drugs to keep you on the treatment. Sorry you aren't feeling well but it isn't because your doctor has overdosed you. At 3.5 you are under dose. Doctors do sometimes lower dosages on treatment for one reason or another, I'd follow his advice but also research it on my own because underdosing can lower your chances of clearing the virus.
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96938 tn?1189799858
I think Saphira has had her peg dose reduced, is on 1000 mg riba, takes marinol to combat weight loss and nausea and takes novolin (insulin as needed) and procrit for anemia.
Saphira it seens like you are about halfway done and have been undetected since week 12. Since you are geno 1 the course of treatment is 48 weeks.  Get regular lab work by your doc or hematologist is important to maintain your hemoglobin and regulate your dose and frequency of procrit.  What is probably causing most of the problem  is the riba, which causesthe anemia.  At your weight, at least 12 weeks in and with the anemia maybe you should talk to your doc about reducing your riba by one a day (down to 4 or 800 mg) Since you got to undetected (what you call remission) you should try to keep going to complete the 48 weeks.  Good luck.
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96938 tn?1189799858
How many different doctors have you seen in the last 6 months?  Do you see only a hematologist or did a different doctor perscribe the  Redipen and the ribavirin?  Where do you live?
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Avatar universal
Thanks for that infornation but this doc told me 52wks,even though the information I have got is 48wks
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Avatar universal
I am in tx.i had the biopsy done by gasronologist and he sent me to hematologist for the treatment
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96938 tn?1189799858
The usual treatment is 48 weeks.  Sometimes doctors aren't so bright and call 48 weeks 'a year'.  Whether it's 48 or 52 weeks it's important to stay on schedule with your redipen and the ribavirin.  To give you the best chance, you should be getting a blood test (complete blood count - CBC) about every two weeks.  Are you doing that?  Is it done in your doctor's office.  Who injects your procrit you, or do they do it in the doctors office.  Do you have any diseases other than hepatitis-c?
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