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WATER 101 --'Obsessively gung ho!', where are you???

way
WATER 101

When I first started TX I read this forum and it was (and is)my main source of information 24/7.

You ALL "drilled" into my head the IMPORTANCE and NECESSITY of water consumption during TX. Correct me if I'm wrong but the subject came up in every other thread, or maybe it just seemed like it...

This information has helped me more than any one thing and I believe it is responsible for my lack of sx.

It has been kinda hard for me to keep up(reading this forum entirely) with soooo many threads per day and so very long,(some of them). Its hard for me to be positive about this but I don't think the newbies are being told the importance of drinking LOTS of water. It hasn't been mentioned at all lately, Has it?? Some of the new tx'ers are really having a hard time of it from the very begining. (like Mishelli)I believe that water drinking was given as a remedy for sx.

I know some of you from from time to time post the meanings of the acronyms we use, for the newbies. I think we need to keep mentioning the importance of drinking lots of WATER--I mean let's get REALLY GUNG HO!!!!!!


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Avatar universal
your good days/bad days cycle sounds v similiar to my own-hmmmm....maybe it's the meds? i have also had lot's of body pain:old construction injury of left leg,sciatica,hands-yes!-and shoulders,neck,headaches,yada,yada,yada-what doesn't hurt would be a shorter list!.......my kitchen duty is next to nil;i eat yogurt,granola,apples,bagels,salads.....i am living on coffee& water.....my Good news?...i am at week 35 and counting down to 48!!!!! you are one tough cookie(if yu can forgive the baking allusion) and i know  you will complete the 72-my heart goes out to you & i don't think i could maintain your sanguinity and resolve.....when i finish trx ,i'll send you a pie-a cure-all for the blues
Flguy, hope your summer is going well.....enjoying goodtimes w/ the family..a much needed respite from this train wreck of trx-i guess that tree planting project can wait,eh?
Helpful - 0
Avatar universal
Hey you. Did you go on vacation? If so, hope it was a good time for all. Hepcinsd was looking for you and your story. He was thinking of cutting tx short because he is UND at week 13 and a 3 and wanting to avoid post tx probs by limiting drug intake...sigh. (I wish!) Too bad being UND isn't the time we get to stop taking this ****! Hope he comes by.
The first 24 were much worse than this round, this round I DO have good days occasionally. Pattern seems to be day after shot day for 2-3 days, down for the count, then the next day able to do a few simple things or make it thru a visit without passing out, run laundry, garden a little, make phone calls. First 24 weeks, down every day. Barfy and dizzy to passing out most every day. Guess I am "getting used to it" LOL I lost 20bs so I have cut it back to 1400/day I felt NO noticeable diff. between the 800/day and 1600/day, weird huh? labs have stayed normal, slight drop in Hgb is all.
It's been a real education, I am one of those overly energetic make others tired just watching me types normally. I hope at least some of that returns.
I am looking forward to March, I can tell you that!
Some days I feel I cant keep this up then I get up the next day and do it again.
like Goof said, " I keep putting my left foot in front of my left foot"
Being stubborn is finally paying off.
Nice to see you, guess you will be joining me soon.
Helpful - 0
Avatar universal
Called my Gastro last night. He hasn't had any patients having stones caused by tx. Told me what I didn't want to hear. Drink lots of water!!!!!!
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85135 tn?1227289772
Sorry about the late response to your question. I
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96938 tn?1189799858
72, almost non-stop. What a trooper.  Did you feel as 'almost housebound' for the first 24, or was that the result of the increased riba and the whole length of parts 1 and 2 together.  No wonder you like to see a man in the kitchen.  It means you can stay out of it.
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Avatar universal
How about putting lemon in your water?   After  awhile water just tasts like.....you know plain water.  Lemon helps me drink more of it.  Would lemon hurt while on tx or does it really not matter?
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Avatar universal
Hi, I will be starting tx in fall. I too hate water. I have been drinking weak ice tea with no sugar just some lemon and if I add fresh lemon to ice water I can get that down. Not as much as the tea. It is hard drinking so much, I hope to get used to it by the time I tx.
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Avatar universal
i kept it at 6 to 8 glasses of 8oz daily, more made me sick. listen to your body. not everybody needs the same amount.

http://www.cnn.com/HEALTH/library/NU/00283.html
Helpful - 0
96938 tn?1189799858
Watch out if the tea is caffenated. Sometimes sleep is hard enough to come by while you are on tx.  Tea, if caffenated, can comptete with your need to rest.
Helpful - 0
Avatar universal
I drink between a gallon to a gallon and a half a day.  The Walgreens Specialty pharmacy, who assist with my medications questions/issues, recommended you take your weight in pounds and divide by 2 to get the total number of fluid ounces you should drink a day.

Also, like coffee, ice tea contains caffeine which is a diuretic and can result in dehydration.  I can't recall but it's either the peg-IFN or RBN which also is a diuretic and a large part of the reason for the increased water consumption and need to avoid coffee and tea.

Helpful - 0
85135 tn?1227289772
At one time during tx, I had a bad case of brain fog (once?) and let my water intake fall to about half of  the recommended quantity. After one week I was having some back pains and on the next day, as I was absently rubbing my back, I realized it was my kidneys that were hurting, not my back. I immediately upped my daily water and by the next day the pain went away.
That scared the **** out of me and I never forgot again. That
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Avatar universal
I didn't even think about decaff!! I drink tea all during the day - sometimes w/lunch I'll have a diet ice tea-once I am home I do all water-occasioanlly some juice or green tea. It drives me insane getting up so much during the night. Hope that gets better.
Helpful - 0
Avatar universal
I am in the water camp big time. I am on week 50 of 52 and still sometimes forget to drink enough water and get terrible headaches. As soon as I up the water intake I feel better. I drink it room temperature and find that makes it easier to knock down. An added benefit for me was weight loss--by replacing all my juice, soda, red bull and iced tea drinking with plain old water I was able to lose 50 pounds on treatment (which I really needed) even though I never lost my appetite or had major issues with nasuea. Now I've just got my fingers crossed that I can keep it up once I go off the  "Pegasys Diet"!
Helpful - 0
131817 tn?1209529311
I never liked water by itself before tx. When I began tx, I decided it would be the only thing I drank. That made it much easier to give up that coke and other things. Now I have become used to drinking water and that is basicly all I drink. I get tired of it sometimes and will drink chocolate milk or milk. But I usually just grab that cold water and it tastes great!

I have heard that lemons in the water makes it easier to drink.
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Avatar universal
Wow, that kind of scares me. I have had kidney stones twice. Just a week ago and then about 11 years ago. It seems I am missing something that breaks down calcium in the kidney. Nothing life threatening, my Dr. knows and never said anything but now I am worried will tx cause stones as I have read on many threads if you already have an existing problem tx will increase it. Other than the 2 stones I have never had any other kidney issues. My gastro is aware I had stones and never mentioned tx would cause my kidney any problems. Help Anybody!!!!
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Avatar universal
I have been coming to this forum for a few years not always post but read it whenever I can.It does get very long to read in here sometimes and not always about hepatitis c either sometimes it is stuff that can be said on a chat forum.It is very important to drink water when you are on interferon but some times it is said in here that you drink it too much.I treated 3 times and it helped me to drink water but my doctor advised me not to go overboard with it because it is hard on the kidneys.For new people coming to this forum please check with your doctor with everything you do even how much water you drink. Slow
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Avatar universal
Prior to tx, I averaged drinking about 100 ozs per day (had to because I exercise alot).  Since starting tx 19 weeks ago, I now try to do about 130 ozs. a day & I have no sx...  I believe in lots of water...
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Avatar universal
Water is good - it is almost all I drink anymore but sometimes it is hard to want to drink it.  I was really good at first - even filling a gallon jug on weekends and making sure I drank it all.  Now I am not so good, but I try never to have an empty glass.

How much is enough?  I think the standard is 1 ounce for every 2 # of body weight, but, you know, that is supposed to be normal water consumption.  I think we need more than that to stay hydrated on tx.

Tea?  Maybe use it as a treat, but not as the main source of fluids.  The thing about water is that it is an aquired taste (which is an unfortunate thing) but once acquired you will find it is the only real thirst quencher.  So try to have a glass of tea only after you have chugged a glass or water.

gonnabeat it -- good luck Friday.  I try to drink a glass of water before the shot (maybe with your tylenol) and a full glass later.  Otherwise, I will wake up in the night thirsty.
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Avatar universal
way
Chevygall55-- Thanx for that study--I WAS TOLD on this forum that geno 2's could treat for 16 weeks if they were und. at 4 week pcr. (and given the studies to prove it)and I had to fight for a 4 week pcr. Funny..I told my Dr. about "the studies" and he countered with "there are MORE RECENT studies!" Well I'll be darned he was RIGHT all along. Whooda thought?
I was planning on tx for 24 weeks,(even if UND at 4wkPCR) UNLESS the SX were prohibitive.

I don't think drinking anything besides water will be a good    substitute for water --with the possible exception of clear juices(?)I do divide my weight by 2 and try to drink that number plus a bit more in oz's.
I fill up two 16 oz bottles and put by the TV that way I don't have to keep getting up --except to pee.
I DRINK IT AT ROOM TEMP-- that way it's easy to chug a half bottle down at a time--I squeeze the bottle while drinking and it goes down fast and easy.
IMPORTANT--I quit drinking an hour before bedtime and it seems to help with the getting up at night peeing. I still do but not a bunch.
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Avatar universal
I never thought about drinking water at room temp.  I always put loads of ice in mine.  You are right though,  making it room temp you can chug it and not get those darn headaches.
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Avatar universal
thanks for the address... 2b and i only did 15 weeks due to procrit not working.  svr at 3 mon, have fingers crossed for 6 month pcr in august.  i keep thinking about rifleman...think he did 12?
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Avatar universal
I am 2a and 2c.   I won't try tx until Sept. I will have to remember what you two are talking about.
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Avatar universal
I slowed down on water later in treatment, I couldn't and didn't want to gag it down any longer.  After 43 weeks of 72 I could not do one more bottle chug, just couldn't.

As the doctors say though - as long as your LIQUIDS intake is good...same thing.  I prefer to drink lots of juices and iced tea in the summer so I've been doing it that way.

The liquids (water) do help with the dehydration factor for sure (ie: riba rash, skin peeling etc) but using the Gold Bond does too. Hydrating from the inside and out is double trouble.

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Avatar universal
It so hard to know what and what not to do. I read here every day to prepare myself but at times is gets a little overwhelming. I kind of rely on those like yourself who have been here for a while.You guys give me much needed strength.  I guess we all just want to do it once make it work and be done. I have to go back to my Dr. b4 starting, guess I just start another list of questions. I have learned so much just from reading all your posts. I wish I had known about this place years ago.
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