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116701 tn?1210259164

Weight and affects of noassatol

Started treatment on November 25th and weight was 206. Today I am at 176. That is a 15% drop in body weight and it doesn't appear that it will improve in the near future. Is this typical for most people? I refuse to buy clothes hoping the weight will come back quickly after treatment ends in October.
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131817 tn?1209529311
My carpet guy is here trying to figure out how to get 5 kittens out from behind the foundation where there is a hole only big enough for cats. He is a REALLY nice guy. He's been doing this a long time, so I wonder too. His partner looks like he's been offgassed. Nice but not sure how he does it anymore.

Thanks for the tips! After these grandbabies and my heaving get through with this carpet, I will probably have to tile it. John will kill me if we do this again anytime soon!
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Avatar universal
To tell you the truth, I'm not exactly sure about the pole cat.  My ma used to use that phrase, I think she was referring to a skunk tho.

Carpets-Off-gasing is just that.  Let it air out, actually blowing it out works.  I hate to clean a carpet so new since the protectant is actually baked on in the mill and all a cleaner can do is spray more on, work it in and let it cure 24 hours.  That means noone walking on it at all.  Then again, you really only need protectant where you walk since traffic and the grit it brings with it actually wears it off the fibers.

Just a warm water rinse might help too.  Course the cleaner would charge the same.  That equipment isn't cheap. There are a lot of different carpets out there now. I would call the manufacturer of your brand of carpet and specifically ask about offgassing and the use of formaldahyde. It might be outlawed by now.  What kind of pad did you put down?  Did you put new underlayment?  It would really be a shame to have to clean it so soon.

I had one customer so sensitive to the off-gasing that nothing helped her and ended up moving after putting in the new carpet.  Ever wonder why carpet installers are a breed of their own and never, ever reliable?  Me thinks it is years of offgassing but what do I know?  lol

miss
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Avatar universal
ferrets are in the pole cats family, that is all I remember.

tips on posting with brain fog; go to file and click on 'new window' if you have it set right, you get a copy of the window you just had, that way you can slide the thread window, to remind you of what the thread was about, while typing in the post a comment windows. the key is to have two windows, one with the thread and one with the comment you are posting. It worked the best for me, especially with long posts.
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116701 tn?1210259164
Exercise ha ha ha ha ha ha ha ha ha ha - tying my shoes exhaust me. standing up means I have to be still and let my breath catch up, I think a doctor needs to take a month of this treatment so stupids don't jump out of their mouths. A long walk for me is when the emergency pee alarm goes off in my head at 3:00 in the morning and I have to jog (slow drunken walk) to the bathroom hoping I don't overshot and land in the tub.

Are you a 1A? That is what I am. I keep trying to find some similarities between people when symptoms are the same. You have been my closet match yet. Tell Walter there are two of us mutants out there and hope he doesn't bolt for the door.

I hope you are having a feel good sort of day today. Tomorrow begins my down time from the Copegus and Neupogen shots. Dale
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131817 tn?1209529311
Where do you live and what is a Pole cat? The only pole cats we have around here are the ones in North Beach that swing on their poles.
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131817 tn?1209529311
That is a good thought about the carpet! The vomitting did start after the carpets were installed, although one other time this happened before carpet. What do you do to get it out? Also, any tips on cleaning w/o ruining the stain resistance and spotting tips?

Hey, what did you make for dinner last night? A gourmet meal, I hope. LOL

Ms. O: I get the same reaction about 24 hrs. after shots. 80 degrees in the house and I have 6 blankets on. I put a wool hat on and get under the down comforter too. The hat really keeps the heat in your body. It may look like a sight, but who cares?
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116701 tn?1210259164
Hey Don:
I figure they can use us for sign post if nothing else. Shove our boots in the groung and nail a stop sign to our foreheads. Problem with clothing is if I bend down I don't have plumbers crack I have a full mooning. I guess the great thing about the riba is that I don't care if my butts hangin out anymore.

This strange taste disappeared at one time and weight held but now it is really bad. Sorry you are having trouble with the heaves. I have been lucky in that area and not experienced them YET.

I've got 16 more shots after tomorrow. Time is starting to drag on me too. Take care of yourself and keep me posted on what is going on. Dale
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100019 tn?1335919717
I told Walter last night that you and I are having the same sx's in about the same way.  My GP keeps asking me about exercise and I finally got to the point where I just look at her like she's nuts.  She says "yeah okay.  After tx".  Next time I'm using your line about getting all the exercise I need stretching in bed and hoping the pain will go away.

AAAHHHH, the fevers.  Forgot about them.  I take my shot Friday and in almost exactly 24 hours the fever begins, it runs 100 to 101.5.  Comes along with my entire body aching.  I'm usually in bed with 5 blankets.  Sunday the fever is usally gone but I'm wiped out from the day before.  Monday night I take the procrit shot and in 3 hours it starts all over again.  Fever lasts Monday night and then for the next two days my body just hurts.
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Avatar universal
All you folks talking about heaving make me jealous.  I can count the times on two hands I have done so in my entire life!  There are times I sure wish I could.  

"Believe it or not"

sfbaygirl--Just a thought on the new carpet.  Did you start getting nausous about then?  Or did it get worse?  For years I had a carpet cleaning business.  We did a place with carpets about six months old and both ended up in the yard sicker than pole cats, went home and stayed in bed til the next day.  New carpet used to have to off-gas for a spell.  Used to use formaldahyde in the making or curing of it thus the need to off-gas.  

They may have changed this but wanted to share my experience with you.

miss
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96938 tn?1189799858
You need to add a couple of spaces between groups of letters. Very good DR.  When I first read it I thought it was a steroid.
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116701 tn?1210259164
I'm tall so I am taking on the appearance of an anemic scare crow being used for the second season. When you can count your ribs from both sides its a little much. The old saying that you can feel your belly button dragging your backbone has come true. I think fewer of us have this type of weight loss the the reverse. Doctors advise to me was eat anything that tasted good to me and not to worry about if it were good for me or bad for me. Can't stand the taste of sugar so that illiminates a snacks right off. Your husband may do fine with this treatment. As far as being inactive I get plenty of exercise every night laying in bed stretching my legs and hips and ankles hoping they will stop hurting soon. Luckily with the brain fog you don't remember it the next day. Good luck to you and your husband. Dale
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116701 tn?1210259164
This is a condition brought on when ones cheeks flatten out to the point ones pants must be suspended with sky hooks. I am told I now look like a bull frog in a pair of pants walking away. Sorry for the curve ball. This group has taught me that there is always more said between the lines than on the lines. It helps fight the fog back some. If you need a prescription for Noassatol please let me know and I will forward it to you:) Dale
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116701 tn?1210259164
Man Beamer with all of that juice you are getting beat up pretty good today. Can you space those suckers so it doesn't roll in on you so hard?

PS I have jogging pants with a choke string on it. I hook them over  my hip bones and hope they stay there. Otherwise I just walk around like the Jerk with them gliding around my ankles:)
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100019 tn?1335919717
Man, did you ever hit the nail on the head!  You have no idea how many times I've started a posting to someone on here and cancelled it cause I just didn't have the energy to finish my thoughts or typing.

Between the fatigue, the lethargy, the gas, metal taste I could go on and on.  The cold milk doesn't do it for me, but I haven't tried the cheese and crackers.  I went thru a period where the only thing that sounded/tasted good was chili dogs.  Then one day I woke up and the idea turned my stomach.  I used to love olive oil and now the smell drives me nuts.

And the job.  Good grief.  They have been good, but we're a small company and I know he'd rather pay me to be here even if I'm not doing anything, but I do feel like I'm taking money for nothing.  BTW, isn't that a song?  Of course, if I'm not here or contemplate it I feel guilty.

Enough of my blabbering.  At least we'll come out of this with our jobs.  :)  Take care Dale - I do think of you often.  Even if I don't write.  Valorie
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Avatar universal
I started treatment at 176 lbs and hit a low of 148 lbs. At 15 or so weeks post treatment I am now at 172 lbs. Regarding wardrobe purchase, yes, the pants I'm now wearing are mid-treatment purchases and what once was loose, now is snug.

-- Jim
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116701 tn?1210259164
That is good news that you are back up in size. I've rocked along for 20 years at this 200 mark and the loss has really concerned me.  When this treatment is over I am considering growing a gut and wear it like a trophy. How is all going with you - weight gain - good. Is everything else getting back to a good normal? Dale
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100019 tn?1335919717
If your looking for something funny to make you forget your sick for 70 minutes check out

Jeff Dunham:Arguing with Myself  I had my local video store order it in and my husband and I watched it three times.  It's hilarious and for over 3 hours I forgot meds, HCV and everything else.  It was great.

It's the funniest video I've seen in months.

I'm so sorry to hear that your feeling so bad.  I do sympathize.
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108191 tn?1199599905
Mrsockert, I feel the same, the lethargy, the fatique, the horrible taste in the mouth, and starting to type a comment and forgetting what I was going to say.  Now, I am choosing to just post here and there.  How far along on treatment are you?

Dale-Ray, you are funny!  I used to be very thin, that was when thin was not in.  But you remind me of me in those days.  Now, I am just a regular normal weight, a little over, but medium sized, as my NP says.
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116701 tn?1210259164
Hey Beamer:
Sorry your having a grinder of a day. We never know when to expect them do we. Maybe it will let up soon. I wish I could just shake this fever thing. What are you dealing with today is it the fatigue, breathing or just feel like C**P. C**p seems to be my new word to cover everything lately. You're like me we both seem to disappear from here when we fell the worst. I read the post I just don't feel like engaging in the conversation. I hope you're feeling better by the time this email gets there my friend. Dale
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Avatar universal
I am starting tx in Sept. What is Naossatol?
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Avatar universal
LOL...wel it isn't a new drug..
no a$$ at ol...get it?
he's losing weight, has no derriere
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108191 tn?1199599905
Cuteus, I am on pegasys and copegus, and even though I have a metallic taste in my mouth, I still can eat anything I want.  I haven't lost nor gained a pound.  I do crave fruit, however.

motheroffour, your husband may or may not lose weight.  My NP told me if I lost a lot of weight (would have been nice), that they can mix up a concoction that would keep from losing too much weight.
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Avatar universal
I feel like an ***. Thought it was just something else for me to worry about. When I read about this much weight it really  Scares me!
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Avatar universal
It's against the code of our generation to toss Levi's! Every patch a memory. They aren't any good until they are lived in anyway.
Hope you are still in the ring slugging away at these beasts.
Seen any good movies lately?
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