I'm still in much agony and don't know if I want to take this any more. Going to Dr this Thurs for the results of a super viral test that is suppose to give you a better count of viral load. My last one was <43 but in my opinion my body is just not strong enough. We shall see. Also major blood cell problem. I swear if I was just a stage 1 I would have held off until the next treatment is available (2-4) years. Take care and want to let you know I think of you!
So sorry to hear about your ordeal but glad that you are on the road to recovery. Just get yourself better and worry about the hcv later.
Sorry to hear this keep positive thoughts, and I'll be sending positve thoughts your way!
Wow. It's almost like there are two fighting this at the same time. The 'conscious/will/spirit' and the 'body'. The body ultimately has final say. Nothing to do about it but fight the fight. It can not be said you didn't fight hard. There is the adage, what doesn't kill you makes you stronger. Next time out you're going to KO this sob.
Pneumonia and low potassium (ah I had that treatment it was horrible!!!!!!!). It's a darn shame that it happened to you I have never heard of anyone getting this sick from the meds and wonder if it was just the other complications going on that exacerbated it so greatly.
Whatever I hope that the next time around you can stay on full term and have no outside illnesses to set in to disrupt treatment.
Thank you for sharing your experience. It sounds scary. I'm glad that you had some concerned and involved doctor and friends. When you get that sick you just can't fend for yourself.
I'm wishing you a successful recovery and a good outcome from TX.
willy
so sorry to hear about your ordeal. thank god you have caring friends. take care of yourself and get your strength back. best wishes for you. belle
I am so very sorry for what you have gone through and so very grateful that you had friends that could see you needed intervention. I am sure there are others not so lucky
The Incivek is horrible, I just finished 12 weeks and am now dealing with anxiety from stopping the Incivek. I think it is true, we are all wo up on killing virus we sometimes forget the host :)
Bless all of you. I feel as if you are all part of my family..
Have a great day!
Dee
So sorry but it sounds like your in good hands and you will recover. I wonder what was acting so bad, I know the inc is horrible im sorry to say from personal experience, but if you were also having a reaction to interferon or the riba also. I am at shot 31 and the riba inf combo is a walk in the park compared to adding the inc. to the mix. For all our suffering you would think it would be 100% effective for everyone. hopefully they will break through that block soon. Best wishes to you
Lydia
Sorry to hear this. About 1 out of 12 people are going to have to discontinue tx altogether now that PIs are being used. The makers of the drugs admitted before they were approved that the discontinuation rate would aprox. double from 4% with SOC to 7-8% with three part therapy. To me, the British system of trying Peg/riba first and only using a PI if that doesn't work makes more and more sense.
The 4 week UND and strict compliance with the meds is all good. Hope you have a rapid recovery to full health. Take care.
Good to hear you're ok at the moment. That's what matters the most. We all hope and pray the 10 weeks did it for you. Best wishes to you.
Get well soon! Heart goes out to you!
That sounds entirely awful... Hope you start to feel better soon! Fingers crossed for you.
Sue
I am very sorry to hear of all of the problems you had and am so happy you are home and feeling better now. Here's wishing that you will still reach SVR.
Hello dream, Very sorry for your pain. Sincerely hope that your 10 weeks is enough and you don't have to do any further treatment. But, if by chance you relapse here is an option. If you can take it, that is good. If not, at least you know that there are going to be other options available to you and others like you in the future which are far more benign than what you have, somewhat heroically, just been through. I have posted this link in my journal in case you forget and for the benefit of others. It is all I could find because I don't think it is starting immediately and it is not at clinicaltrials.org yet. It is an extension of an ongoing trial and I guess the contacts would be whoever is doing the other one. I'll have further info in my journals page when I can find it. They are doing preliminary assessments now.
http://www.dailymarkets.com/stock/2011/11/04/new-12-week-interferon-free-treatment-arms-added-to-all-oral-combination-study-of-psi-7977-and-daclatasvir-bms-790052-for-hcv-genotype-1/
Sorry to hear of your troubles.
Don't rule out being cured with just 10 weeks. I think you have a very good chance.
Stay confident.
I hate it for you that you became so ill. I know about being stubborn and I am glad your friends were there to get you the help you needed. I am hoping you feel better soon.
Wow~ this is such overwhelming news. Its a good thing that you are now on the road to health. Take care of yourself, rest and regain your strength.
Best of luck,
OH
so sorry to read of your experiences. the fevers you were experiencing was something else. sounds like it could have easily gone the other way without the care you received.
blessings
eric
I am so sorry to hear of all this. What a nightmare. The good thing is you listened (finally) to your body. And was treated and your home now. You stopped treatment and with all hope and prayers and miracles Maybe you clobbered the virus ! Maybe ! If not , get rest, get healthy and wait and see what comes down the pike. Its not going to be too much longer and they will have a sure thing for this dragon. Many Blessing and Prayers to You. Carrie
I am so sorry of hear about how bad it got for you. I hope you can just rest and recover for awhile. You have some good friends who acted on your behalf.
Who knows, with 10 weeks of INC and being clear at week 4, you still have a chance. When will you get another PCR?
frijole
Eureka beat me to it; no fair killing the host to defeat the virus. Get well, recover and hit it again later with a different plan laid down. Best of luck to you,
--Bill
Sorry to hear about this,
Oh my...it sounds like you really got put through the ringer on this regime.
Take time to heal and it looks like down the road a ways,there very well may be something else you can try without having to endure all you went thru..
Best to you...
Will
What an ordeal! I'm so sorry you've had this set back. I'm glad you have friends that are looking out for you. I hope you continue to feel better. Take care.