It's a little hard to follow your post, but, if I understand correctly, you are not currently treating you HCV and you are stage 4 cirrhotic. You say that HCV treatment will kill you, is that your opinion or you doctors? I do not know much about cirrhosis, so maybe Hectorsf will chime in. I know that cirrhosis will kill you, for sure, and, if your doctors are not taking care of you, then you definitely should get a second opinion...good luck...Mark
I should have said that UN-TREATED cirrhosis will kill you for sure...Mark
I would definitely get another opinion. You need to try and treat the HCV. Even if treatment don't work your liver will get a much needed break and also a chance the damage could regress some.
There is a great hepatologist by the name of dr shiff in miami. Here is a link:
Best of luck.
I believe that I understand your post.
You have HCV and advanced cirrhosis. You are suffering from a number of symptoms including HE.
You have excellent Hepatologists in Miami (are they with a transplant team?)
You are being treated for some symptoms but no curative treatment.
At this stage of cirrhosis your Hepa's are telling you that you cannot treat. That sounds correct to me.
"Now I await the excuse for not taking away the gall bladder" They cannot risk surgery with your advanced stage of cirrhosis.
The best person to advise you is Hector and he will hopefully see your post and reply soon.
I can only tell you that I know what you are going through must be frightening and lonely and you should stay in touch with this forum and the Cirrhosis forum. People care and will be here for you as much as it is possible to be there for someone in the cyberworld.
Stay close to your Transplant team and call them when you feel you need more assistance with treating your symptoms.
I wish you all the best, Capthayes.
People with ESLD cannot treat with the current SOC.
There's a lot wrong here. If possible (and I hope) you should get to a teaching hospital. This is what Hectorsf would say. I don't like that there blowing you off. Did you have a biopsy? I don't understand are they just treating your symptoms. Cap this is very sad! I'm hoping hector comes along for this one. You can post in the cirrhosis forum, possibly rpooo can help out. Hang in there Cap!! Kitty