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YOU HAVE YOUR OPINION AND I HAVE MY DR.

mrodriguez112704
05/23/2006
C5  NYGIRL THAT IS YOUR OPINION AND YOU ARE ENTITLED TO IT. I KNOW ALL OF THE SX I MENTIONED WERE ALSO THE SAME SIDES THAT I GOT WHILE ON TREATMENT. LET ME JUST RE-CLARIFY, MY MOTHER AND MY DAUGHTER AND MY ONLY SISTER HAVE HYPOTHYRODISH, HUH GUESS THAT ALSO MADE ME A CANIDATE. ONCE AGAIN, MY HEP C CLASSES SAID IF I WERE EVER GOING TO HAVE THYROID PROBLEMS THE MEDS. WOULD SPEED UP THE PROCESS. ON YEA, ONE OTHER THING I LOSSED 33 POUNDS DURING 6 MOS. OF TREATMENT AND WITHIN 2 MOS. OF STOPPING TREATMENTS I HAD PUT 18 OF IT BACK ON, KINDA QUICK DON'T YOU THINK? WELL ANYWAY LIKE I SAID YOU ARE ENTITLED TO YOUR OPINION BUT I TEND TO BELIEVE MY MD WHO REALLY TAKES HIS TIME WITH ME AND ANSWERS ALL MY QUESTIONS UNLIKE MY HEP DOC. AFTER THIS POST I HAVE NO DESIRE TO COME BACK TO READ COMMENTS SUCH AS YOURS!
52 Responses
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Avatar universal
Why are you yelling?

I'm not sure what ny said but I'm sure she was just trying to help.  Please try to relax.  It is not good for any of us to get worked up.
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Avatar universal
If your thyroid test showed you needed thyroid meds then it appears you're doing the right thing. I'm sure NY Girl just mis-read your question where a number of non-thyroid related tx symptons were mixed up with the thyroid issue. I got a bit confused as well, and frankly don't know that much about thyroid issues as my tests were pretty much normal on tx.  

NY Girl is a great help to others here, and like yourself is also on treatment and deserves our respect.  Hopefully you will get beyond what appears to be misunderstanding and stick around and contribute.

-- Jim
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Avatar universal
the CapsLock light on your keyboard can be your friend. :)
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Avatar universal
I agree with alady.  I have never seen NYGIRL do any thing but try to help all here.  She is always the first here for all.  I'm sorry you feel this way but her only agenda is to help.
Please relax and take a deep breath.

PEACE!

BEAGLE
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Avatar universal
It was my first day on today & wasn't easy sharing my problems w/strangers & ny girl helped me & gave me good tips...  maybe we posters aren't doctors, but are all going thru this together & can share experiences...  when I told my doc about bumps on my neck, he said it had nothing to do w/my pegasys/riba treatment... so thx to all of you (incl. ny girl) for letting me know about the riba rash
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Avatar universal
I have only been here a few days and everyone has been so very helpful. There are some things that are difficult to hear, but everything said is for our benefit.
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116701 tn?1210259164
Dear Mrod:

I'm sorry your health has not been the greatest of late and it does sound like some family genes are involved in your symtoms. I hope things get much better for you quickly.

I can promise you this about NYgirl (Debby). She is an encourager. Picked me up and hug my ugly mug on the first day I found this forum. She cured my riba rash when my doctor didn't know what it was. She is a loving spirit who I am sure has her little feelings hurt right now. She is not confrontational and has let me slide on things I shouldn't have said many times. This hep C treatment changes us and we have all been through a lot together so don't give up on us and no matter what we won't give up on you. My hopes are for your good health. Dale
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Avatar universal
Hey, haven't even read the threads, but I do know you can disagree with NYG, no problem because we all have different opinions, on different subjects, but some of these folks, including NYG have done their homework.... and you know what?  I adore my Dr., but they know more about Hep C and what is current than he does....

Just my opinion,  and we all know what thats worth!!!
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116701 tn?1210259164
In Tennessee its worth about $3.12 a pound for the good stuff. I can't seem to get any takers on my premium opinions and it's starting to age and turn. Hope you are having a good day. Dale
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Avatar universal
Hola

Quisas fue una equivocacion de los dos/ Maybe it was a misunderstanding on both parts.

We aren't all going to have the right answers or say the right things sometimes, or  be understood the way we want to. But we're all here to help eachother. Some might not have any other words than " I'm here". But even that can be a blessing. Please don't give up so easily on the forum, or nygirl. There is a world of info and good people on here.

Good luck...and welcome to the forum!


2hep2it

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Avatar universal
Thank you for your kindness and understanding.  I don't remember WHAT I posted to you that set you off this much but NOTHING ANYONE EVER SAYS ON THE INTERNET SHOULD EVER AFFECT YOU SO MUCH!  IT'S THE I-N-T-E-R-N-E-T!

I've tried to be helpful here and have disagreed at time with other opinions. We OFTEN do because we are individuals. But I don't remember EVER being rude and yelling at someone like you just did.

Perhaps I started to write to you and then closed the page (I am at work typing as fast as I can while I try to participate and HELP) and then opened it again and didn't continue on the same subject. Perhaps I read it wrong. PErhaps I'm having wicked RibaRage or PMS.

But as a member of this board who has tried HARD to help = who has tried to put the MISCONCEPTIONS THAT DOCTORS INDEED HAVE (ie: doctors don't GET the ribarash and think we are CRAZY...they don't KNOW how much the lotion helps because they've never HAD IT and are NOT A REAL HEPATITIS PATIENT THEY KNOW WHAT THEY READ AND THAT IS ALL) but I try to give advice on WHAT I HAVE EXPERIENCED to HELP NEW MEMBERS I don't feel like you should have yelled at me.

In all the time I"ve been on this board I've never been that RUDE to someone except maybe CanDo or Beagle or Jim or FLGuy...or someone I was joking around with!

MY doctors here in New York have encouraged ME to continue treatment while taking thyroid medications to replace it's function...because at this time there is no pill to replace the liver function so essentially I am trying to protect it since I can't live without it (but can easily without the thyroid).

I am glad that you have such faith in your doctors.  If you could not handle doing treatment then certainly it is your perogative to quit! As a strong willed woman I prefer to continue...as hard as it can be.

But I certainly don't yell at someone like I took too many Ribavirins one day. I'd say offhand it's a good thing you quit.
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Avatar universal
I can't find my evil post...do you guys know where it is? Can you tell me what I said?

God you try and help and then you **** people off. I hope I didn't say something really bad - so much for posting at work but now that I dont have my home pc it's all I have waaaaa.

Please advise.
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Avatar universal
Hey kid, we like being rude to each other. That way we can make up. :)
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Avatar universal
It's that makeup thing that everyone knows is the BEST!  ;)

(Wish I could type what I want to here but ... trying to be good right now for a change!)

Thank you for making me smile. I wanted to cry and you stopped it...once again you dirthead.   :)

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Avatar universal
I tried to find it but I couldn't.  But as you know, I am a virgin today -- my first day on.  (I am actually playing hooky from work).  As I posted above, you helped me with the riba rash.  My dr (gastroenterologist) said it has nothing to do w/treatment - so THX TO YOU!  I hope if I have any other questions to ask you, you won't mind... thx again for making me feel welcome on my first day on this forum -- 36 weeks to go!!!
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Avatar universal
Don't let it bother you girl, And no remember them words that you ran together showed up. Then a bunch of us had to bury that post. Smile sweety.
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Avatar universal
Dirthead? Wow...I hope I don't ever become a good internet buddy like Can-do-man.lol. I hope this thing passes with you and MRod. Things like this happen all the time. As they say in New York ( I'm Puerto Rican ) "don't sweat it". Muah!
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Avatar universal
I finally found the post and I sort of stick by what I said...regarding thyroid testing there is NO NEED to have one randomly because you have brittle nails, lose weight and hair.  THOSE ARE common side effects of treatment.

Any doctor worth his salt WILL BE monitoring your thyroid DURING TREATMENT as a precaution ANYWAY.

What we don't want is EVERY NEW PERSON who comes in here saying wow my hair IS falling out, I am losing weight...I bet my thyroid has problems!

I do have the thyroid problem - and the symptoms do MIRROR each other but I would never have known had my doctor not been having me have blood tests all the time.

As you were obviously hyperactive thyroid it is dangerous to your heart - and why you lost so much weight.  My thyroid went from hyperactive to HYPOactive and if you do not know yet this is the most COMMON THING TO HAPPEN to a hyperactive thyroid problem - it SWITCHES AROUND and that could be why you are gainning weight so fast so please keep an eye on it.

I TOO HAVE A DEAD THYROID and one would think we are in the same boat.  

And I guarantee you some new readers might NOT have known these side effects MIRROR each other and they WOULD have thought perhaps the wrong thing for no reason.

That is all. I apologize for any misunderstanding. Please next time if you are around don't YELL at people who are generally LIVING THROUGH WHAT A DOCTOR IS NOT. They do not ALWAYS know how everything goes believe it or not because they have not LIVED through it.

I would NOT however go against my doctor - but I do question him OFTEN and MANY times he has thought about things and then AGREED WITH MY POINT AND has CHANGED my course of treatment because I BROUGHT UP THE POINT...NOT BECAUSE HE THOUGHT OF IT.

It is my responsiblity to learn as much as I can and apply it to MYSELF because everyone is DIFFERENT and my doctor well he's never had HepC so he doesn't REALLY know it all. I hope he never has to.

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Avatar universal
NYgirl?
    We do have to keep an open mind about whats real and what not on the internet. I find that some ppl really have no life, well what i think is no life and find the need to come online and seek recognintion. I wouldnt like to think of u as just being another name behind this computer, some ppl hang on ur every word and take whatever u say to heart.... it's to my understanding that many of you have become really close..

gotta luv ya though
  peace out!
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132578 tn?1189755837
bite me.
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116701 tn?1210259164
Hey Debby:
Don't let it get your panties in a wad. I haven't even looked for the alleged thread. I won't because I know how you express yourself (very well)and even in disagreement you never screw with anyones dignity. Your cool kid so let it go and get back to helping folks. Like me. Who loves ya! Dale

I meant to do this in caps to show emotion but wasn't sure how it would come out - ha!
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Avatar universal
Thank you so much.  (Now see if I was guaranteed you knew i was kidding around with you I would call you poophead or something REALLY adult but I've already had one problem with a misunderstanding today and can't alienate anymore members already!)   :)

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Avatar universal
Dirthead? Wow........... Thats one of the sweeter things shes called me.:)
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Avatar universal
I looked for the post and couldn't find it either.  

Don't worry about what happened.  It is easy to misinterpret things we read on the internet.  Even if you did stick your foot in your mouth, you wouldn't be the first.  I have done it many, many times.  

Shall we all move on now?
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