am i still the only one with total hair loss?

[Columbina]

Yep 9 months post treatment and my head looks like a lawn of a forclosure home.  just a few patches and one or two eye lashes.  Most of it all falls out with any friction, like a pillow or rubbing my eyes. seams like fog is a bit better but things like spelling or playing music not so good.

[Columbina]

thank you all for your comments.  My doctors think it may be an auto imune response triggered by the treatment.  The little bit of hair patches that has grown on my scalp, i am told by my doctors, is really more like arm hair.  Well i never thought about it but i guess arm and head hair are very different.

[Junebug812]

I am in week 18 of tx and my hair started to fall out a couple of weeks ago. The loss is accelerating but only looks thinner at this point. No patches. Lots of other sx as well. I don't think I'll end up balding though as I only need to do 24 weeks of tx.

Good luck with finding a solution! The only thing I've heard is to keep hydrated but I'm certain you've done that one.

[missy_jasons_girl]

My doctor told me I'd be bald in a month.. I'm 5 months intoo a 48 week tx. My sx have been horrible, my hair is falling out in chunks...I have found no remedies!! :(

[nygirl7]

Yes apparently you are the only one (still) who this has happened to - it is not common for anyone with HCV tx to lose all of their hair.

[meakea]

P.S....  Since your hair loss has hung on longer than is typical after treatment, has your doc considered looking to see if it's an autoimmune response brought on by treatment?  I believe that allopecia can be considered an autoimmune response.

[meakea]

Columbina, treatment was very hard on my hair too but it sounds like you took an even bigger hit.  My hair started growing back within a few months post treatment BUT it didn't have a very long life cycle.  It would grow to about 1-2" and then fall out again.  I am currently 1.5 years post treatment and it is only now that my hair seems to have found peace with a longer life cycle.  However, I did not have bald patches once it started growing back in after treatment...it was still falling out after a sort life cycle but it did not leave bald patches.  

Has your doc tried treating you for alopecia?  

[Columbina]

Thank you for your suggestions. My thyroid is fine, as is my liver. My doctors have never seen anyone with my strong side effects.  The Dr.'s were sure my hair would grow by 6 months post treatment but when i remainded a chrome dome they just said they had no idea what to do to help.  So I am looking for anyone else out there with a similar story.  Cheers

[pjxak]

The interferon killed my thyroid and I've had to be on thyroid replacement ever since. I lost half my hair before I started to take the thyroid replacement. Once on the medication, it grew back almost instantly. I was very tired, as well. I would get a thyroid panel done if you haven't done so already. Good luck with this!

[JRenquist]

Hi   Sorry to hear that.  I lost about a third of my hair on tx, like Carol.  It grew back curly, which was a plus.  I wonder if it could be your thyroid.  I got an autoimmune thyroid problem from the interferon, which I've read is not uncommon. I just looked it up and it can cause hair loss. It can also cause fatigue which might contribute to your fog  Have you had your thyroid checked? Hope your treatment worked!

[carol411]

I'm bumping you up because your post is getting buried pretty quickly.  You are still the only one I have heard of that has lost all her hair.  What has your doctor done for you, anything?  I'm four months post tx and the hair I did lose (about a third) is coming back.  I hope someone has some advice for you!