body pain

[rebell]

I was diagonsed with Hep C appx 13 yrs age.  2 years ago I went on interfern treatment for type 2b for 6 months.  The treatment worked at first and at the end of the 6 months of treatment I tested negative but within 6 months the Hep C returned.  My liver functions are within normal ranges but I was able to identify when the Hep C had returned even before the blood tests as pain had returned to my joints.  
I have aches and pains in my ankle, both hips, shoulder, wist and fingers. I don't seem to find much information on what causes this and what is the best treatment.  I have been on a number of different arthritis medications and none of them seem to help for long.  

Hoping you can shed some light.

[PRINCESS5122]

i have been having pain in my hands and fingers,all in the joints since treatment.im doing shot # 9 on sat......genotype 2,treating with riba also. at times my hands swell,and i have days im out of breath.i see cardioligst every 3 moths for years.not the heart....thank God.anyone else have swollen hands at times,mostly in the morning,along with the joint pain ? thanks.............K

[HARRYBEADS]

Hear is some reading I'll get back to you when I have more time. You sound like you have identicle symptoms to me.

http://www.hcvadvocate.org/hcsp/articles/Bonkovsky-2.html
http://nonprofits.accesscomm.ca/hep-c.regina/FAQ.HTM        check out 11.4.0c

Harry

[natasha1983]

i have hep c for just about 11 years i am having a lot of pain in my side i went into liver failure last dec . but am still having problems . i am tried all the time. i have a lot of joint pain what i do for it is take hot baths i helps for a little bit. but no for a long time i am wandering if some one can give me some advice.

[Benniewhat]

I saw your comment about recently being dx with fibromyalgia. Doc dx me with Hep C less than a week ago, but the pain I've had for years in awful.  I have had unbelievable pain in my right hip, buttock and leg - and over the last year have developed very painful knots in my back between my shoulder blades, plus elbow joints that throb.  What are your symptoms like?  Thanks!

[couchpotato]

Sorry to hear both you ladies have relapsed, I can't imagine the let down. Cindee, I read somewhere earlier about the correlation between fibromylgia and Hep C. Do you know if this is indeed the common thought?

[cuteus]

If you find your way back to the forum...and I pray you do...remember to leave your e-mail.  I could not answer you because it was not in your comment. Vicki did not give up, i can't remember how far back you were here, though...I pray you are well and that you find us again.

[Sioux]

Wow, You sound just like me. I'm just a few weeks from being 4 mo post tx. I don't have my heptimax until 6 mo post tx. Hopefully I will not relapse. I was just dx with fibromyalgia a little over a week ago. I'm seeing a rheumatologist for it.
Could you please share any info you have learned from your psychologist? Thanks Bunches!!!

[cindee]

Hi, I too have hep c geno1A. Did 48wks of combo and after tx ...4 months post....replased! Will se starting again soon..w/ a new doc!!!!! I'm doing a clinical study.  My pain specialist has me on morphine...seems I have tissue damage and fibromylgia. NOT TOO GOOD!!! Sounds like our pain is in a lot of the same places. I would definately get to a pain specialist...I also have a pyschologist there @ the same office and he has done extensive studies on hep and lasting pain. I wish you the best, and keep us informed. Love and Prayers, Cindee

[britgirl]

Have you tried acupuncture? Some people find it helps with this kind of pain.

[couchpotato]

Thanks, I was curious if there really is a connection. Hubby has a cousin with HCV, (she refuses to acknowledge it), and she has just told us she has been dx with fibromylgia. I'd like to gather info for her and convince her to try tx.

[couchpotato]

We've spoken to her in the past, she thinks because she doesn't drink any more that she will be okay. DUHHHH! Course, her doctor's have never suggested tx either. As to her coming to the Forum, I don't think she is even aware of the computer age, ummm, don't believe she even has electricity now that I think of it!!! hahahaha, diehard hippie, that one! Anyway, she doesn't live near us and on the many occasions that I have mentioned it, she just tunes me out. I'll keep trying, maybe with smoke signals or something but it'll be an uphill battle. In time and with enough information (and a little arm twisting), maybe it will finally sink in. Thanks for the info, though.  Couch

[Sioux]

Oopps, Sorry I have brain fog,
I meant to also say, I'm sad that you relapsed. I hope that your next round of tx will go smoothly.

[secondtime]

I also have pain but it is hard to discribe to dr's. After being on full course (geno1) treament - and now on main therapy I still have the same type of pain, As a matter of fact, I have felt this way for a long time - 1st diagnosed in 1997..I have told my dr's over and over again i did not feel like this before i was diagnosed..anyway, i am currently on a low dose of oxicontin, but i am not sure the dr thinks the pain is related to hep c.. any comments???  again, I know my own body and i know i did not have this pain prior to being diagnosed with hepc - i also now have cirrhosis grade 3 stage 4 - cd this be the pain?

[cuteus]

I am one that if I could not see your written words on this forum would feel the way I do when the  graceful monarch has left for the season and i am left waiting for its beauty and comforting flutter to return. Don't ever change anything, and, what a gorgeous smile to go with the spirit. I did not see any other pics but the head shot, was that it?

72 wks is a need, a must do, no bravery really, my body has tolerated things ok, and I feel as there is no choice if I want a higher shot at svr. It seems we are all doing what we must and finding the strength through our friends here and the nearby loved ones to cushion the bumpy road. I am fortunate I have no personal crisis while on Tx, like cindee, couch, you and others that i fail to recall as of now.
4 more weeks, but YOU are not going away after that! We'll send Indy to fetch you.

[cuteus]

sorry to hear about "the return".   A while back I did a search for extrahepatic manifestations of hep c and got a lot of links to info that explained a lot of the aches and pains I have been going thru for years.  here is one of many:    www.hepcvets.com/se/painful.html