Aa
complete
hello all. just completed 48 wks. triple therapy, inciveck 3 months riba/interferon last thursday. want to hear from people who had this combo, on what i can expect post tx. comments needed.
thank you.
thank you.
I did the triple and I've been clean for over a year now. I feel great and no side effects that I can tell.
Congrats on finishing treatment, I also did 48 wks w/incivek, I see you are from Denver, I treated at UC Denver in a concentration controlled ribavirin study.
Wishing you all the best and look forward to seeing your SVR post
Have a great day
Wishing you all the best and look forward to seeing your SVR post
Have a great day
I did the 48 weeks of triple tx from October 2011 to September 2012. I'd had the HCV since 1984 and autoimmune arthritis since 1986, had been cirrhotic for 8 years, and this was my third time trying to treat. I finally was able to achieve SVR! I felt a little better a month after finishing, but it really took a full year to get over almost all the side effects from the drugs. I developed IBS during tx, probably from the combination of ribavirin and stress, and while it is WAY better than when I first finished tx, it's still there in a milder form. It is the only longterm problem
I'm blaming on the triple tx drugs. I still have some fatigue but it had gotten quite severe before this final tx and is actually much less pronounced now than it was prior to tx, so I believe it was caused by the liver damage and is slowly improving as my liver has more time to grow healthier.
Congratulations on completing that horribly difficult gauntlet of drugs! Your odds of achieving SVR are excellent and your odds of significant longterm problems are fairly low, but you do have to be patient about the recovery period. Exercise and proper nutrition will help. Ask about specific problems if you have any and someone might be able to help you find ways to speed that aspect of healing - maybe. Good luck!
I'm blaming on the triple tx drugs. I still have some fatigue but it had gotten quite severe before this final tx and is actually much less pronounced now than it was prior to tx, so I believe it was caused by the liver damage and is slowly improving as my liver has more time to grow healthier.
Congratulations on completing that horribly difficult gauntlet of drugs! Your odds of achieving SVR are excellent and your odds of significant longterm problems are fairly low, but you do have to be patient about the recovery period. Exercise and proper nutrition will help. Ask about specific problems if you have any and someone might be able to help you find ways to speed that aspect of healing - maybe. Good luck!
Hi and well done completing tx. Hubby treated with incivek 10mth ago and still suffering. His joint pain as tripled to what it was. Next stop rheumatologist! Good luck. Julesx
Sorry to hear that your docs are not helpful.
It is not always the best to say "I read it on the internet" lol.
But maybe explaining that the best medical center in the USA, The Mayo Clinic, has defined patients like yourself with long term issues as having Post-Interferon Syndrome and maybe your doctors should educate themselves by contacting the Mayo Clinic.
Best of luck.
It is not always the best to say "I read it on the internet" lol.
But maybe explaining that the best medical center in the USA, The Mayo Clinic, has defined patients like yourself with long term issues as having Post-Interferon Syndrome and maybe your doctors should educate themselves by contacting the Mayo Clinic.
Best of luck.
I too am post tx 11 months and experiencing joint pain all over. The Dr.s act as if they have never heard of this! Its driving me nuts!
I am 8 months EOT and my energy levels are much better. Some days I feel like I am 20 again! But I'm having some sort of autoimmune issues that are under investigation by my rheumatologist. I never had this before tx. Hopefully these will pass as time goes on. When I think back to how I was when I finished, all the weird and random sx would come and go. It's been a roller coaster.
Be prepared for good and bad days.
Even though you will be up and down, the trend should be that you feel better and better as time goes on.
:-D
Be prepared for good and bad days.
Even though you will be up and down, the trend should be that you feel better and better as time goes on.
:-D
I only treated for 28 weeks with boceprevir. It took me about a year to feel normal again. Exercise and good nutrition helps a lot.
Congrats on completing tx
I guess each one is different. I was feeling a lot better before tx and couple of people I treated with at the same time had the same experience.
I start to have severe joint pain after tx. Never had that before - ever, so I refute any suggestions that joint pain might have been caused by hep C. It is clear to me that is not and it was triggered by the meds.
Secondly, digestion is worst than I ever had it in my life. I believe that the meds basically destroyed the intestinal flora and really no standard probiotic will ever restore it. After all is not that taking a few pills of biffidus will do anything. Intestinal flora has around 800 different strains and the commercially available probiotics have only around 20-25
Thirdly - I feel like my life is been sucked out of me. No joy at all. Just blatant indifference. And interestingly enough that seems to be a feedback I heard from many others
So the "cure" - not sure if it is really a cure. On one hand you one is "cured" and his/her liver will get an extra 10-20 years. On the other hand drive to live is lost for many, extra pains appear, cholesterol is going through the roof as the body finds it hard to re balance
Overall, right now, I do not feel better than I was before tx. I am not so sure if this is one of the the effects of the "cure" or not.
It is quite disheartening that post tx side effects are not dealt with in a supportive manner and that there is an assumption that the hep c was the culprit for many of the post tx conditions.
I do have noticeably less energy than I ever had and 6 months post tx it does not appear that is improving ( still hoping though)
I guess each one is different. I was feeling a lot better before tx and couple of people I treated with at the same time had the same experience.
I start to have severe joint pain after tx. Never had that before - ever, so I refute any suggestions that joint pain might have been caused by hep C. It is clear to me that is not and it was triggered by the meds.
Secondly, digestion is worst than I ever had it in my life. I believe that the meds basically destroyed the intestinal flora and really no standard probiotic will ever restore it. After all is not that taking a few pills of biffidus will do anything. Intestinal flora has around 800 different strains and the commercially available probiotics have only around 20-25
Thirdly - I feel like my life is been sucked out of me. No joy at all. Just blatant indifference. And interestingly enough that seems to be a feedback I heard from many others
So the "cure" - not sure if it is really a cure. On one hand you one is "cured" and his/her liver will get an extra 10-20 years. On the other hand drive to live is lost for many, extra pains appear, cholesterol is going through the roof as the body finds it hard to re balance
Overall, right now, I do not feel better than I was before tx. I am not so sure if this is one of the the effects of the "cure" or not.
It is quite disheartening that post tx side effects are not dealt with in a supportive manner and that there is an assumption that the hep c was the culprit for many of the post tx conditions.
I do have noticeably less energy than I ever had and 6 months post tx it does not appear that is improving ( still hoping though)
If you are Undetectable at 12 weeks post end of treatment your odds for SVR are 99.7%. Excellent odds. Let us know how you do. Best of luck.
"Conclusion:"
"Our results show that the assessment of serum HCV-RNA 12 weeks after the end of treatment, using the highly sensitive TMA assay (PPV 99.7%), is as relevant as after 24 weeks to predict SVR and make decisions on the management of treated patients, suggesting a new definition for SVR."
"(HEPATOLOGY 2010;51: 1122-1126."
http://onlinelibrary.wiley.com/doi/10.1002/hep.23444/pdf
"Conclusion:"
"Our results show that the assessment of serum HCV-RNA 12 weeks after the end of treatment, using the highly sensitive TMA assay (PPV 99.7%), is as relevant as after 24 weeks to predict SVR and make decisions on the management of treated patients, suggesting a new definition for SVR."
"(HEPATOLOGY 2010;51: 1122-1126."
http://onlinelibrary.wiley.com/doi/10.1002/hep.23444/pdf
You made it!!! I remember when you first started treatment. Well don't expect your going to feel great right away. I think one of the best things you got going for you is your young. I think these drug therapies get harder the older we get. Let your body heal. It's been exposed to very toxic drugs and it takes time to get them out of your body. Flush them out with lots of water.
Everyday is one day closer to feeling much better. Congratulation on doing 48 weeks.... impressive. On to your 3 month viral load test. Remember if you don't have a viral load a 3 months post treatment...your chances of SVR
are about 97%. Excellent odds for a life free of hep c.
Best to you
Everyday is one day closer to feeling much better. Congratulation on doing 48 weeks.... impressive. On to your 3 month viral load test. Remember if you don't have a viral load a 3 months post treatment...your chances of SVR
are about 97%. Excellent odds for a life free of hep c.
Best to you
Congratulations on completing treatment.
I did the triple med treatment with Incivek for 48 weeks from Sept. 2011 through Aug. 2012. I am now SVR (cured).
I started to feel better almost immediately after finishing treatment. It took several weeks/months to get totally back to normal, but little by little, each day, I felt better.
The disappearance of the fatigue is what I noticed most, I think. I was so tired prior to treatment and that fatigue disappeared when the HCV disappeared and treatment was finished. I noticed the return of my energy level very soon after finishing treatment. As the drugs wore off the dry mouth and the neurological symptoms also disappeared. My brain function improved and eventually went back to normal. The other side effects gradually improved over time. It took about 3-4 months for most of the side effects to totally disappear and about 6-8 months to feel fairly normal.
By spring, the only symptoms I had left were some joint aches (which I had prior to treatment) and some skin issues. Neither of these residual problems were the result of treatment. I have Sjogren's Syndrome and these 2 issues are actually a result of Sjogren's Syndrome, which I have had since at least the early 1990s (although no doctor was astute enough to diagnose me until last year).
Hang in there. You should feel better very soon.
I did the triple med treatment with Incivek for 48 weeks from Sept. 2011 through Aug. 2012. I am now SVR (cured).
I started to feel better almost immediately after finishing treatment. It took several weeks/months to get totally back to normal, but little by little, each day, I felt better.
The disappearance of the fatigue is what I noticed most, I think. I was so tired prior to treatment and that fatigue disappeared when the HCV disappeared and treatment was finished. I noticed the return of my energy level very soon after finishing treatment. As the drugs wore off the dry mouth and the neurological symptoms also disappeared. My brain function improved and eventually went back to normal. The other side effects gradually improved over time. It took about 3-4 months for most of the side effects to totally disappear and about 6-8 months to feel fairly normal.
By spring, the only symptoms I had left were some joint aches (which I had prior to treatment) and some skin issues. Neither of these residual problems were the result of treatment. I have Sjogren's Syndrome and these 2 issues are actually a result of Sjogren's Syndrome, which I have had since at least the early 1990s (although no doctor was astute enough to diagnose me until last year).
Hang in there. You should feel better very soon.
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