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continuation to thread 'What are the long term effcets of treatment?'

1.to Can-do-man : the original ? :"What are the long term effects of treatment?"
2.to Double Dose ~ I'm 3rd generation to have liver disease in my family...father & grandfather both died from alcoholic induced liver disease...I stopped drinking alcohol when my dad died from his liver disease, thinking I didn't want to be part of anything that could effect my life like that...Ironic in that at the time I was already infected with hcv, but not diagnosed.
I believe my family has a genetic flaw with our livers, that's just the way it is...and in that I gave up drinking and still caught liver disease is the joke on me (however good for my liver) lol We deal with what life gives us in different ways.... I did extra treatment thinking I'd never have to treat again and so far that's been the case.As I said I tx twice....52 weeks of mono interferon, and 52 weeks of the old combo and have been undetected ever since...Thanks to my *higher ups*~lol
Now I just wanna get past this divorce with a fair ending, that's all...
3.Revenire...Thank you and all of you for an incredible amount of information... I'll check those links out after work today.
Poz
28 Responses
Avatar universal
Hi, that's interesting that you mentioned a genetic link to liver disease.  I am being treated at Duke and they are getting ready to do a study of blood of Hep C patients and their families to see if there is a genetic link why some people contract it and others don't.
Pam
Avatar universal
Hey guys....how you doing?  did they find a cure while I was on vacation?

Can someone catch me up to any important SVRs and stuff that I missed in the last week?  I missed being on here SO MUCH - I can't tell you how many times I thought of you guys.  I really can't. It provided a great conversation with my daughter though...how something that sounds so ludicrous can really mean so very MUCH - and you guys sure do.

I hope you all were healthy and happy and enjoyed the 4th.

Now DISH!
Avatar universal
Beagle alt's and ast's are in the teens so he's been as happy as a mutt could be. He's been woried about ya, told him you were on vacation since you would only have 3 days to use. He said he would be back wed.

Besides that same crazy place. Oh and hello and welcome new person.
Avatar universal
Who you miss the most?
Avatar universal
Hey Nygirl,

Hope you had a fun vacation. Did you go anywhere exciting. I am taking mine the first week of August.  I can't wait!

Hi Can-Do-Man,

How are you doing?

Pam
Avatar universal
Im doing ok thanks........... you said.........Hope you had a fun vacation. Did you go anywhere exciting. I am taking mine the first week of August. I can't wait!

Kinda short notice you give me there. But i'll be ready to go. BTW where is it were going?

Remember a smile a day keeps the doctor away.
Avatar universal
I slept and slept and slept and then I took a nap.  And then I had a couple fudgicles and went back to sleep. And then I took another nap.

Ah.....just what I wanted to do since I was diagnosed. It felt so GREAT.

But oddly, I'm no less tired right now then I was before!

I missed you guys a LOT.  And of course CanDoMan...I missed your hugs the most :)
Avatar universal
We are going to the beach for a week.  Come on....bring your bike and your boogie board, too.

Pam
Avatar universal
Second week in August, we are going here http://www.ncwaterfalls.com/sliding_rock1.htm
You will need to bring a tent to that one.
132578 tn?1189755837
Hey. Glad your back. You were well missed. There was alot of crying and the gnashing of teeth for the first couple of days and we had to slap can-do around a little bit but other than that....

I'm watching CNN coverage of the building on 62nd street that exploded. What a mess.

Mark
131817 tn?1209529311
Welcome back girl! We missed you. I had my PCR at 101/2 weeks and am UND! So I am happy it's working. We are going to Jamacia saturday.
Avatar universal
We are going to Jamacia saturday.

OK, what time we leaving? And will i be back in time to go with doglover28?
Avatar universal
hi there. i lived in brevard and asheville for over 10 years. ex-father-in-law has a big farm up there. beautiful. love sliding rock! be careful 'cuz that water is F-reezing! my son jumped in and lost his breath. (it was funny but it wasn't for a second or two). if you come on down the road towards waynesville Looking Glass falls is on your right as well. anyway. have a great time.  tracy
Avatar universal
hey me and you are gonna have to go somewhere dammit. the most exciting trip i make is to the bathroom. :(    t.
96938 tn?1189799858
Good to hear about the und.  Has to be a relief before you head off to Jamaica. Who ended up paying for that pcr and what sensitivity was it?
Avatar universal
Some prior MH experiences post tx:

http://www.medhelp.org/forums/Hepatitis/messages/35758.html

http://www.medhelp.org/forums/Hepatitis/messages/37373.html

http://www.natap.org/2004/HCV/120304_01.htm

http://www.clinicaltrials.gov/ct/gui/show/NCT00188201?order=5

http://www.medscape.com/viewarticle/493202_print
Avatar universal
Hi Tracy!

We are staying at a campsite in Brevard.  I love it up there.  We went last year, and you are right...the water temp is 47 degrees.  It is so refreshing.  We stopped at looking glass falls, too.

We also went to Dupont Forest.  They have several falls, and some great bike trails.  The film "the last of the Mohicans" was filmed in Dupont forest.

That must have been fun living up there.

Pam
Avatar universal
Jamaica, Queens? or the REAL Jamaica? It is going to be HOTT! in either place, but the latter one can be burning hot!
Avatar universal
Hey have a blast. have one for me too!   t.
Avatar universal
will do.  That will be my last trip before starting tx.  Biopsy is two weeks from today.  Not worried though
131817 tn?1209529311
Sure we will back on july 30th, so you may be able to make Doglovers trip too!


Flguy:
Check out July 6th Am I Und? Can't understand labs. Help!

I had the weirdest lab report. Still not sure what the hell it means. But the doc said I am undectable and I didn't have to go get another PCR. So the ins. paid and I just am getting the one. I would like to have the more sensitive one, but maybe later I will ask.

Now I am just fretting over getting that darn Neulasta shot for the trip. Also need the Aranesp. I am thinking maybe I should space them a day apart. They just about did me in last time. I am starting to become breathless again, so the counts must be going down. I don't want to be in the REAL Jamicia or the FAKE Jamacia and need those rescue drugs. That would not be fun!
96938 tn?1189799858
If I were heading on an active vacation I'd make sure that I had as close to a full hgb tank as possible.  So, if you and doc are on the fence for Procrit or Aranesp, err on the side of caution and go for it.  As for the neulasta, neupogen was never effective for LESS than a week for me. If in fear of the 'lasta sides you could go for the neup and have less of a chance to effect the vaca with 'lasta sides.  Does the vaction timing require you to travel with an IFN injection set?
131817 tn?1209529311
Yes, I am traveling with 2 shots of INF and the beloved Riba. I wish the doc would give me the neupogen to take, but he won't. So I am going to have to bite the bullet and get the shot "to fill my tank" for two weeks. The good thing about these pegalated drugs is they keep me going for about 3 weeks. The Neulasta bone pain lasts for 10 days though. Maybe not this time, I hope. I don't remember it being so bad the first time. Perhaps it was because I took the Aranesp and Neulasta the same day?

Any hints for traveling with the INF?
96938 tn?1189799858
I haven't traveled with the meds, but many others here have. Need a way to keep the injectables chilled and I think many folks travel with a doc's letter or at least rx copies.  I can't imagine sitting on a Jamaica beach enjoying a beautiful Carribbean sunset and then being reminded 'hey, time to hit myself with the Peg'.  Some things are just incongruous.  Sounds like fun!
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