in the past few months i have had all looked at on your list and full abdominal scans ultrasound, cat scan, on the 23 September im getting a mri with sedation they tryd be for but i have just found out im Claustrophobic maybe then they will find something that they can cure the right number was 8786.0 ng/ml i have doc edd walkeal from SF by the 28 of sep maybe i will now
Did you just now have the banding? They didnt band mine. Youre lucky! This os tough to swallow. I have no knowledge, lots of sympathy re AFP. Have u had am MRI before? It's not that bad. Goes really fast. They did some kidney cleansing thing n ran me thru again. Keep us updated.. Karen :)
Sorry to hear the news. AFP = 9000? You had the MRI done on Sept 22? of last year? When do you mean. I have never heard of an AFP level that high. Norm is between 0-40 nanograms per milliliter (ng/mL) or micrograms per liter (mcg/L). Anything over 500 is considered diagnostic of liver cancer. Are you seeing a hepatologist at a transplant clinic? Are you already listed? It does take experts that are used to diagnosing Liver cancer (HCC) to sometimes find it. Not any radiologist is qualified to review MRIs looking for liver cancer. The best are those that work with people on a transplant list.
Being cirrhotic from HCV increases the chances of developing HCC. Have they checked for portal thrombus associated with liver cirrhosis might induce an extremely high level of AFP production. Intrahepatic cholangiocarcinoma (ICC)? Have they checked the testicles, stomach, pancreas? High levels of AFP may also be found in Hodgkin's disease, lymphoma, brain tumors, and renal cell cancer.
Your should the best people helping you manage your cirrhosis. I.E. transplant clinic.
Remember AFP doesn't always correlate to HCC. I have a 1.8 cm tumor and my AFP is only 98.
Hopefully this is a false alarm. But you must follow through until they say there is no chance of HCC. Catching it early it is treatable.
Good luck.
Hector
I can't answer your question about the AFP but just wanted to say, wow, sorry you had to go through all that and glad you're okay!
Lapis