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Avatar universal

how long can i live with hep c without treatments?

I am 30 and i have hep c with one failed treatment, i have geno  type 3 and a viral load over 14,000,000 and its been higher. i was on pegInterferon 0.5 for 5 months and my platelets crashed to undetectable i have had it all my life passed from mother to child but just found out i had it February of "08" i also have 3 kids and its so hard to do the treatments and keep up with them . i am supposed to start a new treatment on June 2 ,09 with pegasys and there is ALOT of joint pain i have tried milk thissile and all kinds of pain relievers and nothing works at all except RX pain killers and my doc's tell me i cant take them . so what can i do????   Cristina..
7 Responses
Avatar universal
I think you just need to keep trying treatments.  It sounds like its difficult for you, three kids and all that pain.  But you just cant give up.  Something will eventually work.  I'm on interferon and pegasys, some of the side effects are indeed brutal.  You didnt mention if you have any symptoms of Hep. C.  They can be much worse than treatment.

Good Luck - Lynne
Avatar universal
First question – are you under the care of a hepatologist, and gastroenterologist, or a gp? The person who by far is best for working with you on HCV issues is a hepatologist. So if you are not, probably the first thing you should do is arrange an appointment. This could take months to get, but no worries. It's better to wait for expert advice to get hasty, less informed, advice.

Second question – have you had a liver biopsy? This is the test which will give you the most reliable sense of your current level of liver damage. Without this, it's very hard to know what sort of toll the virus is taking on your body. Best not to focus on the viral load. It doesn't correlate very well with disease progression.

Personally, I don't not think you should start treatment again until you have had the liver biopsy. There might be grounds for waiting until new treatments are approved. You don't explain what will be different this time in your treatment. Generally, it is not recommended that people who failed treatment simply treat the same way again. Without some alteration in some variable, it is assumed the outcome will be similar.

If your current level of liver damage is relatively high, you will likely decide to treat aggressively. But if it is not so high, you might be better off focussing on your general health, getting in great shape, and putting off treatment until you feel better able to handle its stresses. There is a lot you can do in terms of lifestyle changes that can make you feel much better – mainly increasing your exercise regimen, improving your diet, and losing weight if there is some to be lost.

Good luck.
Avatar universal
If you were only diagnosed in February 2008 and have already done one course of treatment for five months of the planned six months, it makes no sense to me to jump back into treatment so soon without evaluating what didn't work for you the first time and how you can improve your odds the second time.

To do this, many things need to be weighed. Unless your doctor has told you how he intends to tweak your treatment plan so you don't run into the same wall you did the first time, I would get a second opinion from an experienced hepatologist (liver specialist).

There is little point repeating the first plan if it didn't work. You and your doctor need to learn from your first experience to improve your likelihood of success.
717272 tn?1277590780
You could live a natural life span with the virus, but if you believe that the virus is responsible for the joint pain, it might not be a pleasant life.  The liver biopsy tells the story.  If it comes out stage 2 or less, you have time to wait a little longer for some of the newer drugs (not yet approved by FDA, but in just a few years).

From what I read, genotype 2 & 3's as a group are so responsive to treatment that they don't bother with biopsies, but now you know you should get one and let the results guide you and your physician.  Good luck.
Avatar universal

Well the first thing I think you should know if you got it at birth, You had it along time.  You did not mention your biopsy but I assume you had one.  Type 3 is one of the easier ones to work with the treatment.  Maybe you will need to go on for a longer time.  The most important question I would ask you is there any time during the 5 months did you think you could take a break because you were testing negative?  If so this could have played a big part in your treatment.  I have been on treatment 3 time the first 2 lasting a year and the finally was going to be 2 years but because at 6 months I was not responding and side effects were so bad they took me off my viral load went down at 3 months and rose at 6 months my hep doc said no way.  As newleaf09 said you can live a natural life span with the virus, I say it might not be fun, but your type is usually pretty easy to cure.  Now the only one who can make the decision to go right back on treatment is you, but I would suggested a break with regular monitoring and maybe a year break.
Avatar universal
Hi Christina, I have had HCV for 44 years, misdiagnosed by a biopsy in 1975. Back then the focus was feed a high protein diet with lots of vitamin C. Obviously that doesn't work, however 11 years ago I had a relapse, was given the current treatment for 9 months. 90 days later the virus was 2 times worse than prior to treatment, so they had come out with an experimental drug which I had to sign a waiver to be treated. I started taking pegsys II with extreme side effects. A high school friend introduced me to nutrisutical supliments, forgive my spelling, but after stopping the pegsys & switching to the supliments I have been un detectable for 10 years. A company called Market America sells these products online, OPC3, CoQ10, complete greens. These are the 3 products I used to replace the medical treatment. My doctor asked me what I did different than his other patients, because most of them had died within 6 months after treatment. He was amazed, but said he couldn't leagaly use my treatment plan.
dan.***@****
1 Comments
Hi Dan you have added a comment to a ten year old thread doubtful if any of the original posters are around here in the forum anymore

Just to update you a few years ago many new treatments were being approved one of the first being Harvoni. These new treatments can be as simple as one pill a day in some cases for as few as 8 or 12 weeks and boast greater than 98% cure rates. Also these new DAA medicine are by far much better tolerated than the old treatments you and I lived through.

Today we don’t have to resort to unproven alternative treatments we thankfully now have meds which can eradicate the hep c virus maybe some day soon the virus will be completely eliminated.
29837 tn?1414534648
Why wait and not treat? If you are low income, you can get free treatment from Gilead Pharmaceuticals. They can give you Harvoni and in 6 months you will be cleared. Call them: 909 394 4000
3 Comments
Hi Magnum

this post was originally started in 2009 Danhealed above your comment just posted to a long dead post. He says he is virus free. Hopefully the original poster who was thinking about treating with Pegasus Interferon back then was cured or has since that time been cured with one of the new DAA’s

Hope you are doing well these days
Hi. Yes I'm doing well thank you, and Dec. 2 will be 6 years post transplant. all blood work comes back normal. I'm still entertaining now in the Phoenix area and feel healthy. I hope you're doing well also.
Doing well May 4th was my four year anniversary of completing my 5th and final treatment for hep c been not detected ever since.

Still showing as F4 on Fibroscan but hopefully will remain stable :-)
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