is it normal for your liver and spleen to hurt?????

[lost and confussed]

Ok maybe not normal for normal people but sometimes mine hurt bad
before I found out about the HCV I thought I had gas
stupid huh
but now that the doc said i have f4 possibly begining cirhosis I am a little scared
ok texas size scared
he doesnt wat to do a biopsy as platelets are low and he wants to start tx asap
can you have the biopsy while on tx?
please guide me oh mighty wise ones i know no docs are here but you all seem to make more sense that they do anyway
thanks in advance
gonagetbetter

[AK - Hepper]

Doubtful you'll get a bx during treatment. Lots of people's platelets get lower on tx....mine did.

[catherine194]

I think that is a good idea. I wished I had done that before and maybe I wouldn't had gone through what I did. It tracks your progress and would be a valuable timeline if something was to come up. Hang in there. I am here for all of you. Prayers.

[lost and confussed]

Thank you,
I will talk to doc's nurse in am. You are always so informed, I try to read alot of articles and look at suggested sites but sometimes get blurred by all the medical terminology.
I feel as though I know 100% more today than I knew just 3 weeks ago when this was all discovered.
I have been thinking about keeping a journal regarding a timeline of events as well as new treatments and any possible sx I have
Does this sound silly and like a way to drive myself crazy???
who knows
I am cureous though I can talk to the doctor and he talks so fast that I feel like we have covered all the questions but as soon as I get home I forget the answers.
maybe I just need to slow down and absorb more
ok I am babbeling
the greens do worry me as I already am very "gassy"
but if it helps and doc says ok I will just grin and bear it
no pun intended
hope you all have a great weekend

[catherine194]

Vitamin K is a clotting factor and the vegetables that are packed with vitamin K you might not be able to tolerat. They are the green leafy vegetables such as cabbage, brocoli, kale, turnip greens, collards, etc. Vitamin k is also in a pill but before taking ask your dr. if it is ok. If you start having bluish-purple places under your skin called purpura, blood in stool, urine, prolonged bleeding from a cut, and a heavier menstrul period you definitely need to tell your doc. These foods cause a lot of gas and you might have a problem when you pass flatus (it stinks to high heaven). Prayers.

[lost and confussed]

thanks for all the info. Granted I did not have the bx but did have ultrasound and the liver spllen scan (the radio active thing) I guess that is where the doc is getting his Idea of what stage fibrosis my liver is in.
Can these tests be considered somewhat of a benchmark since he wants to wait on the bx
Also can they do a bx while on tx? that is if the platelets improve? maybe someone knows.
Lastly is there anything that one can do in the way of vitamins or diet to halp inprove the platelet count prior to tx looks like I will be starting in a few weeks and really want to find what I can do to be as reasy for this as I can
I guess your never really ready though are you.
still in all I am anxious to get this started and hopefully ended. I want to catch a ride on the train with the rest of you

[catherine194]

All I know is that I hurt. If it is on the left it probably is gas. My spleen doesn't hurt because I don't have one and if it did you would have what is called refered pain and it would be in your shoulder. I personally think it is pancretitis and diet does play a role.

[lost and confussed]

Thanks I wasn't sure but have been having pain off and on the upper left and right quadrant swell up sometimes I mean you can actually see it and hurts like the dickens.
Last night was pretty bad I just tried to go to sleep and hope it went away.
this morning I do feel better though
My doc just really scared me when he started talking about with low platelets I could just start to bleed just about anywhere, I guess I need to get more info about diet
Thanks for listening

[AK - Hepper]

Liver pain is a controversial subject. They say the liver has no nerves but it's possible the sac surrounding the liver feels pain when the liver is inflamed. Don't know about the spleen.

Lots of people have complained of right upper quadrant pain since I started coming here, meyself among them. That was the reason I went to the doc in the first place.
I used to think it was my liver, but now I'm not sure what it is, possibly in the intestines, I don't know, and it's hard for the docs to pin it down in that area.

I found my diet had a lot to do with the amount of pain I experienced. Others didn't. Protein caused me the most trouble, but lots of other things did too.

My pain is almost all gone, I finished treatment 12 weeks ago.
But, during tx. I started having trouble with wheat, and eliminated it altogether, within a week I felt way better and the pain lessened. This is why I'm unsure about liver or intestines.

[goinseagle]

My dr said the pain in m,y right side by my liver was just muscle spasms in my rib cage.BULL i have had this pain so long it isFrom my liver I don't care what they say No spasm lasts this long. I hope yours is not and everyone is right your doc really can't know how much damage without bx. Good luck i'm on week 12 and feeling reasonably ok I hope you do as well

                         Helen

[AK - Hepper]

I've noticed when I do any exercise that jostles me around it causes me to ache there. The other day I went for a hike in the mountains, on the way down I jogged a little, that night I was all achey and had to take some tylenol.
The doc originally said it could be from fatty liver cause I have that too.
I don't have problems with protein any more, so tx. did SOME good, whether I relapse or not.

[cecilseaserpent]

My abdomin has just started causing me pain. My Doc said it was because of inflamed lyph nodes in my abdomin due to the hep c.

[lost and confussed]

I did read that and appreciate the help
but is it suppose to just randomly hurt and swell up?

[cuteus]

ok I saw that YOU are gonagetbetter, so you already read that post,
I don't see the need for a biopsy while on TX, plus the counts drop when on the meds, so it still might not be safe to do one.

[cuteus]

you might want to check the question of may 11, should I have a biopsy.

[tina-b]

Hi and welcome,

Somebody will be along soon with answers to your questions. How does the doc know you are f4 with cirrhosis if he hasn't done a bx yet? What did he say f4 means? Good luck.