Aa
A
A
A
Close
Hepatitis C Community
13.4k Members
Avatar universal

its back

Well it's been almost 4 years clean of hep c and it's back
40 Responses
7395021 tn?1394079527
So very sorry to hear. New TX will be better and easier. What tax did you have?
Avatar universal
Have you been geno typed again is it the same ?
Avatar universal
Also very sorry to hear your news
Avatar universal
pegasus inter
Avatar universal
no going back to DR. 22 sep
Avatar universal
Good Lick @ Dr.
1815939 tn?1377995399
If you have Hep C I am very sorry that you have it.

However, it would be rare to relapse after 4 years.

Are you saying that you have a viral load again? Or did you just have an antibody test?

An antibody test will always be positive, for life, once you have been infected with Hep C, even after you attain SVR.

If you just had an antibody test, then you need to have the HCV PCR test to determine if you actually have Chronic Hep C.

Hopefully you do not have it again.
766573 tn?1365170066


Sorry to hear this.
Good news is as others mentioned the treatment drugs are way less harsh than when you treated the first time around. Even not knowing more of the facts I have to kind of agree that it is more likely that somehow or in some way you were reinfected with the virus anew. I mean there might be the obscure journal article here and there postulating the virus never left a person (or hid or whatever) but that is a rarity.

______________________

Anyway I was wondering how you know for certain the virus is back if you appt isn't til the 22?

We will always show presence of the Hepatitis C Antibody even when we are UND. Could there be any confusion with this aspect?
Avatar universal
Viral load again




Avatar universal
Family Dr I get check every year going hepatitis Dr the 22
Avatar universal
I guess this is as good a time as any to remind everyone that achieving SVR is no guarantee that you can not contract Hep C again. There is no vaccine against Hep C.  Those reaching SVR should not have a false sense of security that they can never be reinfected (if re-exposed). I'm sure most know this already but it doesn't hurt to put it out there.

Nan
Avatar universal
Let us know how you do at doctor appointment .thinking of you.
Avatar universal
I can only imagine how you feel right now after beating this virus and now hearing you have it again. As others stated, the new treatments will be easier on you and hopefully very soon, you will be Hep C free again.
Best wishes,
Nan
Avatar universal
what is the new treatment .does it affect  platet
Avatar universal
I am so sorry to hear your news.  I'm glad you came here for support.
7510956 tn?1411675017
I am sorry to hear you have Hep C back. I read t in other sites that reaching SVR is not a cure but remisson. Hope they are WRONG..
Avatar universal
I know this sounds weird, but I've heard of people contracting Hep C from nail salons that don't sterilize their equipment properly.  I went to a nail salon before for my one and only pedicure/manicure.  They did draw blood.  Now that I know about this being a possible exposure method for many who did not have obvious risk factors, I will never go to a pedicure/manicure place again.  I will do my own at home.  It's just not that important to me and I really don't want to have carry around my own tools and have to explain to some nail tech that I'll probably never see again.  Anyhow, I'm just thinking that if one did get SVR, and got reinfected this way..., well I'd be quite frankly P/O'd.  Susan400
Avatar universal
What new  treatment would depend on what genotype you are. Right now the new treatments include the meds Sovaldi (Sofosbuvir) and/or  Simeprevir ((Olysio). Depending on your genotype, your doctor will prescribe the appropriate treatment. There are more new meds that are very soon to be approved.  Most patients who have been treated with a Sovaldi-based treatment over the last 8 months were undetected for the virus by week 4 of a 12 or 24 week treatment. Some are now reporting SVR12 (cured)  but others have relapsed. Nevertheless, even the livers those who have relapsed have all gotten a break from the relentless attack of the virus while they remained undetected.
   My husband was treated with Sovaldi & Ribavirin for 24 weeks. His platelet count actually improved over the 6 months he was on treatment and is in normal range. However his hemoglobin which has been below normal since his transplant, dropped further during treatment.  Post treatment it is holding steady in the 10 range.  His Alt and Ast are still in the normal range 5 weeks post treatment, despite his having relapsed. So I would say that despite his having relapsed, his time on treatment definitely helped his liver. How long these positive results will continue remains to be seen.

Keep us posted. There are many here who will be happy to give you advice based on their personal experience with Hep C and the new meds.  

Nan
2059648 tn?1439770265
Did you read what " Idyllic " wrote?  Hepatitis C doesn't go into remission.  If you have treated your hep c and relapse then you will have a very high viral load within months of finishing treatment.  It's more likely that "cam76" has been re-infected with Hepatitis C or is just testing positive for hep c antibodies.   I and numerous others have been cured of hepatitis c and collectively know that you can't get hepatitis C back without re-infection.  
I think the chances are like a 1% chance that could happen.  So it's a 99%
chance you won't get it back without re-infection.  That's even better than paternity test results.  I think that they have to say at least 1%.  In paternity they give you about a 97% it's your kid.....and your the parent.  I think 1% change you got hep c back and never really cleared the hep C virus is a 1 in a billion chance......and maybe 1 in a trillion.

Best to you
7510956 tn?1411675017
I cant wait for the day to come that I will be Hep C free and halt my liver damage. Hope you are correct and all of them WRONG. In you opinion what do you think of the article date 9/7/2014 that was posted by HCV Advocate where it was mentioned that protease inhibitors had major safety issues?
683231 tn?1467326617
Hi Fred

I tried to find the article from HCV advocate about protease inhibitor safety you mentioned with no luck. Would you have a link for it? Which meds were they specifically discussing?

I never was able to treat with a protease inhibitor like Incivek (Telaprevir) because I already had cirrhosis by the time it was released.

The new treatments like Sovaldi a HCV NS5b polymerase inhibitor, Olysio a HCV NS3/4A protease inhibitor, and Ledipasvir a NS5A replication
complex inhibitor are different from the old Telaprevir. Thus far they seem to have a very good safety profile unless you have some additional information I have not as yet run across.

Who are the "all of them wrong" is that about 12 weeks SVR being a cure? I guess what you are referring to. In the older study information 24 weeks was considered a cure but now the consensus seems to be:

"Patients who achieve SVR12 are considered cured of HCV infection."

http://www.thepharmaletter.com/article/gilead-s-ledipasvir-sofosbuvir-achieved-100-svr12-among-chronic-hepatitis-c-patients-in-japan

I was going to check at 24 months if I was still clear ar 12 weeks as a just to be very, very sure check, but from everything I have read 12 weeks SVR is now considered cured of hep C

Good luck to all
Lynn
2059648 tn?1439770265
Didn't find the article that you referenced.  But if you want my personal opinion on the subject ......I would say yes there is safety issues.  This isn't new news.  

Best to you and wishing you a Hep C Free (cured) outcome.   One you can enjoy for the rest of your life.
Avatar universal
well i dont think i was refected was going on my 4th year check .my dr said it could come back .well its back .but i'm not giving up i will try again .and i think she said my viral load was 12 million i think .did not wont to hear that
2059648 tn?1439770265
Good luck at you 9/22 doctor appointment.  Just remember that your viral doesn't determine how damaged your liver is.  You could have a viral load of 12 million and have stage 1 liver damage.  Or you could have a 1 million
viral load and have cirrhosis.  Your Hepatitis C viral load can change to less or more at anytime.   I take it that your GP told you that you can get back Hepatitis C at anytime without re-infection.  This would be a good time to write down these question...and ask the Specialist your seeing on 9/22 what a high viral load means and does Hepatitis C come back after you've been
cured.  Please come back at let us know what the specialist says.  GP's
often give miss information when it comes to Hepatitis C.  I still can't believe what my GP told me about Hepatitis C.   Is amazing the untruths a GP can tell you about Hepatitis C.  

Best to you
Have an Answer?
Top Hepatitis Answerers
317787 tn?1473362051
DC
683231 tn?1467326617
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.
Smoking substitute may not provide such a healthy swap, after all.