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488823 tn?1218370567

much concerned and need help

I have not been around for a while after failing my last trial in Miami. My liver is all scared and I'm sure much worse then 2009-2010 but now My new doctor has put me on Pegasys proclick (180) the usual Rribavirin 1200 mg a day and the new Incivek 750 mg every 8 hrs. I'm close to 70 years old and I guess this will be my last chance as he put it, so I'm very concerned with the outcome and what to expect during this 3 month although I still might be on the old medicine beyond this 3 months. I'm going on my second week on thursday and I'm not feeling too good. My urine has changed color like I never seen it before and I feel bad all over. I'm also taking pills to get this Amonia out of my system and thats one indicator I'm much worse, because I never suffered with this before. Any in-put would be helpful, and if anybody was and is in the same situation would be helpful. Thanks
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Avatar universal
Congrats on attaining SVR!  I am so happy for you.  Check with your doctor, but as others have said, you should see your hepatologist about every 6 months for ultrasounds or CT scans to screen for liver cancer, and also for lab work to make sure that your liver is working well.  You should also stick with a liver friendly diet, no alcohol, and avoid medications that harm the liver. You have Cirrhosis, so take care of your Hep C free liver salvo.  Thanks for coming back and giving us this good news.  I think of you often.
Advocate1955
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1747881 tn?1546175878
Big Congrats on attaining SVR

Wishing you all the best
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1840891 tn?1431547793
Super congratulations Salvo! I'm SO HAPPY for you. Welcome to the SVR club and best wishes for your good health to be resurrected - hopefully quickly, but do try to be patient, as it usually is a slow process to heal after what we've all been through. I'm just so glad you made it. Hugs!
Helpful - 0
Avatar universal
Congrats Salvo!  Way to push through :)
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Avatar universal
First congrats on gaining SVR. As for follow up testing because you do have cirrhosis besides being screened for HCC if you were DX with grade 1 varices one should also have And Upper GI done at times along with LFT blood tests............. Wishing you the best.

Helpful - 0
1815939 tn?1377991799
This is truly fantastic news. In fact, this is the best news I have heard in a very long time. Congratulations!

You had so much against you and you persevered and made it through against all odds. That is truly commendable. And it paid off.

Enjoy your new Hep C free life.  : )

As far as checking, yes, since you have Cirrhosis, you need to be monitored by a Hepatologist every 6 months for Hepatocellular Carcinoma. I am sure you probably need other monitoring as well and hopefully some others who have Cirrhosis will chime in on monitoring when one has Cirrhosis.

Best of luck going forward.
Helpful - 0
488823 tn?1218370567
Hi you guys, This is an update for all of you and I'm happy to tell you after 6 months from my last dose, I guess I'm SVR because they told me everything looks good but I'm still trying to get copies of my tests, to see what the #'s are. I know it doesn't show on the Virus but really need to find out on platelets and other #'s so I can feel relieved. Now from what they tell me I need to keep getting checked on the scaring of my liver from time to time and of course I'll be 69 soon so who knows what will be. I just want to say thanks to all of you for forcing me to go the distance instead of the original plans. THANKS, THANKS, THANKS.
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Avatar universal
Good luck salvo
Helpful - 0
488823 tn?1218370567
Thank you guys
Helpful - 0
4896357 tn?1360670904
Congratulations! It sounds like you have it beat. Any doctor can order the VL test.
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Avatar universal
Hi Salvo,
Maybe someone else from Georgia will answer your post.
I found the following:

Dr. Muhamad K. Obideen, Gastroenterologist
1100 Northside Forsyth Dr., Ste. 200
Cumming, Georgia
770-781-4010

Dr. Hetal A. Karsan, Hepatologist
1100 Northside Forsyth Dr., Ste. 200
Cumming, Georgia
770-781-4010

Advocate1955
Helpful - 0
488823 tn?1218370567
I guess a hepatologist is what I'm looking for although I thought some one from the area could recommend someone near me.Atlanta is too far away, "maybe 75 miles" thank you
Helpful - 0
Avatar universal
There are gastroenterologists in Cumming, but if you want a hepatologist you may need to go to Atlanta.  Which do you prefer?
Advocate1955
Helpful - 0
488823 tn?1218370567
Sorry for not being on so much, but I just moved to Georgia, and dont have much time because of the move. I need to get checked around dec. 20, or so and wondering if anyone knows a doctor to finish up with my last test. I'm in the cumming area 30041, and I'm checking "north forsyth Hospital" for doctors but cant find any that treats HEP C. Thanks hopefully you can help
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Avatar universal
Congrats on remaining UND 3 months after treatment.  I think you are on the way to SVR!  Yay for you!
Advocate1955
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1840891 tn?1431547793
You've made my day with this news, I truly am so very happy for you!
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1815939 tn?1377991799
Wonderful news, Salvo. It is great that your lab is improving and that you are still UND. Being UND at 3 months post end of treatment gives you a 99.7% chance at SVR, which is exceptionally high. Best of luck. Wishing you SVR. (Keep us posted.)
Helpful - 0
Avatar universal
Good to hear from you Salvo and glad you feeling better.  Excellent news on the 3 mo post tx UND!  Off to SVR land :)
Helpful - 0
488823 tn?1218370567
Just want to thank all of you for thoughts and prayers, I'm grateful to have such caring people on this site.
Just got my results back since my last blood test and have not taken any medicine for 3 months, All my tests are in the BLUE and still UND and even platelets are up to 90 which is very high for me. I guess this MED worked and I'm happy as can be, and no more struggling with taken this medicine any more.I have been feeling much better although it still hurts but with scaring I guess it will. My doctor told me I should have a check again in 11 weeks, so  now that I'm relieved that should be no problem. I'll check in from time to time and at the moment I trying to move to another state so I'm all tide up. Again I thank you all for being so kind.
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1815939 tn?1377991799
Great that you are UND. Congratulations!

Hopefully as the days pass you will better and better. Please keep us informed. We do care.
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Avatar universal
Congrats on remaining UND!  What a victory!
Advocate1955
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901131 tn?1293744553
Third time's a charm this ones yours!!

Bob
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488823 tn?1218370567
Came back from the doctors today after lab, and found still UND but have a few things that still are off like, White and red count low, hemoglobin low,hematocrit low, platelet low,AN and AL low, but with all that, I do feel like its going to get better because I feel better. My urine is not dark and after I failed a few times, it got dark soon after but this time it seems better. Well I guess I know a lot more in 9 weeks for my next app. Thanks for listening
Helpful - 0
317787 tn?1473358451
Hi there! Congratulations on finishing tx,  I had very dry eyes all through therapy, like Pooh said it felt like sand in my eyes.  I used eye drop every day several times a day.
Finally a year and a half after tx my eyes are much improved.  I also had my eyes checked and was told they were fine.
I hope that yours gets better as time goes by.
Helpful - 0
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