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Avatar universal

on tx 8 week vl = 26 for SOC + Alinia

Hi Everybody, hope you're feeling as well as can be expected.

I'm still detected at at week 8 vl of 26 but expect to be UND by week 12.  Hemo dropped to 10.9 but then raised to 11.4.  I started discussing Procrit with doc but he won't prescribe it -- believes the risks outweigh the benefits.  Laughed at me because drawing blood too frequently to check for anemia can cause anemia.  Said that my MCV number (the one below Hematocrit) doesn't suggest anemia is riba-induced.  He says he has other treatments for anemia should I need them, one being testesterone.  

Anyway, I'm hanging in there but at week 10 am so sick of being sick.  You know the story.  Although I'm very fortunate and don't have as many sx as I could.  Haven't vomited once, no riba rash, no mouth sores, still have hair.  Mostly stay in bed about 4 days out of 7, and if I see one more lion stalking a wildebeast I'll start stalking something myself.

The best to you all,
Kittyface
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Avatar universal
I was glad to see your post.  Your results are so encouraging.  My husband (Joe) is predosing Alinia for 4 weeks and will start the shots the first of June.  I'm sorry you feel crummy but at least you don't have the mouth sores.  I've heard a lot of complaints about those lately and they sound quite miserable.  
Joe thinks the Alinia is making him feel tired.  I don't know if it is a coincidental effect or not.  He had some gastro upsets after about a week of taking it but that has subsided and he now just feels really tired.  
Glad your hanging in there . Thanks for the update.
Take care,
Ev
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Avatar universal
Hey, Don't really know what I can say to help, just wanted you to know that we are pulling and praying for you. yours, jerry ps. please keep us posted
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Avatar universal
Hang in there kitty its working hard for you and you have made it past the 8 weeks.

jasper
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475300 tn?1312423126
You sound a lot like I was during tx.  No throwing up, not much hair loss, No riba rash but I was itchy, I also was down for the count about 4 days of the week.  The hair loss hit later and so did the nausea, I just had 5 "good" I mean really good days in row at 10 weeks post tx.  Just hang in there.

Denise

P.S. I watched a ton of CSI, Law & Order, Crossing Jordan.  
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476246 tn?1418870914
Praying that it will get better real soon. Wishing you a lot of strength to get through this difficult time.

Marcia
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Avatar universal
Sorry you're not feeling well and hopefully you'll be UND at your next test.

While I honestly never researched hemocrit versus hemoglobin, what your doctor is saying doesn't sound right. If your hemoglobin was normal prior to treatment and it's low now, then it seems logical that your anemia is being caused by the ribavirin. And the solution is Procrit, not testosterone, as far as I know. And if so, I wouldn't wait too long, given how you feel?

Again, what your doctor is saying is new to me and he could be right, but I'm skeptical. Is he a hepatologist who treats lots of HCV patients? If not, you might want to get a second opinion in case you really do need Procrit.

-- Jim
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148588 tn?1465778809
"...drawing blood too frequently to check for anemia can cause anemia."

Please tell me he wasn't being serious.
Or at least that he uses sterile leeches in his practice.
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233616 tn?1312787196
hang in there...find things you can do laying down...type tv and hobbies..arts/vrafts/knit..
take your mind off the way you feel...and you'll get through the days better...
this too shall pass..

mb
Helpful - 0
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