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493068 tn?1224768915

post 48 weeks Interferon-Ribavirin

I completed the 48 weeksof Peg Interferon and Ribavirin Feb 2006 and have never been the same. I cleared the virus so far and feel very positive about this. I have never felt this sick and weak before the treatment. I have memory problems,weakness-fatigue, muscle and joint pain, headaches, severe facial and ocular Rosacea, depression panic attacks. I was very active before treatment going to yoga and work. I was so weak after treatment that I tore both my shoulders and just had the right one repaired. I feel like I am a train wreck and just can not find information to explain why this is happening....My doctor tells me everyone gets back to normal about 6 months post treament. This is not the case for me. Please let me know if you have the same problems. I have not been able to work for the last year due to these problems and it makes me feel so depressed.    
14 Responses
Avatar universal
Sorry to hear you're having problems, many of which appear all to common post treatment, and are often downplayed by the doctors both before treatment and after treatment. Wish I could agree with your doc that "everyone gets back to normal about 6 months post treatment" but it always doesn't work that way. It took me close to two years post treatment to get back to normal, or sort of normal, as some rosacea and an increased metabolic syndrome still linger.

For those relatively new here, the following is a compliation of threads pertaining mostly to post treatment side effects. They are not "cherry picked" as some posters in the past have suggested when I previously posted the list. They represent the viewpoints of whoever was posting at that particular time, both the good, the bad, and the ugly. Often the argument is made that those that post here tend to have more side effects than the general treatment public or else they'd be out playing golf or something instead of "whining" :)

Well, that's one argument, but another is that many here have admitted they tend not to complain too much about their side effects -- especially post treatment -- because it may discourage others from treating. So perhaps it's a wash with these two groups, really don't know, except an online survey someone posted a few months ago also suggests that most do not feel better after treatment, quite the contrary.

Of course, this doesn't mean not to treat, just that one should weigh the potential risks versus rewards.

http://www.medhelp.org/forums/Hepatitis/messages/46376.html http://www.medhelp.org/forums/Hepatitis/messages/46380.html
179856 tn?1333550962
I treated for 72 week and it's taken me about 16 months to start to 'feel' normal. Still I have the horrible skin rash that flares up on my face and hands and my thyroid is shot and will never return.

Are you undetectible still?  I try to hold onto that since it was the reason for the whole thing.

Some of us might just not end up as lucky as others.........although it stinks if we have SVR to hold onto at least maybe that can make us smile. :)

My thoughts are with you, I'm sorry you are feeling so poorly.
Avatar universal
I read some of the posts you have provided I didn't really see any examples of happy outcomes. I'm sure there must be some there, but I just don't have inclination to wade through it all. I do have to assume that the medical community is not engaged in some kind of conspiracy and that the vast majority will become symptom free post treatment.

I am sorry that has not been the case for you a many others.
387294 tn?1207623785
Well I am about 6 weeks off treatment and feel better than I did before treatment, go figure.  I guess everyone is different.
Avatar universal
HepCrud with out a doubt is a bum wrap. I WAS infected for over 30 years (assumed). I was scared to death when dx'd. I was scared of treatment. A shot a week. I hate needles. So what! I did the 48 wks peginton/ribavarin, and all the ADs and other drugs as needed. It sucked a big one. Tx made me pretty sick. I hated it. At the end of tx I felt like I had won. Im no quitter. I beat it. Top of the world for me.
Then relapse. What the hay. I decided to tx daily shot of infergen. God, I hate needles. Weekly blood tests. Procrit shots 2x a week I was a veritable pin cushion..
QOL was non-existant. Last shot was 09aug07. 90 day post TX I was UND. 6months post TX SVR. Now 8 months post TX I have more energy than I can remember having. At 58 I feel 39 again. Chasin' my wife all the time. Fallin in love all over again. Life is grand.

To cap it all, HepCrud slowly over many years drained me of life. All the while I thought I was just gettin old and I just had to deal with it.
Im glad I treated and would do it again if I had to.

HepCrud tested my metal and I became stronger for it. I will never give in. I WIN

I may not be any good but Im slow.
Avatar universal
I guess iam one of the lucky ones, geno 1a txd 96 wks, svr now 20 mths. Feel better than i have in years.  I still have some sides left over;  tinnuitis. visual dist.,but all joint pain gone.
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