stage four liver disease

[lostone2006]

HI MY MOM WAS DIAGNOSIS WITH LIVER DISEASE A YEAR OR SO BACK WILL SHE HAS BECAME ILL AGAIN AND SAW THE DR HE SAYS SHE IS IN STAGE 4 AND HER HEPATITISIS LEVEL IS VER HIGH WHAT DOES THAT MEAN

[foxy255]

you are wrong....the liver is the only organ in the human body that actually DOES heal itself.....ask your doctor, he will agree with me.

[Gallo206]

I also have Cirrhosis stage 4 and was diagnosed with Hep C. Treatment for Hep C is not as bad as it was years ago. I worked up untill the end of treatment. Of course I stopped treatment at 5th month.. (I had a very important family event to attend.) Also, I felt very fatigue during treatment, but not untill about the 3rd mo., that was my only symptom from Hep C treatment.
My viral load is 0 and has been for 1year+ now. Cirrhosis is same, not getting any worse. Your son can always go on disability if he needs to. I am a non-drinker female, over weight, 52 at time of treatment and a survivor from HEP C.
I was also scared that I wouldn't be able to work and would need someone to care for me, from all the stuff I read on the internet... alot is not even so!
GOD bless you both!

[maiki5349]

Just found out last September that I have had Hep B for years and have not known it. Because of this and drinking (socially only) I have stage 4 cirrhosis.

My GI is great and very experience with Hep both B and C and has had me on Viread for 7 months now. My viral load was 18 mil when I started and after a month it was down to 400,000 then to 100,400, and now undetected in my body. I am going to remain on it for the next four months to see if I fall in the 10% bracket of people that can completely clear the virus from their body. Hopefully that will be the case.

Asked your doctor about Viread for the Hep B. From what I hear a lot of Doctor's know very little about Hep B and want to treat it the same way that they do Hep C.  A GI Doctor that is experience in Both B and C is the way to go.  

[runningbrit]

If God is so good why did he give this to you in the first place!

[mollybaby]

2008 was diagnosed endstage chirrhosis, hep c geno type 3, did 9 months of treatment with interferon and ribavarin. Virus came back in 20011. I have been diagnosed with ealry varices 2011 and ascites and now having iron overload and skin blisters that itch and hurt and bleed they say this will not go away. I no longer drink alcohol and trying to quit smoking and having alot of pain . My GI Doctor says my liver has hardened and yet nobody can say anything except its up to the good Lord now. Has anyone had this problem I believe the stigma attached to the Hep C hinders getting the proper care one needs. I feel I have been tossed aside to die and I dont know what else to do.

[mollybaby]

contact Roche laboratories they donated my treatment which can be costly I lived in Aiken South Carolina  2008 I was diagnosed endsatge chirrhosis, with Geno type 3 ,Hep C, went thru the treatment for 9 months and virus was gone but came back in 2011 not Im starting to have complications like varices,enlarged spleen,iron overload which cause blisters that itch and hurt and bleed. I hope you are able to find treatment for your father.

[orphanedhawk]

I just saw this post and wish you'd post a new one on of your own so more of us will  respond to you.

Just go to the top of the page and hit the brown button that says
'Post a Question'

[memaw417]

God I so know ya`ll feeling.For my husband to is going through the same as your husband he is 52.I had to go to work to make by.And i lost my Mom to it also Jan.16,2011 very peaceful with it.My Dad Aug.7 2011 with liver and pancrea.So my heart is with ya`ll,God bless ya`ll.

[memaw417]

God I so know ya`ll feeling.For my husband to is going through the same as your husband he is 52.I had to go to work to make by.And i lost my Mom to it also Jan.16,2011 very peaceful with it.My Dad Aug.7 2011 with liver and pancrea.So my heart is with ya`ll,God bless ya`ll.

[JasmineT]

Hi Ellena, I am sorry to hear this news.  There are people on this forum that can Help you but this is an old thread and you will get better response if you post a new tread/question on the main hep c forum.  http://www.medhelp.org/forums/Hepatitis-C/show/75

[ellena173]

I just found out today that i am stage 4 lvl 4 hep c do not know how bad on the hep.. I AM SCARED!!   I have little support at home, if and when i feel sick my husband verbly berates me that it is my fault and he is sick and tired of me needing to go to the doc.. can anyone help me??

[hrsepwrguy]

This post is very old, for better responses to your question go to the top of the page and use the orange post a question button, it will start a new thread. Hope that helps

[imelda39]

Please advise emergency action. My husband is having painful on his leg muscles and could not stand up. He has cirrchosis of the liver stage 3 hepa C secondary. He's taking furosemide/aldactone/omepron/metronidazole/inderal. Please advise which medicine he should first stop for his to avoid pain on his muscle along the legs. He is also taking B complex, is this ok to combine all the medicines above. Need badly your help as he is also having fever now. tks.

[MONAVIE111]

I AM SO SORRY TO HEAR WHAT EACH ONE OF U ARE GOING THROUGH IM JUST LEARNING MY SELF WHAT THIS HEPATITIS LIVER DISEASE IS:(

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[Bill1954]

Sorry to hear of your friend’s dilemma. You might want to repost your thoughts by going to the top of the page and clicking on the green ‘post a question’ button; this will open a new thread.

Good luck and take care-

-Bill

[concerned778]

My long life best friend was diagnosed with final end stage 4 liver disease and we are frightened and not sure what to expect next. She was diagnosed with cirrhosis last year and has abstaned from drinking since but has also experienced other health issue. We are not sure if she has hep at all but was told she had liver cancer but then after the CT Scan that was not evident.  She was just released from the hospital yesterday and was mostly being treated for a urinary tract infection which also contributed to a blood infection. We are trying make sense of all of this---and looking for some insight.  Another very sad factor is that she has no health insurance and is being treated at county hospital, and we are beginning to think they don't care as much for the uninsured.  Please anything information you can offer will be very helpful.  Also want to add, we have an appt with her primary Dr. on April 5th and hoping to walk away more informed.  

Thanks for your help and please pray for Guadalupe Maria R.  

[Kacy123]

My husband , who is only 53 years old, has just been told he is in stage 4 of liver disease. He was treated four times with Interfuron, pegasus, etc. and if he could he would get treated again. Unfortunately the treatments  failed. Did he get sick, yes, of course. But, six months of  having flu like symptoms and depression did not deter him because he wants to continue to live to be with his children and grandchildren. There are some genotypes that are resistant to interfuron. I implore you to beg your son to get the treatment that can save his life. Anyone who is reading this, if you have to, get Social Security Disability, especially while in treatment. If your spouse has to go to work, so be it. I was a stay at home wife until my husband became ill. His Social Security was not enough so I now work forty to fifty hours a week but do not mind one bit. Along with his hep C he also has Congestive Heart disease, diabetes, and is hard of hearing and must wear hearing aids. My mother died of Hep C. One day she got out of the shower, sat on the chair, and lapsed into a coma. I only hope and pray my husband can go as peacefully as she did; however, we will continue to fight until the bitter end with vitamins, exercise, and a healthy lifestyle.  For all of you who are out there sick, God bless you and good luck. Miracles do happen  - and often!

[paen53]

Sorry to hear your Mom is feeling so poorly. None of us are docs here, but at first read, I thought about a stomach "flu" - but two weeks is a long time. Seems a follow-up visit with her PCP or hepatologist would be in order to rule out any other causes if the symptoms persist. Hope you soon find some answers......

[ygatica]

my mom is 50 yrs old. she ws diagnosed with hep c and cirrhosis about 8 yrs ago. she had a treatment that consisted of 2 medications that made her very sick. but at the end of the treatment it did help her. it is now 8 yrs later and this year has been hard on her, for the past 2 weeks she's had alot of stomach pain, nausea, vomiting, and not being able to hold anything down really except for toast. i just took her to the er and they said her blood work came back ok. what now. what does this mean. dr says they can only really give her pain meds to keep her comfortable. any advice

[Eudora1011]

i just wanna share my story, since i always read all your post and it makes me feel better. i am 27 yrs old still single and im hepatitis B since born my viral load is 60million above im stage 1 grade 2, i had my injection for peg inteferon but it only lasted for 2 months since i cannot tolerate with the side effects its really ruin my mood everyday, i dont have any serious fever during treatment, its just im always bad temper, moodswing and migraine.
before i stop the injection i had my DNA test result and it shows that my viral load come down to 523,000. the doctor suggest me to continue the ijection but i refused. now he just wait for my answer to continue with necleoside treatment.

i just wanna ask to whom that already had the treatment, how to overcome the side effects and how long the side effects will be last? im thinking to continue the injection since its working.

[orlando245]

I have had Hep C and now Cirrhosis for 12 yeras now, was treated with interferon in 96, again in 2002 with the Ribo pill and again in 2006 for 18 months I must admit the treatment is very hard if you cannot handle it, I have failed all treatments, I suffer from bad knees, bad back, lost of eye sight, anixiety disorders, sleeping problems you name it I have it, but life goes on I still work , IM retired Army but whomever reads this, hang in there I have belivie me the treatment can be hard, but with love ones and their support you'll survive, think positive , IM in pain daily constant visit to doctors and all I get is no surgery can be performed due to Liver condition, as we know you cannot take Medications if you have Cirrhosis, I also think positive because I tell myself I'll live longer than the doctor, watch your diet, dont drink, live life chillin and tell yourself I'll be alright and SSI is around the corner for those who qualify, work stress does help and stress itself sure won't help you, and been thru hell and back and still hanging in there, and I hope all of us who suffer from this diease god bless us all.

[skippy01]

In 2004 my brother was diagnosed with Cirrhosis Hep C and did nothing.  We didn't know what stage or grade he was at that time.  He just block it out and never went back to a liver doctor. He has had other health problems in 2002 he had a heart attack that damaged 30% of his heart. He has had 4 back surgeries.  Since Nov 2009 he has been showing signs of the liver disease.  He was just recently in the hospital had fluid drained from his stomach for the first time.  His platelettes were low 35,000 and his INR was to high they had to go through his neck to get the biopsy. They had to give him alot of blood. Got the results this past Thursday STAGE 2 GRADE 2.  He's really jaundice spleen is enlarged, sleeps all the time and food does not taste good and dizzness. Also is taking medicine to keep the ammonia level down. Also his blood pressure is low 86/50. The doctor said he's to weak to take the treatments now. Should he be so sick at stage 2 grade 2?

[Bill1954]

The answer depends largely on how advanced the cirrhosis is; stage four can be classified as A, B and C under the CTP scale. Please consider reposting your question by going to the top of the page and clicking on the green (or yellow) ‘post a question’ button. This will open a new thread; the one you tagged on to was started in 2006.

--Bill

[needtoknow1176]

My mother has been diagnosed with stage 4 Cirrhosis.  Not well educated on this subject yet and was just wondering what type of treatment is out there besides transplant?  She has NO insurance and not sure what to expect...