Aa
started to feel horrible and very grumpy
I started to feel really bad and felt like my personality had changed (for the worst), acting very snippy at everyone. I work in sales so this is not a good thing , and i have two small children. I have hep c , and have had for over 3o yrs., but i have not sought treatment because 4 yrs ago when biopsy was done i was told it was very mild and non aggressive. My new results just came in and my alt level was at 690 and my ast was at 216 . I am very worried right now , I do have an appt to see spec. next week. I have been having really strange things happening , I feel like I am in a bubble, and when i look at things they seem to move like a vapor, i cannot get enough to drink and i cant seem to pee enough, my throat also seems swollen and my voice is changed. i also have diabetes type 2 was has went from 6.5 to almost 10 on the a1c test , has anyone else been where I am, what is happening ? what should I expect ? if anyone could offer any help would greatly appreciate it ......
finally got diabetes under control, back at work all well until I start treatment, they are ordering meds, thanks for all the support through hard times will get back in a week or two to discuss treatment and let you know how it is going, bye for now....
put trolls in a blender with whole fruit, made a troll smootie , it was quite tasty.....
put trolls in a blender with whole fruit, made a troll smootie , it was quite tasty.....
Well several days into trying to control diabetes so far so good got to go to the dr. to be approved for hep c treatment, making appt today....will say that getting the diabetes under control (at least trying) is making a difference on my overall attitude and clearer thinking process...
If anyone did miss the moon last night, in my pics is a picture from last night, the moon was closer to earth then normal... wont be that close again for quite a few years.... maybe thats a sign that we will all get better and everything will be great :)
Dang sorry to hear that, what are you going to do to treat it? and you call it a riba rash what is that from? the ribaflavin, is this something I can expect..
also as much as I whine and you listen, you can whine all you want and I will listen...............I kinda think that is what we are all here for, is each other :)
Well try to have a good day, I need to go out to car and get camera, and later I will put some pics of "day at the lake" up feel free to look if you want to ...
As the week goes on I will let you know what happens to the "newbie"
I dont think this week will be as exciting as they have to order meds and etc...
blood sugars went back up to three hundred this morning, and started the double dose, .....hope this works...bye for now.
also as much as I whine and you listen, you can whine all you want and I will listen...............I kinda think that is what we are all here for, is each other :)
Well try to have a good day, I need to go out to car and get camera, and later I will put some pics of "day at the lake" up feel free to look if you want to ...
As the week goes on I will let you know what happens to the "newbie"
I dont think this week will be as exciting as they have to order meds and etc...
blood sugars went back up to three hundred this morning, and started the double dose, .....hope this works...bye for now.
I like this trolleater-thread, it's like the Never-Ending Thread : D
Hey, that is great, that you managed to be "in the moment" in the sun-shine, with your kids, today!
So now, can I whine??? I developed a Riba-Rash, from going out in the sun, and it's taking on all kind of new forms of itchiness. It's on my torso, and I just noticed the skin under the welts is getting to be like elephant skin...wahhhh!!!
Hey, that is great, that you managed to be "in the moment" in the sun-shine, with your kids, today!
So now, can I whine??? I developed a Riba-Rash, from going out in the sun, and it's taking on all kind of new forms of itchiness. It's on my torso, and I just noticed the skin under the welts is getting to be like elephant skin...wahhhh!!!
I started to write about ten or more lines and whine, but NO,
today I went fishing, and did not catch but one little blue gill, took my kids and one of their friends with me, and we had a great time. I got some great photos of them playing and fishing, catching frogs, and laughing.....
One of those days when you know why you live, and what life is worth..
so today I will not whine or grip about anything, I did have a crazy week, but now it is over, and next week will be what it is, I will post some pictures of today in the next day or two, and maybe it will help someone like me who has had a bad week............love you guys and will talk to you later..
Thank you so much for all the support, I can not tell you how much it means to me....
Tonight I took a troll, and used a slingshot to shot him to the moon, and the moon grew bigger.....just look outside
today I went fishing, and did not catch but one little blue gill, took my kids and one of their friends with me, and we had a great time. I got some great photos of them playing and fishing, catching frogs, and laughing.....
One of those days when you know why you live, and what life is worth..
so today I will not whine or grip about anything, I did have a crazy week, but now it is over, and next week will be what it is, I will post some pictures of today in the next day or two, and maybe it will help someone like me who has had a bad week............love you guys and will talk to you later..
Thank you so much for all the support, I can not tell you how much it means to me....
Tonight I took a troll, and used a slingshot to shot him to the moon, and the moon grew bigger.....just look outside
Oh, Haha...I re-read the post: I started out choosing the Incikek, but remembered the dietary requirment, and went with Victrelis....
The Pegasys is known to cause this sort of disorganized thinking, lol
Those spring-trolls sounded yummy : )
The Pegasys is known to cause this sort of disorganized thinking, lol
Those spring-trolls sounded yummy : )
Wow, I cant believe how much you have just gotten dpne!! YYou are a real trooper, I thought I had gotten so much done, when all I did was go to my PCP for an urgent care appt, to get anti-itch pills (Hydroxyzine?)...the Riba gave me a rash, when I went in the sun. Everybody warned me not to go in the sun, but I'm not a vampire V^^V !!
I think, in your case, I would pick the Incivek, because it is only Triple tx for 12 weeks, and the rest of the time will only be the Pega/Interferon shot, once weekly, and the Ribavirin pills.
The other one is the one I'm on, called Victrelis, so I had a 4 week leadin, with just the Pega?Interferon shots and Ribavirin pills, and that was easy. But when they added the Victrelis, I got much worse side effects, and will be on all three meds, the total treatment being 28 weeks, for me, with 24 being on the Triple Tx, so it is at least twice as long as the Incivek triple tx.
With the Incivek, you will be bombarding your body all at once, with three strong meds, sudden kill...BOOM!
If you want to go slower, then try what I'm on, the Victrelis. The four week lead in will give your body time to get used to the first tow meds (Pega/Interferon shot, and Ribavirin pills) and you will get an idea if your body responds well to the Pegasys plus Ribivirin. In my case, I cleared my Hep C virus, at the 4 week test, and all AST/ALT liver enzymes went down to normal at that point. Then the Doctor added the Victrelis, and I just did my 12 week viral load test, and waiting for the results,
Now, the Incivek can cause a painful rash (worse than the Riba-Rash I have right now) and anal issues, such as anal bleeding hemmhoroids, and anal fissures. (only sometimes, some people only have burning, etc)
The Victrelis has a side effect called "dysgeusia"..a very bitter taste in the mouth, so you will have to use tons of mouth-wash, and I like the Toms' peppermint toothp[aste, with xylitol.
NOW~ one more IMPORTANT thing for you to bring up to your Doctor: the Incivek (which he is leaning towards) requirs a walloping 20 grams of fat, three times a day. This requirment will be a big challenge for you, because you are still struggling with your blood sugar.
The Victrelis only needs to be taken with a light meal. So in my opinion, I think you should choose the Victrelis, because of your diabetes.
Have you had a liver biopsy yet, by the way??
I think, in your case, I would pick the Incivek, because it is only Triple tx for 12 weeks, and the rest of the time will only be the Pega/Interferon shot, once weekly, and the Ribavirin pills.
The other one is the one I'm on, called Victrelis, so I had a 4 week leadin, with just the Pega?Interferon shots and Ribavirin pills, and that was easy. But when they added the Victrelis, I got much worse side effects, and will be on all three meds, the total treatment being 28 weeks, for me, with 24 being on the Triple Tx, so it is at least twice as long as the Incivek triple tx.
With the Incivek, you will be bombarding your body all at once, with three strong meds, sudden kill...BOOM!
If you want to go slower, then try what I'm on, the Victrelis. The four week lead in will give your body time to get used to the first tow meds (Pega/Interferon shot, and Ribavirin pills) and you will get an idea if your body responds well to the Pegasys plus Ribivirin. In my case, I cleared my Hep C virus, at the 4 week test, and all AST/ALT liver enzymes went down to normal at that point. Then the Doctor added the Victrelis, and I just did my 12 week viral load test, and waiting for the results,
Now, the Incivek can cause a painful rash (worse than the Riba-Rash I have right now) and anal issues, such as anal bleeding hemmhoroids, and anal fissures. (only sometimes, some people only have burning, etc)
The Victrelis has a side effect called "dysgeusia"..a very bitter taste in the mouth, so you will have to use tons of mouth-wash, and I like the Toms' peppermint toothp[aste, with xylitol.
NOW~ one more IMPORTANT thing for you to bring up to your Doctor: the Incivek (which he is leaning towards) requirs a walloping 20 grams of fat, three times a day. This requirment will be a big challenge for you, because you are still struggling with your blood sugar.
The Victrelis only needs to be taken with a light meal. So in my opinion, I think you should choose the Victrelis, because of your diabetes.
Have you had a liver biopsy yet, by the way??
Oh, and bye the way good luck to you I hope all goes well , If you dont mind keep me updated on whats up so I know what to expect...if you don't mind.
and I do agree about this site, I have already recommended it to people all over the USA(mostly family members or clients).
and I do agree about this site, I have already recommended it to people all over the USA(mostly family members or clients).
I do understand. It is quite the emotional pull to be so happy to finally start treatment and I was so terrified of the what ifs. I too am very hypersensitive and in touch with how I operate. I decided to ahead with with it all as I had a perfect window of time, FINALLY, in my life to take care of me. This is such a wonderful site for information, encouragement and support. Best wishes....
Great to hear that you have not had too many side effects, I have been very worried about it as I seem to be very in tune to my body and feel things easy
so thanks for positive post as I am afraid of what will happen and excited to get it started if that makes any sense....
so thanks for positive post as I am afraid of what will happen and excited to get it started if that makes any sense....
Great job of getting your pre treatment exams completed. I use the incivek and will hopefully only have to take for 12 weeks instead of my full 24 week treatment. Will be nice to be down to only 2 meds...Have just started week 6 without any real sides YET. Best wishes :)
My bad, I will be doing the triple tx it will be pagasys and riaviran and incivek
I am just so new to this and was looking at just a box they had given me, so I guess I need to revise my question .... are these the recommended meds or is their something else I should be aware of , they did give me a choice between incivek and something else but the dr recommended incivek... thanks for helping me.....the victelis was the other one...I am going to choose the incivek... is that what others have done ?????
By the way had colonoscopy this morning and all went well, they did find two small polyps and removed them dr. said nothing to worry about.
I tried to teach a troll to spell but he could'nt so I ate him,,,,
I am just so new to this and was looking at just a box they had given me, so I guess I need to revise my question .... are these the recommended meds or is their something else I should be aware of , they did give me a choice between incivek and something else but the dr recommended incivek... thanks for helping me.....the victelis was the other one...I am going to choose the incivek... is that what others have done ?????
By the way had colonoscopy this morning and all went well, they did find two small polyps and removed them dr. said nothing to worry about.
I tried to teach a troll to spell but he could'nt so I ate him,,,,
I'm guessing that maybe your doctor rushed a bit in describing the tx options. Genotype 1A is a stubborn one to treat, and the success rates with Pegasys alone are abysmally low. The success rates with Pegasys and Ribavirin together got a lot better but were still not great. Many of us (including myself) went through both of those treatments and still had the virus. It's only since they added one of two new protease inhibitors to the mix that success rates started to be really good. That means a triple tx. Both versions include Pegasys and Ribavirin, but one version starts off the therapy by adding Incivek (also known as Teleprivir) for the first 12 weeks, and the other version starts off with just the 2 drugs but adds in Victrelis (also known as Boceprivir) later in the tx. Does this sound like what your doctor may have been trying to say, and are you seeing an actual hepatologist for tx?
Eye exam went well although the first doctor thought he found something and then I had to rush over to specialist while still dialated and he took one look and cleared me for the hep c treatment, so now I have almost everything done in order to start treatment....colonoscopy tomorrow....
My other dr who is working on diabetes called me and since my body has issues with metforman(almost killed me about 1 yr ago) he now wants me to do 30 units of insulin in morn and 25 units at night which seems like a big increase to me as four days ago I just jumped up to 25 units at night, but my blood sugars havnt shown much change so Im going to roll with it I trust my primary care dr. alot....
Yesterday I went walking as I was grocery shopping and I had a dull but constant pain in the upper right hand side of stomach, I can only assume that is where they took biopsy. but it started to hurt alot and I had to go home and take it easy, still bothersome today but not as bad
AND NOW FOR THE BIG ??????
They are going to use PEGASYS TO FIGHT THE HEP C
any feedback , I was told this med. had the highest success rate at about
78% ...... I did have a choice between this and I think Ivocect or something like that I am sure I am not spelling it correctly and I dont have the paper with the name but I know it started with an I....
If you have any info to help me confirm my choice please let me know asap, they have not ordered yet...
If you boil trolls with chicken and mushrooms you will get a wonderful tasty broth.....
My other dr who is working on diabetes called me and since my body has issues with metforman(almost killed me about 1 yr ago) he now wants me to do 30 units of insulin in morn and 25 units at night which seems like a big increase to me as four days ago I just jumped up to 25 units at night, but my blood sugars havnt shown much change so Im going to roll with it I trust my primary care dr. alot....
Yesterday I went walking as I was grocery shopping and I had a dull but constant pain in the upper right hand side of stomach, I can only assume that is where they took biopsy. but it started to hurt alot and I had to go home and take it easy, still bothersome today but not as bad
AND NOW FOR THE BIG ??????
They are going to use PEGASYS TO FIGHT THE HEP C
any feedback , I was told this med. had the highest success rate at about
78% ...... I did have a choice between this and I think Ivocect or something like that I am sure I am not spelling it correctly and I dont have the paper with the name but I know it started with an I....
If you have any info to help me confirm my choice please let me know asap, they have not ordered yet...
If you boil trolls with chicken and mushrooms you will get a wonderful tasty broth.....
I've had to wear those compression socks here & there, I have 5 pair......
They're not bad......They'll keep those swollen ankles & calves in check trolleater...
They're not bad......They'll keep those swollen ankles & calves in check trolleater...
endoscopy found some mild vascular swelling and signs of acid damage in lower part of throat, now I get to take more medicine. they found some other issues so they took biopsy will follow up on later, right now really tired and I dont think anything was real serious. I have eye exam tomorrow with dialation and Friday I have colonosopy ( i keep getting red underlines so I know i am misspelling some words, but I have never been good at spelling, and just dont feel like fixing them). but thanks for all the good post and will keep you informed as I move along....
Wow so much good information, I feel special, and I did not know they even made a device to hold blanket off your feet, as bad as it is it lets me know that I am not the only one. Talked to dr yesterday, went in and got hep a and hep b shots (have to have before they will allow me to start treatment for hep c ), and talked about the feet being so cold, they agree that it is diabetes as I also believe because when blood sugar is lower they are not as cold, as far as the socks go, I have been wearing shortys for a long time, except at work there I have to wear a suit and tie (professional attire). and shorty's just dont go well....lol but I wish I could , I have heard about these diabetic socks but have not bought any yet as it is the dress socks that really get me, even the looser ones just seem to cut right in.. well I am off to get an endoscopy so If I dont post again it did not go well..... Just kidding...
I think today I will wrap sliced pieces of troll in rice paper with bean sprouts and cabbage so I can make springtrolls ....
I think today I will wrap sliced pieces of troll in rice paper with bean sprouts and cabbage so I can make springtrolls ....
I always have cold feet and hands also, and had trouble with socks hurting my ankles/legs, this past year, and they would leave these deep marks in my skin, which is one of the reasons I knew it was time to get treatment.
What I always do now, is wear the ankle socks, in a too large size, but you can go a notch lower, and I know the mens dept has sock like this, they are called "no show" socks, even lower then the ankle socks. They are not the most macho socks, and they sometimes slip down, with me, but at least it takes care of the pain.
What I always do now, is wear the ankle socks, in a too large size, but you can go a notch lower, and I know the mens dept has sock like this, they are called "no show" socks, even lower then the ankle socks. They are not the most macho socks, and they sometimes slip down, with me, but at least it takes care of the pain.
Mostly I've been feeling pretty helpless when reading this thread because I don't know much about it, but I finally have seen one thing I know of that can help! I used to care for an elderly relative with severe edema and very poor circulation of the feet and legs, and I found special socks for him online at footsmart.com. They are advertised as for diabetics, and they are incredibly soft, with a very easy stretch so they don't put any pressure on the skin. My relative was VERY happy with them The site also sells some special shoes for swollen feet that worked well for him, and I think they also had a little device that goes in st the foot of the bed and holds the blankets up to keep the weight off the feet. I sincerely hope some of these items can help you a little bit.
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Hopefully you’re connecting with either a GI or hepatologist next week. If you haven’t had a liver biopsy for four years, they might recommend another to see if fibrosis (scarring) has progressed. They’ll also probably order blood tests; CBC, compressive metabolic panel, etc. In fact, you might want to call their office today and see if they want to order labs in advance of your appointment next week; that way you could go over these with the doctor.
With liver enzymes elevated like that it’s likely you have some activity going on, but it’s hard to draw any conclusions based on those results. The other tests mentioned above might offer more diagnostic data.
Do you know what genotype, or strain of HCV you have? There have been advances in HCV management over the past few years; there are adjunctive drugs added to the original interferon/ribavirin that are make treatment more effective for select genotypes.
Good luck, and let us know how the appointment goes. Keep eating those nasty trolls-
--Bill