telaprevir? incivek

[jemaggie]

Started yesterday on the triple combo, they have it down as telaprevir, but that is just a different company's name for incivek, hoping that i can get thru to week 4 and have the required response, hope all you other heppers out there are doing well, any thing i shouild be aware of, didn't sleep last night, had terrible pains in every part of my body, but i have spinal stenosis, so i said i had spinal stenosis on steroids, boy the pain, has eased a bit now, so here's hoping, and will be aware of it next week when i have the next injection, xx

[gibsontx5]

My poor husband started 3 weeks ago, and has had some awful side effects - nausea, painful anal rash (dr gave him rx for cream yesterday), now anemia, and just generally feeling awful. Biggest problem has been trying to eat the fatty food and keep it down - he is finding that avocados are the best for him, but I've been trying everything. He also finds that more frequent smaller meals work better for him. He has to stand on his feet a lot for job, and has long commute, so both are tough.

[Advocate1955]

I would not recommend stopping the 20 g of fat, unless your doctor tells you to.  From all I've read, and from all we were told, the 20 g of fat were essential for the effectiveness of Incivek and also for decreasing the amount of anal/rectal problems.
Advocate1955

[malcyboy]

I would definitely ignore any conference that says fat is not important!

I have said before: high fat content has been proven beyond a shadow a doubt to keep the drug in the liver for a LONG time, which helps to give the virus a real beating. Also, because the drug stays so long in the liver, very little passes through the anal canal, result: no dreaded "BUTT BURN," which can be absolute agony. Someone's wife told me her husband's anal burn was so bad, he could not sit down, lie down or walk. He was in such a state he nearly gave up the will to live. It can be that bad, so stick to as much fat as you can stomach. I was taking 60g of fat 6am, 2pm, 10pm. A real blessing was "Virgin Olive Oil." I would take 30g before my usual fat intake. When eating fat was just too much, I would take 60g of oil. There are so many types and flavours, there's one to suit everyone. The nice thing about taking virgin olive oil is, it goes down in one shot, quick shudder, and it's all over!

So if you want the telaprivir to be less effective, and suffer the agony of the anal burn, go ahead and listen to these no nothings at the "conference." I bet your bottom dollar, no other scientists would agree with them.

Also, with the minimum amount of fat intake, 20g, you are still at great risk of the serious side effects I have just spoken about. So go for the FAT, it's well worth it. When the 12 weeks are over, you can start eating healthy again, and any weight you may have put on will disappear real quick!

Love and hugs to you all. God bless.

[jemaggie]

thank-you so much! yes! just took my antihistamine for the night, but the dreaded injection first, take them at night, so i sleep some of it off1! hugs xx

[malcyboy]

I have heard ice packs are pretty good.

I used a strong corticosteroid cream from doctor, helped fairly well in the daytime, but at night in bed with the warmth of the bed covers, I found myself scratching whilst half asleep, especially on my lower legs; this became a real problem, because once you start scratching it becomes a vicious circle, and it becomes difficult to stop scratching the dreaded "itch." So please do try not to scratch if possible!

You have my sympathy.

[malcyboy]

Hi jemaggie.

Just a quick comment to give you the right information.

Incivek is is the trade name used by the drug company; telaprivir is the generic name. (Or the chemical name of the drug).

Best wishes for the future. God bless.

Malcyboy.