Aa
Cree passed away
I'm sorry to let you all know that our friend Creewoman passed away this evening about 5:45 PM in the hospital. Her liver failed, her kidneys shut down, and she developed a cellulitis infection in her legs where the edema was so bad. She passed peacefully and without pain according to her family and doctor.
Thank you for your prayers. I know Cree's mother and the rest of her family thank you.
Advocate1955
Thank you for your prayers. I know Cree's mother and the rest of her family thank you.
Advocate1955
All, thank you for your kind wishes for Cree's family. If you have friends or family that are not yet organ donors, who are able to be organ donors, please encourage them to sign up.
IAmTheWalrus, yes, take good care of your new liver. I pray every day that everyone who needs a transplant will be able to get one.
Reva, Cree had been quite ill off and on over the past 9 months or so with several hospitalizations for severe cellulitis infections, low platelets, and severely low sodium/high potassium. Sometimes she felt fairly well and was able to do things, and other times she was very fatigued and in a great deal of pain. Several times she was so ill that she needed to be hospitalized. Keeping the proper balance between sodium and potassium was a big challenge these past 3-4 months due to needing to restrict sodium to help the edema, but at the same time restrict water due to high potassium. Not sure if I have all of that exactly right, but I know it was a challenge for her to keep those in balance. She worked very hard at monitoring her medications, diet, and fluid intake properly. In the last few weeks prior to her passing, she was very ill with ascites, edema, cellulitis, fatigue, pain, immobility due to ascirtes/edema, and other complications of liver failure.
Advocate1955
IAmTheWalrus, yes, take good care of your new liver. I pray every day that everyone who needs a transplant will be able to get one.
Reva, Cree had been quite ill off and on over the past 9 months or so with several hospitalizations for severe cellulitis infections, low platelets, and severely low sodium/high potassium. Sometimes she felt fairly well and was able to do things, and other times she was very fatigued and in a great deal of pain. Several times she was so ill that she needed to be hospitalized. Keeping the proper balance between sodium and potassium was a big challenge these past 3-4 months due to needing to restrict sodium to help the edema, but at the same time restrict water due to high potassium. Not sure if I have all of that exactly right, but I know it was a challenge for her to keep those in balance. She worked very hard at monitoring her medications, diet, and fluid intake properly. In the last few weeks prior to her passing, she was very ill with ascites, edema, cellulitis, fatigue, pain, immobility due to ascirtes/edema, and other complications of liver failure.
Advocate1955
It reminds me how lucky I am to have gotten a transplant. Wish I could share it. Good advice from you to all.
Advocate is our hero for lending a helping hand at a time of need.
As a transplant recipient I have to agree that there is no way of knowing how soon she might have gotten her transplant, and even if she had, whether she would have survived afterwords.
Cree's passing helps to remind us that hep C now kills more people in the US than AIDs.
The best thing we can all do ( IMO) is help to educate those we meet about this silent epidemic and to urge them to get tested.
Peace~
OH
As a transplant recipient I have to agree that there is no way of knowing how soon she might have gotten her transplant, and even if she had, whether she would have survived afterwords.
Cree's passing helps to remind us that hep C now kills more people in the US than AIDs.
The best thing we can all do ( IMO) is help to educate those we meet about this silent epidemic and to urge them to get tested.
Peace~
OH
BoGal,
It's impossible to say if Cree was close to getting her transplant or not, but she was 1 week short of completing the last required appointment to hopefully be approved to be listed, and at her previous appt with the transplant hepatologist, we were told that the wait time was low and the availability of adequate livers was good in our state. Her MELD has been high enough for over a year in our state, but the process of being assessed and approved is long, careful, and difficult here, as in any other state. She had a fabulous team at the transplant center.
All,
Cree did the best that she could do on her journey with Hep C and ESLD. She touched my life in a special way, and I am a better person for knowing her and knowing the unconditional compassion and kindness that she had for others.
My message to all with Hep C, especially with f2 or f3, will continue to be please treat when there are treatment options available and you and your doctor agree that it's the right time. My message to all with Cirrhosis will continue to be get to a transplant center and be seen regularly by a qualified hepatologist who can best manage care for the cirrhotic liver. My message to all with ESLD will continue to be get to a transplant center and do everything you need to do to be assessed and approved to be listed for a life-saving transplant.
Again, thank you everyone for your prayers for Cree and her family. She leaves behind a beautiful 14 year old daughter, a loving partner of 18 years, a dear and dedicated mother, and many friends in her very small, rural town.
I will pass all of your well wishes along.
Advocate1955
It's impossible to say if Cree was close to getting her transplant or not, but she was 1 week short of completing the last required appointment to hopefully be approved to be listed, and at her previous appt with the transplant hepatologist, we were told that the wait time was low and the availability of adequate livers was good in our state. Her MELD has been high enough for over a year in our state, but the process of being assessed and approved is long, careful, and difficult here, as in any other state. She had a fabulous team at the transplant center.
All,
Cree did the best that she could do on her journey with Hep C and ESLD. She touched my life in a special way, and I am a better person for knowing her and knowing the unconditional compassion and kindness that she had for others.
My message to all with Hep C, especially with f2 or f3, will continue to be please treat when there are treatment options available and you and your doctor agree that it's the right time. My message to all with Cirrhosis will continue to be get to a transplant center and be seen regularly by a qualified hepatologist who can best manage care for the cirrhotic liver. My message to all with ESLD will continue to be get to a transplant center and do everything you need to do to be assessed and approved to be listed for a life-saving transplant.
Again, thank you everyone for your prayers for Cree and her family. She leaves behind a beautiful 14 year old daughter, a loving partner of 18 years, a dear and dedicated mother, and many friends in her very small, rural town.
I will pass all of your well wishes along.
Advocate1955
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