Friday Night Whine

[wyntre9]

Sorry eveyone if I'm being obnoxious but "I'm mad as h*ll and I just can't take it anymore.'

Nahhhhh . . . wish I was mad - better than depressed - not even depressed - just disgusted.

Here's why:

We got a foot of snow.  Last year at this time I was able to shovel a 30 foot by 6 foot (approx) path from my garage to the street to get my car out.

yesterday, all I did was shovel off a 5' by 5' porch and 5 steps.  Today i had to hire someone to finish the driveway and a path to the basement.  

I posted about bone pain on the other side a couple of days ago;  it had gone away and now it's back with a vengence.

I HATE this forced inactivity.  I try to exercise but the second I go beyond a couple of stretches and very light weights, I feel it for days afterward.

I feel like an invalid in a nursing home.  I'm trying to be patient but I'm furious at having to keep up with these injections.  Tonight is 53.  (There's also a pattern to the whining, for me;  always seems much worse on the dreaded shot night.)

Thanks for letting me vent.

Any advice?

wyntre

[Anonymous225]

I wouldn't dare stop at the 12 week mark no matter what they told me.  I have come to far to finish it like this.

[sfbaygirl]

This group got me through the  47 weeks I did and beyond.  It helps so much to hang around here.  YOu don't have to stop at week 12 if you have a VL, it does mean you will have to go longer than the 24.  Odds can be less,  but not always.  There are lots of info about extending in the archives.  Welcome!

[Anonymous225]

No, I am Genotype 2a and I had a viral load of 3.6 million when I started.  I just had my big lab that will decide whether we go on or not on Monday.  I am torn on that one...if they tell me that I am not responding, should I roll the dice and go on and finish out the meds I have and ask for a lab at the end or do I just give up.  It seems that I have traveled this far and have put up with so much that it would be ridiculous to stop...but thinking, the sooner its over the better.

I don't know about anyone else in here, but just going through what I have gone through has opened my eyes to alot of things such as the pettiness of others - I see how I used to be in alot of people;  the taking of granted for the least little things that now seem to loom so large.  

We all have our coping mechanisms that seem to get us through this.  This forum for one.  But the one thing that I have found that makes my day is my journal.  I have turned it into a writing project and it makes me eager to know that after a long day of coping with these side effects and the emotions that seemingly run my life, I have a sounding board to sit down and write all that it makes me think about and realize.  And who knows, maybe once posted, it will help someone down the line that is in week one and staring down the long and winding road.

[wyntre9]

Any Hep-C is BAD!!!!!!!

I don't entirely understand about the AIH either but I'm so glad you're SVR from the hep-c and that at least the AIH sounds like it's under control.

Best of luck to you, Jody.

wyn

[Jody515]

What I meant was my HCV was a lesser evil then wyn's.  I had type 2 & she has type 1.  I believe the hcv kicked in the aih but really not for sure except that everything I read tells me that.

[wyntre9]

Hang on to that heart.  you might need it for something really important.  :)

It's the luck of the draw, that's all.  Imagine the folks who go through TX multiple times!  A couple of posters have done it 7+ times.

If it's any consolation, another thing I've noticed over the past year on forum is that sometimes the people who get the short TX seem to have worse, early onset sides.  the positive is that it's over a lot sooner.

So you're not genotype 1?

wyntre

[Anonymous225]

Yes, I am on the 24 week tx...I know I feel like I am going through hell, but I know better seeing you and so many others on the 72 week tx.  My heart goes out to you.

[Jody515]

wyn,
yes, the hcv is cured.  however, it took them 4 or 5 yrs to discover what was wrong with me. had hep tests taken for 7 months after my exposure, but hcv did not show up in that time span, that is not unusual.  when finally discovered, a biopsy showed the auto immune factor which had done alot of damage, more then the hcv, so that had to be treated first.  once that was under control, the dr I was seeing wouldn't treat the hcv, said it was too dangerous, so I went to the local university hospital where transplants are & saw the top dr who worked at Miami FL specializing also in auto immune & promised to see me thru,  He did & I am ever so grateful.  But he did say at end of treatment that I may someday require a transplant.  Thank you for all your thoughts & my prayers go with you in your treatment & re-coup.  Jo

[wyntre9]

So the hep-C caused the AIH to emerge?  

Prednisone is a nasty med but is a life-saver for many conditions.

The hep-c is cured, right?  it's a little ( a lot) confusing to me.  

wyn

[Jody515]

Wyn,
Yes, I still have the AIH & will always be on meds for it.  When I contracted the HCV from my husband back in 1997 I think it was, it kicked in the auto immune factor they believe. The gene was always there, but it normally needs something to kick it in.  Such as my younger brothers was kicked in by too much weight gain. The treatment for AIH is prednisone & azathioprine.  Of course because of the prednisone I have to take meds for bones & gerd. The Dr informed me that there still could come a time when I would require a transplant but hopefully not

[wyntre9]

It is soooooo encourgaing to hear success stories, especially those that include feeling BETTER after finishing TX.  

I'm 1A, slow responder, and so the best chance I have of reaching your level is the 72 week extension.  If I'd reached UND by week 12, I would have been DONE  6 weeks ago!!!!!

Oh well.....the luck of the draw.

Could you explain about the Auto Immune Hep?  Does that have a connection to hep-C?  Do you still have AIH?  How is that treated

wyn

[Jody515]

My heart goes out to you for 54 wks under your belt & more yet to go.  My doctor wanted me to do the 48 wk thing & I just couldn't take another minute of it. I guess your type of HCV is different then mine.  It took me a few months to feel better once the treatment was over, still not quite right in thinking at times, but it will be worth it in the long run.  Have faith & thanks for your comments back to me.  Jody

[wyntre9]

You are so right.  I was ecstatic at feeling remnants of my former energy today, even though it did only last for 5 or 6 hours.  I managed to run errands, do laundry, throw salt on the driveway, go shopping, even buy a wreath!  Simple things but oh so satisfying.  :)))))))))))

It reminded me that old brass ring isn't out of reach afterall, even though it sometimes feels that way.

I'm on month 13 of 18, week 54 of 72, and the past 3 months have been difficult.

Without the luxury of forum feedback, I know things would have been MUCH worse.

Countdown is on;  19 more injections to go.

Thanks for posting and you hang in there, too.

BTW, are you on the 24 week TX?

wyntre

[Anonymous225]

On those days that I feel great (and yes, they are few and far between), I think that its just a sign to me that I need to appreciate every day for what it is...but again, some days I can see everything so clearly - I could solve world hunger and put a stop to all wars - then the next day I am a slobbering idiot.

There is no rhyme or reason to any of this, but I am just along for the ride.

[wyntre9]

Thanks everyone for your help last weekend.

just thought I'd post some good news;  I had the BEST day I've had in months!  
YIPPEEE!


wyn

[wyntre9]

"All the stuff in my yard is now down the street :}
Problem solved!"

*LOL*

That's what I did with all the LEAVES this Fall.  Just waited for that big storm to come along.

wyn

[Lady Lauri]

Week 53 and you still remembered my hgb dropped to 10 , fast, etc !!!???  Many post and people ago!!  D*m girl...... you have lots of 'brain' left!! I'm having a hard time remembering 3 days ago post and who's who here in my 7 mths. here! I'm impressed!
  That ol' hgb drops just kicks your tail! I've not had many of the sides I could have, but the ones I've had hit hard, still NOT complaining...trust me! Just amazing when you first FEEL what that hgb can do to you! (OMIGOD, the bathroom is 15 feet away....thats soooo far! OMIGOD, the kitchen is wayyyy out there! An hour later......you finally make it to the bathroom and give up on the kitchen....the bed was closer, LOL!)

In hearing the many post of you extended tx-er's......chinese water torture sounds much easier!

P.S. Big storm here in central Fla. last night.....all the stuff in my yard is now down the street :}
Problem solved!

                                                                LL

[sfbaygirl]

I love it when the wind blows my leaves off my decks, but not  when the umbrellas end up in the pool.  My gutters are full again from Pine needles and am worried about rain,  but that is NOTHING like having to shovel snow.....Thanks goodness!  Happy holidays!

[wyntre9]

Thank you for the support, LL.

You're right that this can beat the cr@p out of us.  In your case, I remember you had a significant drop in HgB, right?  Ironically, it seems that those whose HgB drops more have a better response to TX so if it's any consolation, you'll have to feel like sh!t more intensively but for a shorter time that those of us subjected to the chinese water torture, the drip drip drip, of extended treatment.

With my hgB around 11 for 13 months, while I haven't had the severe SX of those with a drop to 10 and below, I'm still feeling it and I'm bored outta my mind with it!

As long as i can get some ATTENTION and RECOGNITION for my pitiful circumstances (hahahahahaha) I can keep going.  You know non-heppers don't have a clue about what we go through.  

Thanks for the good wishes.  And I say let those darn leaves or whatever it is on your lawn that has inspired you to rake it blow away.  :)

wyn

[Lady Lauri]

  I am humbled, yet again, by this site-people here. it's a good thing!
Week 12, 'only' 12 to go. Lowered my Peg and I am back to the land of the living a bit.............but not whining, just can't when I see you all do so many weeks (of course if I don't get SVR I will be among you!) , but I just don't see how you do it. I have spent 90% of my 12 weeks at home, was a very social, active, non stop, get it all done person. Sitting still was rare for me, even to watch a movie! This has brought my 'bad a*s' self to a stand still......as you said Wyn.... makes us see our invincibility; makes us feel weak.......and I don't like feeling weak!! I raked 1/8 th of my yard and had to go to bed! Used to do that in an hour or 2, than on to more projects. The leaves can just blow away  :} My sons would do it.....but I'm trying to keep doing 'normal' things! Can't imagine how this would be 40-50 weeks into it!!
  
All of you doing such long, grueling tx.................. stand proud! Even if you have to hold on to the bed post to do it, LOL. In tx life sucks, your mental attitude is a roller coaster and I am just getting a 'taste' of it........you need to keep remembering your AMAZING to keep going in this, to do that shot every week, pop those pill's and stay on course, even loosing all as you know it thru out the tx. I am in awe of many of you, and trust me, takes a LOT to put me in 'awe' of anything.

  Wyntre, your attitude remains awesome and humorous even while feeling so bad....... that alone is more than shoveling any driveway!

   I pray (yup, I pray, I said it! :} for your SVR....... to who I believe in :}......and hope your feeling better. All of you long tx-ers! You keep me 'up' and not whining. And you can whine all you want, you deserve it!


P.S. I'm in Fl. in SHORTS hanging Christmas lights, in the 80's......I would love to see some snow, or at least have a jacket on!!

Feel better all............................................  LL
  
  

[wyntre9]

Thanks Elaine.

I'll try to keep it to Friday Night whines until I can actually have a little Friday night WINE!  :)

wyn

[sfbaygirl]

Well I gotta say them Warriors are hot $hit right now and I am certainly glad I don't have to shovel any snow around here. Anybody 'round here that wants some 49er tix is welcome to them. The other night I posted Warrior/Lakers tix on Craigs List at 1am.  Within 3 minutes I had my first call. All night long people called wanting the tix I wanted to sell. Finally at about 9am I took them off line and got some peace.  People called at 4am, 5am, 6 and 7am. I had to laugh the night away. Never again will I post at that time of night for seats I have to sell.  Besides I sell them for the price we pay for our season tix. Dumb, I probably could have sold them for a whole lot more.

[l-horn]

My Longhorns are undefeated in basketball and ranked #4 in this here nation. And yeah, it snows in Texas, just not in this part of Texas, generally speaking.

[sfbaygirl]

No,  you were so busy shopping, you had no  time to shovel snow!  Besides I don't think it snows in Texas, does it?  How about those Long horns?  Did you have the energy to herd them into the corral?   LOL

Wyntre,
Glad to hear you got some help!  I would love to come and help, well actually just visit....I did my share of shoveling snow when I lived in Lake Tahoe.  I'm still lucky if I can pick up the messes I make around the house.