Aa
Harvoni Side Effects Anyone?
I ask this because overall, I don't feel much, but this morning I woke up with a headache, which is very rare for me. I believe one of the side effects can be a headache. I also notice my hands slightly shaking since starting Harvoni. Anyone experience this? Just curious as to what others are going through.
I know this is a new type of treatment, but it would be helpful and put people at ease if others are experiencing the same effects. Otherwise, people could freak out and think something worse is happening to them. Something worse than watching a Justin Beiber video if that's possible...
Magnum
I know this is a new type of treatment, but it would be helpful and put people at ease if others are experiencing the same effects. Otherwise, people could freak out and think something worse is happening to them. Something worse than watching a Justin Beiber video if that's possible...
Magnum
Just has my yearly physical and everything was excellent. This after the Harvoni treatment, liver transplant and five previous failed treatments. If it is any indication, I eat very healthy (no red meat), work out three times a week with weights until my heart is racing, drink plenty of water.
There is still the issue with blurry vision in long distance reading (street signs), but my doctor calls me the Wonder Man, as to how I've rebounded after all the torture I went through. Some may doubt it, but I think the mind is very powerful. If you think you're sick, you'll be sick, if you think you're healthy and go on with life as usual, you'll be healthy. Theoretically, it has worked for me.
I have another visit in three months with my optometrist regarding the blurry vision. His and my hope is that the withdrawal of Harvoni will eventually leave me with the vision I had pre Harvoni. Stay tuned...
There is still the issue with blurry vision in long distance reading (street signs), but my doctor calls me the Wonder Man, as to how I've rebounded after all the torture I went through. Some may doubt it, but I think the mind is very powerful. If you think you're sick, you'll be sick, if you think you're healthy and go on with life as usual, you'll be healthy. Theoretically, it has worked for me.
I have another visit in three months with my optometrist regarding the blurry vision. His and my hope is that the withdrawal of Harvoni will eventually leave me with the vision I had pre Harvoni. Stay tuned...
Sorry for the spelling errors above. I'm typing on iPad. Ashamed of myself!!
ReBe
ReBe
Hi. This is my first post. I am in my 8th week of treatment on Harvoni. I found this forum because I am looking for support and help. I had my halfway appointment this lady Wednesday. I learned my blood pressure was high (for me anyway) at 149/91. I have had 120/60-70? my whole life. The physiatrist assistant was not concerned with it, but I am. Along with the blood pressure issue, I have developed in this 8th week a pain in the neck. It sort of feels tight and I keep feeling for lumps. It feel today as if it is moving up towards my ears. This afternoon I feel a slight "tightness" on the right side of my neck and I am praying that doesn't get as bad as the left. Has anyone else had this experience, and if so, what did you about it. Should I be worried?
For the new Harvoni users, I have had mild headaches, not lasting long, drank tons of water, had sleep deprived nights (which have been most frequent in the past week), a pain in the right side off and on the whole time (but getting less and less) , taken only three Tylenol in 8 weeks, and the veins in my legs have felt painful (tight) when I've gone on my morning walks. Initially I could not get words out of my mouth easily and even said a different word than what I meant to say in the first few hours after taking my pill. I have also been dizzy and tripped and even fallen over the past 8 weeks.
The good news: at 4 weeks my ALT and AST was back in normal range, there was some of the virus still detected but it was < 15. The other number that is measured was unmeasurable as in not detected!
New test on Wednesday.
Looking forward to hearing from you all and, if I can help you by answering questions, I'll happily do so.
God Bless all of you
ReBe
For the new Harvoni users, I have had mild headaches, not lasting long, drank tons of water, had sleep deprived nights (which have been most frequent in the past week), a pain in the right side off and on the whole time (but getting less and less) , taken only three Tylenol in 8 weeks, and the veins in my legs have felt painful (tight) when I've gone on my morning walks. Initially I could not get words out of my mouth easily and even said a different word than what I meant to say in the first few hours after taking my pill. I have also been dizzy and tripped and even fallen over the past 8 weeks.
The good news: at 4 weeks my ALT and AST was back in normal range, there was some of the virus still detected but it was < 15. The other number that is measured was unmeasurable as in not detected!
New test on Wednesday.
Looking forward to hearing from you all and, if I can help you by answering questions, I'll happily do so.
God Bless all of you
ReBe
Hi and welcome to the Forum.
Concerning the Harvoni 8 weeks vs 12 weeks: yes, there are successes with 8 weeks, especially for those, like you, who are treatment naive (never treated before for the Hep C) and who have a low viral count.
Having said that, I would advocate with your Dr to extend the treatment for the other 4 weeks. I am very conservative and believe that it is better to treat for the 12 weeks than to have to do treatment (tx) all over if the 8 weeks does not work.
We have had several people post, on the regular Hepatitis C Community, that have been successful in getting the increased time. but also some did not get the extension. However, I don't remember anyone saying that they had failed on the 8 weeks.
You might want to look at that Community, too.
Good Luck on reaching SVR, whichever way you go!
Blessings,
Pat
Concerning the Harvoni 8 weeks vs 12 weeks: yes, there are successes with 8 weeks, especially for those, like you, who are treatment naive (never treated before for the Hep C) and who have a low viral count.
Having said that, I would advocate with your Dr to extend the treatment for the other 4 weeks. I am very conservative and believe that it is better to treat for the 12 weeks than to have to do treatment (tx) all over if the 8 weeks does not work.
We have had several people post, on the regular Hepatitis C Community, that have been successful in getting the increased time. but also some did not get the extension. However, I don't remember anyone saying that they had failed on the 8 weeks.
You might want to look at that Community, too.
Good Luck on reaching SVR, whichever way you go!
Blessings,
Pat
Hello from Germany
My name is Alex, 53 years old, since 30 years I have HEP C but I never have done any treatments with Interferron/Ribaverin due to the fact that my intuition told me to wait for the day some new less harmless remedy will be discovered and also due to the reason I was scared of the side effects like depression.
I´m in my fith week with Harvoni now and I do have the same problem with my eyes.
Apart from that they are not as shiny as usual I also realize that my capacity to read or look at smaller things at low distance without reading glasses has suffered a bit.
Another side effect which I realize (and also my wife does) is that I cannot concentrate as good as I´m normally used to. Also my memory is quite affected. There is nearly nothing to fnd in the www on German experiences.
I´m very happy to have found informations of English speaking people (most of them from the US).
And I´m absolutelyhappy about this new therapy.
I´m sure it will work!
The only thing which worries me i that my doctor wants to do a only 8 weeks treatment - he says that my virus concentration being so low it would be enough with 8 weeks - ; How do you think bout this?
I´m a bit worried being used as a guinea pig as the treatment is being paid by my health insurance.
I think it´s the best to insist on the classic 12 weeks treatment. right?
Best
Alex
My name is Alex, 53 years old, since 30 years I have HEP C but I never have done any treatments with Interferron/Ribaverin due to the fact that my intuition told me to wait for the day some new less harmless remedy will be discovered and also due to the reason I was scared of the side effects like depression.
I´m in my fith week with Harvoni now and I do have the same problem with my eyes.
Apart from that they are not as shiny as usual I also realize that my capacity to read or look at smaller things at low distance without reading glasses has suffered a bit.
Another side effect which I realize (and also my wife does) is that I cannot concentrate as good as I´m normally used to. Also my memory is quite affected. There is nearly nothing to fnd in the www on German experiences.
I´m very happy to have found informations of English speaking people (most of them from the US).
And I´m absolutelyhappy about this new therapy.
I´m sure it will work!
The only thing which worries me i that my doctor wants to do a only 8 weeks treatment - he says that my virus concentration being so low it would be enough with 8 weeks - ; How do you think bout this?
I´m a bit worried being used as a guinea pig as the treatment is being paid by my health insurance.
I think it´s the best to insist on the classic 12 weeks treatment. right?
Best
Alex
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