TeeVee ..uncharted territory for me, but plenty of company here thankfully. Shall see how it goes.
KBM...thanks for that, will post the results which I hope are simply "status quo"
Trin.....I'm sorry, I've been a little wrapped up, I can't recall if I posted in your thread regarding your visit with the doc and your treatment plan for your 72 weeks. If not, congrats on getting all that sorted out and for your tenacity at that. We each have our different variables to play with and it's alot to work with. I'm very pleased and relieved for you also. Can't say I take it in stride .. I do get my shorts in a knot about things sometimes. Been very quiet lately because I've been really deep in thought and engrossed with things at hand.
Rita thank you so much for your constant encouragement, means so much. How are you doing anyway? If I'm at Week 32, you must be getting very much closer to done? Are you in countdown mode yet? Hang in there....you're almost there!!!
jasper.....glad to put a smile on your face. Have fun with THAT. :)
Isobella....my dear friend. :) So glad you are up and out of dosage reduction range finally yourself. Such a simmering worry and such a relief and I hope it holds. Dunno if the mushrooms have helped but they sure haven't hurt. Thanks for the cheers. No neup as yet, paperwork takes awhile like a couple of weeks so still dealing with the reductions and anxiously awaiting the arrival. Being....creative. ;->
Sigh Jim...I'm staying out of political threads HERE but not totally...what are you trying to do? Reduce my QOL quotient?? For the first time, I doubt your sources, Jim. Now if you'd said they exacerbate the hemoglobular process...maybe a little more credence there.
As to CD4, perhaps...I think, again, it's the thyroid situation, rising liver enzymes and dropping white counts that prompted it and the ongoing impact of the trial drug on the lymphocytes and the role they play so there are multiple factors I think that have prompted that one and I think they're simply looking to get a fuller picture. I'm okay with that one based on the things I've read. I think, however, the introduction of neupogen will cover a multitude of "sins" so to speak. Thanks, Jim.
Trish
Congratulations and stay out of political threads. A new study suggests they inhibit the Neupogenic process.
-- Jim
PS As to "CD4", as stated before, sometimes I get a feeling your medical team is looking for trouble. Is this a Canadian thing????
Congratulations on getting the neupogen! I am so happy for you. :-)
Our numbers are almost identical....my hgb is 10.1 and my anc is up to 1. Today I got the call to go back up to my full dose of peg.
Yay for us!!!! I think there is alot to be said for the face time we get with the trial docs...to let them see how determined we are :-)
Good luck...hope the neupogen kicks in soon for ya!
LMAO, I read you post and tried to be serious when reading it; Congrats btw and hope you feel better when it kicks in after getting it, but I got stuck in the middle so I reread it again and tried to absorb the whole context of the post but as with the first time this suck out in bold print and then thought hum… this is a switch, not that I mind a man standing up for himself but did think it was a little strange, I always thought it was the other way around.
I have continued to express my request for it getting firmer and firmer .. and last week was my firmest request yet and his firmest response of "No" so far..
ROTF
jasper
I'm very relieved for you. What a journey so far but you take it in stride and keep on going - always determined. You make things happen and that's how we beat this virus. Push until they quit pushing back, or least that's been my experience. Hoping you feel better soon. Go Neup - Go antibiotic - get this women back on track!!
Trin
Trish,
Glad to hear they have finally reconsidered. Hopefully you will start to feel a bit better once your start. You are a fighter!!! I like that you will not take NO for an answer!
sending good things your way!
peace
rita
I'm also happy for you.ONLY You know what your body needs.Sounds like you hit the soft spot on your drs. mind.He thought hard about what you said to him and made a rational decision.It's a good thing to have your mind at ease with your body.Now eat well and get sleep.Sounds like you have a plan and No One can Stop you.Keep on keepen on towards your goal.Do the things you need to do to not have to look back.Be sure and let US know what happens with your last blood test for your thyroid.
Tammy
I am happy that you are finally getting the Neupogen! It might take awhile until they decide how much to take each week. I took 3 shots each week throughout tx. They almost upp'ed it to 4 at one point and I was glad they didn't.
Anyway, persistance paid off and the Neup will do the trick!
Enjoy your Thanksgiving!
TV
..to combat the CD4, they're putting me on a sulfur drug, I guess a pro-active measure to keep me safe from potential infection. I happen to have an infection in my tooth, a nasty one and I start penicillin for that... I'm on quite a concoction but each drug is for something specific going on and there's alot going on but it's all getting managed and I'm managing myself to keep up with it all .. now that I know I'm getting the neupogen... I can be at peace.
A step at a time...but at least I know that everything that can be done is being done and I'm very happy with my doc that he was willing to step outside of his comfort zone and give this a shot. He's my favourite doctor and I'm happy he's keeping his rep of being my favourite aggressive doctor.
Okay. I'm done now...deep, happy sigh of relief.