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461838 tn?1255790216

What do I do while I wait for anemia help

I am getting fed up, even when I was told I'd get help from the Clinic director and psychologist, I have been anemic since at least before I had my bloodwork taken tuesday before last. My ribavarin was just cut back 400mg, I am getting really irritable, restless and discontent, also shakey tired, but not sleepy, my family dr. has me on multivitamin, but can't stomach any iron. I don't see the use in being this miserable and suffering this long, when I know there is procrit and transfusions.
I know many others have been through much worse and come out smiling, why, is it fear, a control issue, ignorance or not caring. I don't get it. I am about to go on the black market,just kidding. it would be the red market wouldn't it.

I can't stand irritability in a man, I won't tolerate it.  I feel like when I was a much more immature kid with the flu and sick of it. yeccch!

God grant me the serenity to accept the things I can't change, courage to change the things I can, wisdom to know the difference,  and a rbc transfusion amen
6 Responses
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Avatar universal
Perhaps the "hover chair" might help!!..Don't let tx take your sense of humor..;*)
http://www.reuters.com/article/technologyNews/idUSTRE49T2RG20081030
Helpful - 0
Avatar universal
I'm sorry you are going thru this.  Tx is tuff enough.  At least I was blessed with a responsive dr.
I hope you get some help soon.
Helpful - 0
611067 tn?1458591483
Thanks for the information.  I had no idea.  Good luck!!!!
Helpful - 0
Avatar universal
Mostly when we are anemic during treatment for hep C it is not a matter of iron deficiency.  We take a powerful antiviral med called Ribavarin, which causes hemolytic anemia - nothing to do with iron, so iron supplements will not help.  In fact, we are cautioned about taking iron supplements or eating too much iron-rich food.  
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611067 tn?1458591483
I'm not sure if this will help you, but I have been anemic for years!  I am finally getting back to normal.  My iron level last October was 3.  Today it is 56, still a little short, but so much better. My hemoglobin levels are normal now as well.  I have been doing natural things.  I drink chlorophyl every day.  I eat lots of cherries and things high in iron like baby spinach salads.  I take folic acid every day with my iron pills and also vitamin B-12 injections every two weeks.  These things have helped me a ton.  I don't know if with your other meds you can take these, but they did help me.  You could even do B-12 sublingual tablets under your tongue.  They work great too.  I also take Magnesium and Calcium at night before bed.  It seems to help me sleep.  I'm getting better.  If you think it might help - give it a try!!! Good luck!!!!
Helpful - 0
Avatar universal
I went through the same thing.  Don't ask me why docs don't want to listen sometimes.  Cutting the riba is one way to help, but imo, not ideal.  You really need procrit.  Call the dr. and demand it.  I had to pitch a fit to get it, but I finally did. I have taken two shots, and can't tell any difference yet.  It takes a while to get in your system.

Good luck to you!

Jean
Helpful - 0
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